Cathie, (Scarlett on here) needs help with getting back on the site and in the meantime has asked me to post for her. I'm going to try to copy her email to me and in the meantime, I'm going to see if I can send her a link and instructions.

""Dear Billye:

Please see if you can help me. I am unable to get on the website for some reason and I am just desperate for help here. I had my second thyroid biopsy and am going to have to undergo surgery-a full removal of my thyroid.

I don't need someone to tell me what to do. What I need is to find a doctor who can tell me which method of thyroid removal will be best for my situation-namely the least invasive and least traumatic to a patient with additional medical problems. I am getting ZERO here in Dallas. The old techniques, open surgeries, are the way things are done here, even at the medical school. There is minimally invasive or endoscopic surgery done, but only on the Parathyroids.

I have a wonderful surgeon who could do the surgery the way it is normally done, but no one, not even the Endocrinologist, knows anyone in my area I could consult with on other surgical options.

There are several different methods of minimally invasive surgery, all involving different means of removing the thyroid. Some doctors go through the breast, some go through the axillary area (underarm), there are others I am not even sure I have come across yet. All of this is too complex for me to understand.

If you could please copy this note and post it to the site, I would be most grateful. Again, I am not asking someone to tell me WHAT to do. I know what needs to be done-my thyroid has to come out. I just need to find a doctor with overall knowledge of these various minimally invasive techniques, so he/she can guide me to how it could be best done under the circumstances.

Sorry to burden you with this. I know you have your own problems, but I don't know what else to do here.

Thanks,
Cathie""


Billye

Cathie

I obviously can't offer any names but perhaps a read of the following website might offer some help or advice? Just a thought.

I hope all goes well for you and you find a doctor that you really like.
http://www.endocrineweb.com/surthyroid.html
Tony

and it seems all confusing as both the thyroid and para-thyroid are always smoooshed in together...so when looking for particulars, it does make a person cross-eyed!

Tony's site suggestion looks like a good one...i peeked at it last nite and I could have spent HOURS confusing myself more!

Having undergone two surgeries last year, tho for something different, I totally understand all of your fears and also the practical concerns.. In my case, I'd sussed out all my docs about specialty surgeons and the same names came up consistently-that and my own 'net' research were clinchers...plus I really liked the doc! Something that I'm sensing you probably need some extra outside reassurance on. I just wish I could be more useful in the info quarter tho.... So please, take some 's instead! - j

billye,

we don't have a member with the name Scarlett registered. we have a scarlett46. http://neurotalk.psychcentral.com/member.php?u=876

cathie if you are reading this...is that your username?. if you can't remember your password, the system will send you a temp one to your email addy. let me know if there is anything i can do to help you post. i can pm billye my contact info.

Curious, her username is Yorkiemom

Scarlett is in her email ID I believe.

Sorry can't be of help, they nuked my wife's thyroid a couple years back by giving her a pill and I had to stay away from her for a couple days. She had an overactive thyroid. You didn't state the reason for removal so I guess its the big C. Wish her the best for me.

I confused the user name with another one I remembered from some forum. Yorkiemom is correct. Mrs. D thanks for straightening me out. I'm running on empty physically and mentally right now. Just trying to do too much. We're a one leg family right now. Well 13 if you count my three little dogs.

Curious, do you have a Yorkiemom registered? I can copy the answers for her, but she still can't get on.

I'll forward all this info to her and hope we can get her back on.

Billye

yep...here she is. http://neurotalk.psychcentral.com/member.php?u=1341

billye...i am pm'ing you my email addy. that way she can tell me directly what is happening when she tries to log on.

btw...da monkeys LOVE her avatar!!

Thanks loads, I got your PM and have forwarded the email addy to Cathie.

Billye

discovered I too am about to experience the world of ENDO! I'm well a semi-freaking creature, as none of my scribing docs have really looked at my meds, especially meds in COMBO as a source of super accellerated bone loss. I see that new doc in about 3 weeks...postponed only because I want to time my blood draws to right before my next IVIG infusion...a thing that can skew some #'s totally if taken after, unless by the scribing doc.
You can tell a doc you've got 'problems/concerns' but, sometimes I REALLY REALLY want to start swinging that old 2x4! Any, ANY input you can give me about your own personal endo experiences I would truly appreciate.. I'm 'finally getting' the fact that each field of medicine must be from different planets...

I'm hoping you get back on soon, we can commiserate about how 'things are connected'....or NOT!

Super good things till later - j