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BOB you are an inspiration. Just goes to show by ignoring the stupid pain you can still have a productive life.
My job was a very high profile position running motivational seminars in combination with mega sales for the motor industry. This involved me running around for 16 hours setting up and running the events in an expensive suit and business shoes and my feet hurt BEFORE I had PN :eek: so my career is over :( The initial loss of my embarrassingly high income hurt but as time went by I realized that I didn't need that much money with PN, kinda obvious that my flash lifestyle of traveling, skiing,yachting,late night partying was over anyway. I trade the stock market theses days and I can tell you that in those 6hours Im very focused away from the pain so much that i dont remember it until its all over and it comes flooding back. Distraction works pretty well. |
"My hands and arms are affected as well, writing on the board will be tough and my handwriting has seen better days."
Suzanne Most teaching nowadays is done on a Smart board, you can use PowerPoint presentations with these and they are hooked up to the Internet so you can show video clips, you can also type with the computer as you are going along(saves the writing). Teaching has changed so much in this new electronic age, my tip would be to try to get another English teachers presentations and amend them to suit yourself( this way you won't be typing the full course as you go along as this would take ages). There may be training on using this technology that you could prepare over the summer. Good luck:) |
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I put in a request at work to telecommute, something a teacher cannot do. Anyway I am a Programmer/annalist, and most of my job can be done with a computer, the rest is meetings which can be done over a conference phone. I put the request in, informally back in January. I did not get an answer until April. A big no. The reason given was that they have "no work at home policy". And all work from home should stop. As many of you can relate there are good days and bad days. The 45 minute commute was a horror. On especially bad days I would have to pull over to the side of the road and scream.
Anyway; I finally had enough, one day, I had a particularly bad day and wanted to go home. But because all three of the other programmers where absent, I was obligated to stay. It was hell. I filed for Temporary divisibility and have been off work since May. I also put in a formal ADA request for accommodation. My Dr. has been slow to respond but agrees that the only way I can work productively is from home. Until someone can figure out how to solve complex problems while in pain I will need to work around it. Working through it actually helps as mental distraction is the best pain reliever I have found, but as soon as the phone rings or someone drops into my office the pain comes back like a ton of bricks. |
I give credit to all who work and/or are parents too. I have been off work and school since this condition started. I hope one day to go back to college and work again. I think I will start though with a volunteer position. A lot will be finding a position that I can do with the limits. Sending good thoughts
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Thank you for the FB site. I just joined one for RSD but will join that one too. I never knew on FB there were groups like this. I find support of people that deal with the same so helpful. Sending pain free thoughts
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