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Good place, and good choice?
Be cautious about anyone wanting to do 'surgeries' for PN.
Nerve conduction testing and blood work, plus spinal fluid analyses are key to determining potential sources for neuropathies... Do go to the 'stickies' at the top and wade thru the various sources for testing... The best are: http://neuromuscular.wustl.edu/alfindex.htm - this, go to the peripheral neuropathy aspects and see how many there are...it's mind boggleing! then check out http://neurotalk.psychcentral.com/thread135993.html Are starters, but there are other goodies in the 'stickies' to read and learn from. I don't know about you? But when docs start mumbling about the 'snorficscamium' and 'vasculinifisortium' you are already overloaded and, I for one, just 'nod' OK.... I instead, now ask them to write what's going on down [in a way I can REALLY read it?] so I can learn more about it on my own. I find I'll either get respect or disdain for that asking. Docs who are disdainful? Well, gee, they mite just feel threatened by knowledge from the AAFP, The NIH or the like? Sad, but true on more than one occasion. It can be a 'dance' of minds.. so always if you must? cite impeccable sources such as the ones I've mentioned above. Please don't agree tho? To a full sural nerve biopsy without an outside second opinion! Punch biopsies? OK, but not the full nerve extraction. I'd declined and I'm glad I did? Tho now? As an absolute last resort for proof of diagnosis would I agree to it. The LAST RESORT...and many insurance co's no longer cover it as a diagnostic procedure due to potential complications of the surgery. This is NOT to scare you? Merely to let you learn and know where you mite stand and how far you are willing to go for a diagnosis at this time or a later time. Persue testings, but at a measured and prudent time frame and course of direction. I hope you get a good or advantageous diagnosis! It took me less than a year, but it was one heck of a time! I sure hope yours is easier and faster. If you've any questions, don't be shy about asking. We've lots of good people here and a lot of differing opinions. Do take into consideration tho? That we've all gotten here by different routes. Hope and faith in a good diagnosis and result! :hug::hug::hug:!'s - j |
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