I developed a stomach neuropathy after an awful ordeal with a vitamin B deficiency. Does anyone know what the best treatment, foods are, and if it eventually goes away?

Hi Lily, sorry to hear that... how did they diagnoe it? I have the same - "gastroparesis" or paralysis of stomach and/or intestines.... shows down your ability to digest food significantly...

Depending on the severrity of it - there are meds that help greatly (you need to see a GI doc) - gastric motility agents and anti-nausea meds are usually used in combination as needed - and diet has a significant impact.....

(NO fiber, as little fat as possible - no raw fruits or veggies or red meat - some people can ear fish, chicken, etc. depends on the individual..., I belong to a gastroparesis support group - people get it for many reasons - not just neruopathy - but end results usually the same - so maybe check out their site (yahoo health group "gastroparesis" - they have recipes etc. to try.....

Some people just have it for brief periods - our members have all different degrees.... mine I got a year after the initial PN hit, and have lived on liquids only now for six years accompaned by motility and anti=nausea meds.... important thing is to find a good doctor who understands the condition (your neurologist may tell you that you have it - but usually will not treat it - you need a GI doctor with experiene with gastric motility issues.,.,.....)

Hope you can find some good help... just remmeber - fat, fiber, raw stuff is very diffiult to digest - so really watch those!

I suggest that you check out the 'stickies' at the top of this page...the "useful sites" can help you get a handle on the 'basics-language, terms, diagnosis/tests, meds and treatments' of PN. It's a wide range, as PN's got over 200+ variations.

Everyone here comes with their own perspective on the whole thing...kind of like finding yourself in a room with many similar but different viewpoints on what's pretty much the SAME THING...The Pain. However in the case of what sounds like an autonomic Neuropathy...well, it's seems the after-effects of the 'nerves-not-working-like-they-should or not-at-all' can be and are different issues. Lots of members have suffered the effects of vitamin deficiencies, diet intolerances, and/or negligent medical professionalism, at times, a combination of these!

My advice? Read, learn, know to follow what your body tells you when things are WRONG! Get second opinions-if YOU feel it's necessary and you can. Think of it this way....you are not only a PATIENT, you are a CUSTOMER! You are paying bucks either alone or w/insurance...BIG BUCKS, and, you have to BUCK the system to get the treatment you should be entitled to! [Ooops! Guess that's ONE opinion?] This stuff, after all can really HURT you! don't let things slide, please? SUPER Good thoughts in the meantime - j

I am sure that all the good folks who share here will be along and post soon, maybe a bit more info on your 'experiences' would prompt some specific feedbacks. B-12 deficiency is, a VERY under-rated issue.

I'm new to this forum. I have fibromyalgia and can't keep vit B12 or D in my system. I take monthly injections of B12 and a huge dose of D weekly. I've been suffering signs of neuropathy in my arms and legs and have my first appt with neuro next week. I was reading another post and trying to figure out the abbv's for things. If I have the TOS right, Thoracic Outlet Syndrome, that sounds likely for me. I just went to gastro and she suspects I have neuropathy in my stomach. Got put on what I lovingly call the "skewer", colonoscopy and upper GI endoscopy at same time. Waiting for test results to rule out colitis or other things. Found 2 ulcers which may be causing the vomiting. Have gone off one of the meds he said was probably causing them. At least it is something tangible that dr's can SEE and BELIEVE. None of them take me seriously.

I'd like to know more about stomach neuropathy and what to expect if I have it.

Thanks

If you are taking the RX 50,000 IU D2.... you most likely will not see much benefit. This form does not work basically well at all.

If you are taking D3 OTC...what dose are you using?

Vitamin B12 cyanocobalamin shots only stay in the blood stream for 72 hours. It would be much more effective for you to raise your levels orally, using 5mg Methylcobalamin (the active form) on an empty stomach daily. Within 3 months you will see high serum levels.

I'd get a B12 test run at least a week after your last injection to see what your blood level is. If it is low, then your injections are not working for you.

Methylcobalamin is OTC and pennies a day. Mostly available online though, but not difficult, dangerous, or a hardship in any way and is far more effective.

Many doctors don't know what methycobalamin even is, and don't understand oral works.

Here is my B12 information thread...
http://neurotalk.psychcentral.com/thread85103.html

If I were you I'd study this carefully and fix any B12 issue you are currently having and perhaps your gastroparesis will reverse if it is in early stages. Delay, and it may become forever.

Edit to add--- if you are low in magnesium Vit D often doesn't work.
Here are the cofactors needed for successful Vit D absorption and utilization:

magnesium
zinc
vitamin K2
boron
a tiny amount of vitamin A

Vitamin K is in green leafy veggies, zinc may be depleted by some drugs, but is in most animal meats, boron and Vit A are in most multivitamins. But magnesium is often low in Americans. So consider that too.
Here is my magnesium thread:
http://neurotalk.psychcentral.com/thread1138.html

THANK YOU everyone for this thread! I'd never heard of stomach neuropathy but have been wondering if I had something like that going on associated with the Spiriva I take for COPD. I went to the gastroparesis site and there were my symptoms along with anticholinergics listed as a cause.

I'm going back to the doctor but am trying to find information that lends some support for what I perceive is happening before I do.
I don't seem to have had the testing others here have had and this site has been invaluable.

Thanks again and good luck to all here,
Zygo