I really don't think people who have neuro issues (suggestive of inflammation problems) should get unnecessary vaccines!

I've posted so much about it, I am exhausted!

If you search here or on NT in general there are many discussions
on various forums that include links that are very revealing.

Dr. Blaylock MD on YouTube is one very vocal doctor warning about this, and he explains it well in a series of YouTubes with interview with Dr. Mercola.

Just search Dr. Blaylock... there, and you will understand more.

And yes, reactive hypoglycemia is serious, as it is starving nerves when your sugars are low. Getting rid of sugar in all forms and following a balanced diet like the Zone Diet, can help prevent those lows. Just Google Zone Diet.

Reactive hypoglycemia is really insulin resistance, which is a form of prediabetes, and a known cause of PN...
http://www.citeulike.org/user/wrs1/article/6499468

Mrs D, does that mean no flu shots. My doctors keep insisting that I get one. I do work as a nurse. What do you think? hopeful

Perhaps. Inflammatory neuropathy may respond to vigorous antioxidants, fish (or Krill oil), Vit C etc. Sometimes NSAIDs in short bursts help too. It would be worth a try to see if the AlkaSeltzer intervention works for example.

It may be she has a mixture of triggers, each alone would not be much of an issue, but all together they add up to more symptoms.

Thanks so much
 

Thank you so much MrsD, when you say my3.3 thyroid test is elevated according to the new scale, do you think thyroid treatment would help, because I am a fighter and if you think treatment might help me I will give it my best try to get it, it would not hurt me to try treatment right? To answer your questions no I did not get antibiotics for my colds and cough just suffered through it, no I don't think this all started after vaccine, I was however given Cipro in the hospital for a bladder infection just a few days ago. I am seeing my First neurologist tomorrow, I am going to ask him why he and his partner who I saw at the hospital had 2 different opinions on my DX, who am I suppose to believe or are they both wrong. I am also seeing my Family Doc on Wednesday I will get my B12 results and post them back here. I also am going to ask him if he will refer me to a Neuro Doc at UCLA medical center here in Los Angeles, do you or Glenn know anything about this Hospital? I could go to the hospitals you suggested but I live in LA and it would be difficult. This is a very good University hospital from what I hear. I plan on getting all of my results from all of my tests and taking them with me. Another question, I am on Gabapentin for pain 300mg 3 times a day, some people on here experience hair loss is that a common side affect of this drug or does it just happen to some? Also do I need to talk to my Doc about all these supplements before going on them or is it safe to go ahead and start them, will it affect the other drugs I take which are Gabapentin, baby Aspirin, Xanax? I just want to get better so your prayers,friendship and knowledge mean so much to me. I know it takes so much of your time to respond, know I am really listening and learning from all of you, and may God richly bless you, Jan

I cannot really TELL people to not get vaccines. That is not my place really. It is a personal decision after all.

But our medical society does NOT know or reveal the risks of them so that people can CHOOSE safely.

People should weigh benefit vs risk, before deciding for themselves.

Vaccines contain adjuvants, which stimulate inflammation and immune response. Some people over-react and this inflammation becomes damaging and does not turn off. It is called a cytokine storm (new term now). People who have become ill right after vaccines... are reacting that way and it should be a warning sign for them.

People with adequate Vit D levels,may tend to get far fewer contagious illness. A study was released in Japan recently showing dramatic decrease in flu incidence with Vit D.
http://www.timesonline.co.uk/tol/new...cle7061778.ece

Example of Dr. Blaylock:
http://www.youtube.com/watch?v=--nWrqIspnQ
This is a 4 pt interview... please watch them all...as he explains adjuvants and cytokine storm.

http://www.youtube.com/watch?v=zCBlx...eature=related
an overview about the questionable effectiveness of annual flu shots.

And I just found this...if you really want to be disgusted!
http://www.youtube.com/watch?v=vgBBw...eature=related
Soundtrack of interview with the doctor who managed Merck's vaccine program!

Got Vit B12 results
 

Ok everyone got Vit B12 results 380 neruro said this was normal, I saw neuro again today he did another EMG it was normal, I asked him again if he could put some sort of label on me, he just could not he does not know what to call what I have, I am trying to get referral to university hospital here. I also wanted to let you know that he will be doing a vit D test sometime this week, he said he did not know why he did not already do one, I also asked him about my thyroid test and the new rating scale and as you said mrsd he just dismissed the possibility of me being hypo, I still am going to fight that one. He also added more meds to the Gabapentin, he gave me nortriptlyne, so now taking both. Any comments welcome. Jan

Definitely think--
 

--that B12 is to low, no matter what the range says.

