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-   -   Do you work or have worked with PN? (https://www.neurotalk.org/peripheral-neuropathy/154397-pn.html)

zorro1 07-29-2011 09:51 PM

BOB you are an inspiration. Just goes to show by ignoring the stupid pain you can still have a productive life.
My job was a very high profile position running motivational seminars in combination with mega sales for the motor industry. This involved me running around for 16 hours setting up and running the events in an expensive suit and business shoes and my feet hurt BEFORE I had PN :eek:
so my career is over :(
The initial loss of my embarrassingly high income hurt but as time went by I realized that I didn't need that much money with PN, kinda obvious that my flash lifestyle of traveling, skiing,yachting,late night partying was over anyway.
I trade the stock market theses days and I can tell you that in those 6hours Im very focused away from the pain so much that i dont remember it until its all over and it comes flooding back.
Distraction works pretty well.

malawigirl08 07-30-2011 03:39 AM

"My hands and arms are affected as well, writing on the board will be tough and my handwriting has seen better days."

Suzanne
Most teaching nowadays is done on a Smart board, you can use PowerPoint presentations with these and they are hooked up to the Internet so you can show video clips, you can also type with the computer as you are going along(saves the writing). Teaching has changed so much in this new electronic age, my tip would be to try to get another English teachers presentations and amend them to suit yourself( this way you won't be typing the full course as you go along as this would take ages).
There may be training on using this technology that you could prepare over the summer. Good luck:)

Susanne C. 07-30-2011 08:43 AM

Quote:

Originally Posted by malawigirl08 (Post 791071)
"My hands and arms are affected as well, writing on the board will be tough and my handwriting has seen better days."

Suzanne
Most teaching nowadays is done on a Smart board, you can use PowerPoint presentations with these and they are hooked up to the Internet so you can show video clips, you can also type with the computer as you are going along(saves the writing). Teaching has changed so much in this new electronic age, my tip would be to try to get another English teachers presentations and amend them to suit yourself( this way you won't be typing the full course as you go along as this would take ages).
There may be training on using this technology that you could prepare over the summer. Good luck:)

This is a small private school with minimal budget, conservative ways, and zero technology. My daughter teaches high school English in Philadelphia, they have smart boards and power point, but that is about it. I appreciate your taking the time to suggest this, though. Perhaps things are very different where you are, but here teaching is pretty low tech in general.

wheelst 07-30-2011 06:26 PM

I put in a request at work to telecommute, something a teacher cannot do. Anyway I am a Programmer/annalist, and most of my job can be done with a computer, the rest is meetings which can be done over a conference phone. I put the request in, informally back in January. I did not get an answer until April. A big no. The reason given was that they have "no work at home policy". And all work from home should stop. As many of you can relate there are good days and bad days. The 45 minute commute was a horror. On especially bad days I would have to pull over to the side of the road and scream.

Anyway; I finally had enough, one day, I had a particularly bad day and wanted to go home. But because all three of the other programmers where absent, I was obligated to stay. It was hell. I filed for Temporary divisibility and have been off work since May. I also put in a formal ADA request for accommodation. My Dr. has been slow to respond but agrees that the only way I can work productively is from home.

Until someone can figure out how to solve complex problems while in pain I will need to work around it. Working through it actually helps as mental distraction is the best pain reliever I have found, but as soon as the phone rings or someone drops into my office the pain comes back like a ton of bricks.

daniella 07-30-2011 10:04 PM

I give credit to all who work and/or are parents too. I have been off work and school since this condition started. I hope one day to go back to college and work again. I think I will start though with a volunteer position. A lot will be finding a position that I can do with the limits. Sending good thoughts

drwk 08-04-2011 12:47 AM

Quote:

Originally Posted by daniella (Post 791309)
I give credit to all who work and/or are parents too. I have been off work and school since this condition started. I hope one day to go back to college and work again. I think I will start though with a volunteer position. A lot will be finding a position that I can do with the limits. Sending good thoughts

Thanks Daniella! I wanted to share with you that I belong to a FB group called Support for Neuropathy. It is a closed group, so none of your friends can read your posts only the group members. It is mentioned in the Neuropathy.org newsletter this month. You can also contact Jessica Benjamin through FB if you would like to join. It is a great group and has helped me a lot.

daniella 08-04-2011 11:35 PM

Thank you for the FB site. I just joined one for RSD but will join that one too. I never knew on FB there were groups like this. I find support of people that deal with the same so helpful. Sending pain free thoughts

Fran H 08-06-2011 12:26 PM

Quote:

Originally Posted by drwk (Post 790665)
How many of you still work or have worked while experiencing neuropathy? Can you tell your type of job? I am a teacher and worried about this coming year. Thanks a bunch! Danielle

I work as a teacher also. I was diagnosed with PN many years ago, but the neurontin made me "dizzy" so I have not really been taking anything for it. Lately the pain has become more extensive ( I think including pudendal neuropathy). I have been able to do my work w/o much trouble. The pain gets worse later in the day. I will be going back to a neurologist as soon as my husband's back surgery is finished and he is up and about again.

Fran H 08-06-2011 12:28 PM

Quote:

Originally Posted by glenntaj (Post 790774)
--but as a test preparation specialist and academic writer, I don't have what would be called a physically demanding job, and I can make my own schedule for the most part.

Still, the amount of driving I have to do does not help my neuropathic situation much (especially the pudendal areas).

How were you diagnosed with pudendal? What are your symptoms? I believe I have that (in addition to peripheal) but have not been to doctor recently. I'll go again once my husband's back surgery is finished in 2 weeks and he is up and about again.

drwk 08-06-2011 10:29 PM

Quote:

Originally Posted by Fran H (Post 793239)
I work as a teacher also. I was diagnosed with PN many years ago, but the neurontin made me "dizzy" so I have not really been taking anything for it. Lately the pain has become more extensive ( I think including pudendal neuropathy). I have been able to do my work w/o much trouble. The pain gets worse later in the day. I will be going back to a neurologist as soon as my husband's back surgery is finished and he is up and about again.

Hi Fran,! Thanks for responding. What area or grade do you teach? What is pudendal neuropathy? I haven't heard of it... Is your neuropathy idiopathic or do you know the cause? As of right now I don't know what has caused my issues. Thanks for sharing! Danielle


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