Hi

It's me again! I am so upset and confused.
My symptoms don't make any sense. Yes they fit neuropathy but 8 Emg/ncv clean. Skin biopsy clean. Muscle biopsy clean.

What baffles me is how I have this all over. I understand the tingling sharp stabbing pins and needles.

I mean the cramping/ spasms (tight pulling)
My muscles from head to toe face to feet are in constant state of tightness. It dose t feel like a regular tight. It's a pulsating pull pull pull.
Similar to what tmj or teigeminal neuralgia patients describe.
In this tightness I get constant barrages of smll twinge cramps all over and in multiple places at the same time.
Literally is so painfull as if the muscle is pulling of the bone.
It squeezes super tight and spasms tigt let's go and then on.
Or like in face tight all day long!!!
I carried bags of grocery and when I put them down my finger and arm goes nuts twitching as I made it work thru the tightness

As I walk and arms fling back and forth makes the tightness pull worse.
Same in legs and face. More I talk worse it gets.

So in neuropathy if my nerves done to show signs of damage the is it neuropathy after 13 yrs. No loss of sensation.

Doctor said possible peripheral nerve hyperexcitability syndrom
But Emg is clean.

I know it's my nerve as I can feel the nerve activity and that causes this

Is it all muscle putting pressure on the nerves and on turn causing all neuropathy sx and twitching and stiffness.

Been take cal and mag and Epsom salt baths daily.

I have researched and seen people with similar neuropathy but not this severe muscle spasms and tightness all over.
I have seen people say it's in their face not all body.
I go to open the fridge and breast muscle almost crps! It's little movement too

I don't know what's wrong with my body. I am so depressed with this.
And feel so alone.
My throat gets so tight that when I swallow the front bones click so hard.
It's like all muscle are being rung!
When I cry or anxious the tight pulses get worse.

I don't get this.
Neuromuscular disease I don't know

I have seen people with stiff person syndrome describe like this and in face but I have had five times anti gads checks and Emg is so quite!!



I dont know any more

One more thing. When I am standing up and arms down it gets so tight like when the blood pressure cuff is on the arm. That's how the whole body feels.
And it will feel like blood cut off and rush into fingers.

So his in back and front and stomach too.
Spasms sstarts in arm goes into breast and chest.
But there is no end to the nerve activity motor wise all day!

Last year I had so much constang pulling in face and neck that suddenly my breast muscle went into Charlie horse cramp.
Very scary!

All this activity I have no control it has mind of its own

Is this tetany?? Maybe.
I don't have it like dystonia thankgod

Did anything happen to set this all off?
Like an accident or injury?
or just started happening out of the blue?

Well it started in 98 innmy neck then throat and then in 2003 went crazy after flu shot. And agin last year it got bad after I started working out a lot.

Like right now my entire body is spasming. Not twitching but tight cramp spasms

Have you experienced any of the burning or tingling sensations? This has to be very frustrating for you. Danielle

Yes : from head to toe: burning, fire like, tingling pins and needles, bee stings.
Stabbing, twitching. Allodyna
Sensory and motor

have you tried elevating your legs or even just you feet i.e. face down with your legs bent back or vice versa ?

Perhaps even an inversion table might be a good idea , just if anything to see how it influences things in the meantime.

What about using ice, does temperature help it ?

I can relate to some of what you say but its so hard to be sure just through words, the main thingright now is to try to find something that helps calm you down a bit or relax.

m