Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-11-2011, 12:50 PM #1
MelodyL's Avatar
MelodyL MelodyL is offline
Wise Elder
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
Default I was on a Neuropathy Facebook page

And would you believe I almost got booted off because I was talking about Methyl B-12.

There are quite a few FB pages on neuropathy. I didn't know this. I was just looking around on FB. So I stumbled upon one, I asked to join, I was accepted and ALL THESE PEOPLE were in so much pain, all of them were on various things, like Neurontin and other opiates and they talk about the various creams they all have been trying (kind of like this forum) but with LOTS OF PEOPLE POSTING BACK AND FORTH all day long. Some people who come here were also on that FB page.

So I was reading the various postings and you can reply but selecting the COMMENT option.

so I just told my story about Methyl B-12 and I answered some questions and people actually thanked me for the information and were going to try it. I made a point of saying "google Methyl b-12 and Neuropathy" before you buy anything.

There was also a discussion about medical marijuana and people were indicating that the opiates they were on weren't doing anything and I said "well, they really don't help with nerve pain, that's why, if it's legal in your state, well some people find that MM helps"

It was a big discussion, for about 3 days, LOTS of people posting and people even friended me on FB.

Well, the other day I get a message from the person who created the group on FB telling me to STOP PUSHING METHYL B-12 and stop badmouthing doctors (all I said was that Doctors practice medicine and they don't practice nutrition" THAT'S ALL I SAID.

This person told me I better stop pushing Methyl B-12 on people, that she read the warnings and it's dangerous, and that I should not talk about medical marijuana and stop bad mouthing doctors, that doctors really do the best they can do and then she writes that the first choice of treatment for neuropathy should always be Anti-depressants and anti seizure medications. Then she said "If you continue to post info about Methyl B-12, I will delete you from the group". I then left the group of my own volition.

I messaged her back that she really didn't know what she was talking about but she's not going to hear from me anymore.

I will never DO THAT AGAIN.

There were so many people in pain, I can't tell you.

What the heck is wrong with people anyway. They kill you for talking about Methyl B-12.

And you're going to love this

One of the people on that FB page who read about what I wrote about Methyl b-12 and Neuropathy, actually wrote to me saying "I looked it up on the internet, found all the information very helpful"

She then went to her pharmacy and asked the pharmacist "Do you carry Methylcobalimin??"

He said 'What's that?" She explained to him what it was.

He said "never heard of it, let me look in my computer"

He then looks at her and says "It doesn't exist"

She replied "Oh really, I found it on the internet", and she walked out of the drug store.


?????????????????????????????????????????????????? ?????????
melody
__________________

.


CONSUMER REPORTER
SPROUT-LADY



.
MelodyL is offline  
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Why does this page always pop up dillypooh Computers and Technology 3 12-07-2011 08:33 AM
Small Fiber Neuropathy (or Length-Dependent Neuropathy) plgerrard PN Tips, Resources, Supplements & Other Treatments 1 05-09-2010 06:56 AM
Scooting the page over Doodle bug7 Computers and Technology 7 11-02-2008 08:40 AM
im asking everyone to goto mark sullivan facebook page and leave him a get well messa BobbyB ALS News & Research 0 09-28-2008 10:16 PM


All times are GMT -5. The time now is 04:28 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.