Probably couldn't hurt to supplement with a daily oral dose in the 1000-5000mcg range, preferably methylcobalamin (so your body has to jump through fewer metabolic hoops to utilize the B12).

Ditto what Glenn posted.

You are showing poor B12 status, and could use an aggressive change in that. B12 is not a worrisome supplement with risks.
So start that ASAP oral 5mg daily on empty stomach--methylcobalamin type-- for 3 months. And see what happens with your PN symptoms. That reactive hypoglycemia? That is a prediabetic state, and studies show prediabetes starts the PN process. You can only benefit from the B12.
Puritan's Pride and iherb.com and places like Vitacost and Swanson's--all carry it now inexpensively. Pennies a day.
This week the news has been flooded with B12 preventing cognitive problems in aging people. It was even on CNN and has been posted here on the various boards more than once.
The NIH recommends all people 50 and over (symptoms or not) to be taking a B12 supplement.

The meds you list are typical for PN. But they do not restore you or help you heal, they just cover symptoms for the most part. Some studies suggest that the nortriptyline may encourage nerve growth in the periphery, but that is still experimental and rather new.

Start modifying your diet. Get rid of sugars and starchy carbs, which stimulate the reactive hypoglycemia. Slow carbs instead will keep your blood sugars from getting low... legumes, beans, nuts, fruit with fiber like peaches/oranges/berries, veggies, etc. Avoid fruit juices. Fiber in fruit delays absorption and moderates blood sugars.
Increase protein to about 40% of calories a day and use good fats like omega-3s and olive oil to keep food in your stomach longer so the blood sugar spikes at mealtimes will be lower.

I'd get an A1C run to see where you are in that department. A higher A1C can show you have spiking after meals, with high sugars followed by low. It is a good test to reveal how your diet is working for you.

It will be a battle on the thyroid issue. In my case I had a right sided goiter with my borderline tests. The doctor ran a radioactive uptake and found my left lobe was partly dead and hence my problem was "undiagnosable" but he gave me the hormone anyway because I had signs of hypothyroidism. I settled in at 75mcg a day after the first year and have remained at this level for a while now. Signs of hypo= intolerance to cold, the PN (I had carpal tunnel in my hands severely too), edema of the hands, face. And orange tinted palms and feet...this sign is very typical of hypo people...because the betacarotene in vegetables we eat is converted in the liver to Vit A...using thyroid. I had the orange tinting of the skin very obviously... along with brittle nails, etc, and he used that finding along with the radio uptake to decide to put me on hormone which actually SAVED me!

But unless you see a holistic doctor who does bioidentical hormone treatments, you will have a battle with many endos to get treated with your test results.

Medications and supplements
 

Mrsd and others,

Here is a list of my meds and supplements that I am planning on using for my PN, please keep in mind I am not a pill taker at all and this is so hard for me, I suffer From OCD and one of my triggers are medications and illness, now I have to face both very frightening! Here goes, Juice Plus, Omega3 fish Oil twice a day, 1 multivitamin once a day, Protandium, 5 mg. b-12 once a day, R-Lioc Acid 100mg once a day, Acetyl Carnate 500mg twice a day, Pantothenic Acid500mg twice a day, 80mg. Baby aspirin, Nortryptlyne 10mg. 3 times a day,Gabapentin 300mg 3 times a day. Xanax as needed. This seems like so many things to be taking will I be alright with all of this, I also suffer heart palps, will any of supplements make this condition worse, I am going to my family Doc today I will also show him this list, but I trust you all on here also so any comments so appreciated, I don't know if it would be good to add all of this at once or just do one at a time over a particular time. Thanks so much. Jan

If you have unusual heart beats.... you should get a screening EKG before using the Nortriptyline. This drug prolongs the QT segment of each heart beat and can affect the heart.
In the low 10 mg dose,it is not so much of an issue as when the dose is much higher. But it is good to get that done anyway.

I have no experience with Protandim. However, it is an herbal product and as such, you should be careful with it IMO.

I would not use this now, but wait until you do the other supplements first. YOu may find you don't need Protandim at all.

I am leary of herbal products, especially mixing them with RX drugs.