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Old 09-20-2011, 08:30 PM #11
drwk drwk is offline
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Originally Posted by en bloc View Post
Have you had a skin punch biopsy to see if it's small fiber neuropathy? What about EMG and nerve conduction studies?
Yes, I have am EMG and nerve conduction study. They were normal. I have not had a skin biopsy. I am trying to get that accomplished. I have been reading how burning in your back in not normal for neuropathy. It scares the crap out of me!!!!! I want to see my kids grow up and be mobile!
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Old 09-21-2011, 06:07 AM #12
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Lightbulb

I have been wondering if you have tried Lidoderm patches?

Applied to your back, where you know you have that problem, might be helpful for you.

I found for myself when I had terrible thigh pain..called Meralgia paresthetica, from my abdominal surgery, nothing helped it.
Then Lidoderms were approved here in US and I got my doctor to give me an RX for them. Two weeks of very day use (12 hrs on 12 hrs off) and these patches actually put me into a remission!
I guess the nerve was just firing because it couldn't turn itself off. (cutaneous lateral femoral nerve)
I found that applying them at the high point of the thigh where the nerve exists the abdomen was the best spot. I think Lidoderms work best where the "source" of the pain is and not where it is "felt".. which is typically a referral location and not the direct target.

So I think you should try this. They are expensive if insurance won't cover them, but really they were amazingly helpful for me.
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drwk (09-21-2011)
Old 09-22-2011, 03:16 PM #13
Sheltiemom18 Sheltiemom18 is offline
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Just to add my two cents, my small fiber non-length dependent neuropathy was Dx'd by skin punch biopsies.

The Sjogren's was confirmed somewhat after that.

I eventually had a follow-up appointment with the neurologist who'd done the biopsies that identified SFN. Prior to my visit, I'd found on-line the paper she'd published about small fiber non-length dependent and its link to Sjogren's.

Imagine my surprise when, after reviewing my case, she said that my neuropathy was "idiopathic." I just sat there and looked at her, and have not gone back for any more neurology appointments.
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