[zygopetalum]

I would really like to hear what you guys have to say about this.

I've never been to a neurologist or had any blood work related to neuropathy. I've had 2 nerve conduction tests at a local rehab clinic (3 years apart) and was sent on my way with a prescription for Neurontin. Nerve conduction was normal and report stated symptoms consistent with SFN.

I don't know if I'm "different" or not, but I think what may be happening is a possible underlying neuropathy coupled with a raft of significant side effects from my COPD meds. NOBODY wants to address that, most of the time I've been told that what I was describing was attributable to neuropathy or COPD. At one point I was told it didn't matter, that I should just treat the symptoms but I have not been comfortable doing that when no one will even acknowledge there may be some issues with the meds. I recently had physical therapy, PT said in her opinion they all know exactly what is going on, they just don't want to get into it because they want me to stay on the meds.

I'm not an idiot (except with respect to computers lol), I'm a college graduate with enough of a science background to have been very aware of the human tendency to assign meaning to random symptoms and have tried not to do that. I think anyone with common sense would have come to the same conclusions I have.

My PCP told me that seeing a neurologist was a waste of time and $ because there was no cure for neuropathy anyway. I'd like to know what others think of that and if anyone has had experience with meds for other conditions exacerbating pain, etc. Also both meds in question have low incidence association with parathesias, any comments on that appreciated even if you think its something I don't want to hear. I'm going to see Pulmo on Monday and trying to find as much information as I can.

Thanks,
Zygo...in case anyone is wondering a Zygopetalum is an orchid, had just gotten one when I registered and that was all I could think of for a user name....ha