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Old 09-28-2011, 09:40 PM #21
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Default My Primary Doc is so Great

I saw my Primary Doc today, he is re testing my Vit. B12 He said you are probably right my Vit. B12 should be higher especially with my symptoms, I am hoping this could be my problem, wouldn't it be great if it's that easy!

He also is retesting my thyroid at my request, so today was a good appt. Also I have had an EKG in the hospital last week it was normal. Today he also did a Vitamin D test as well. When the results come in I will post them. I do believe the Lord is going to reveal my problem to my Doctors, and I also want to thank you for all of your suggestions they have been so helpful and I am grateful that I have a Doctor who is open to these suggestions. Jan
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Old 09-30-2011, 01:40 AM #22
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Default Getting really depressed

Just got test results back from blood test taken yesterday, again Doctor says my B12 levels are normal, he left that message on my answering machine did not tell me what levels were, but I will get them and post them here, also numbness is moving into my face now, so I am numb from toes to head now, this is all happening so fast and my Neuro Doc does not want to see me for another month, I guess he feels he has done all he can, I just feel lost and overwhelmed, I am going to try supplements as suggested on here, where can I buy these supplements, did I hear someone say Puritans pride? Again can someone tell me what I should start taking, I'm sorry to ask this question again, I'm just so depressed right now and don't know if you have already told me this. Sometimes it's just so hard with this disease to move on, but I will I have no other choice. Thanks, Jan
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Old 09-30-2011, 04:00 AM #23
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Lightbulb

In your previous post, you listed Protandim... I'd stop that for now. Also are you taking that Nortriptyline 3 times a day? It will be quite sedating if so in the beginning.
Quote:
Here goes, Juice Plus, Omega3 fish Oil twice a day, 1 multivitamin once a day, Protandium, 5 mg. b-12 once a day, R-Lioc Acid 100mg once a day, Acetyl Carnate 500mg twice a day, Pantothenic Acid500mg twice a day, 80mg. Baby aspirin, Nortryptlyne 10mg. 3 times a day,Gabapentin 300mg 3 times a day. Xanax as needed.
You really need that Vit D tested. Without a test to guide you dose wise, you can start now at 2000IU of D3. This is inexpensive and readily available in stores or you can order when you get the B12 for now. There are beginning studies showing low D3 can impact diabetic neuropathy.
Your reactive hypoglycemia qualifies for a diabetic PN label.

Make sure you take the B12 on an empty stomach.
Supplements take a bit of time to get working. They are not fast like drugs. In a week or so you should see some improvements.
Puritan's Pride, iherb.com and swanson's all have quality brands at reasonable prices.
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Old 09-30-2011, 03:31 PM #24
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Default Vit D

MrsD,

Thanks for all your help, yes Doc did do Vit D test he does not have it back yet I will post results when I get them, I also will not take protandim yet. The nortryp I am only taking once per day I'm sorry I did post 3 times a day, correction only once per day at bedtime.I have another question for you, I have fake nails, they are acrylic, I have had them for years with no apparent problem, could this be an issue now, I don't believe so but could use others opinion.Jan
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Old 09-30-2011, 03:35 PM #25
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Lightbulb

I am sorry I can't say about the "nails".

Exposure to solvents however, over time defats the skin around the nails. That means it removes protective oils in the skin.

Your problems started in the feet. So to get that effect I think you's have to inhale the solvents regularly. Do you smell them at the nail salon? That part may be the problem.
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Old 10-03-2011, 03:48 PM #26
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Default New resuls what do you think

Hi MrsD

Here are new blood test results, thyroid stimulating hormone, 2.52 normal,homocystine,12.1, normal,FreeT4M0.86NG /DL,Normal,FolicAcid20.0 VitaminB12 516PG/ML, all are within normal range this round of blood tests. Thanks for any comments, I just want to feel better and I don't yet. Thanks, Jan
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Old 10-03-2011, 04:43 PM #27
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Lightbulb

Well, good that the thyroid is better.

Make sure you have zinc and selenium in your diet to help convert the T4 to T3 in tissues. And keep an eye on it.

The homocysteine really should be lower. I know the ranges are up to 12, but really you should be at around 8.
I'd raise the B12, using methyl B12 orally daily on an empty stomach. Your B12 is really borderline...and with people who have neuro symptoms having a higher level is good insurance for symptoms. 1mg should be enough for you and do this every day.
Make sure you get enough folic acid either in supplements or food.

You are not home free however, with that reactive hypoglycemia. Do you have a plan for that?
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Old 10-04-2011, 01:50 AM #28
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Default Thank you MrsD

Yes I do have a plan for the reactive hypo, I actually am going on a pretty strict diet that my brother who is a personal trainer is putting me on, I am hoping in time I will feel better my symptoms are so bad that sometimes I wonder if I'm going to make it through, but I lean on the Lord so I will make it.My Brother also started me on Real Water, ever hear of it? Thanks so much for all of your help, I will report in every few days to let you know how I'm doing, right now I have a terrible cold and cough, I feel like my neuropathy is worse is that possible? oh also one more thing, my brother wants me to start the protandim right away but I have put this off due to your advice, maybe I can add this later, he really believes in it, I guess it really helps the free radical issue. Thanks again, Jan
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Old 10-04-2011, 07:51 AM #29
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Lightbulb

When you get your D fixed, you will find you don't gets colds and coughs so often.

Also using a quality fish oil, or the new Krill oil, will provide the essential fatty acids that line the lungs and bronchi and make them more resistant to infections.

There was a time in my professional life (exposed to all manner of communicable disease), that I would have chronic asthma and bronchitis all year long. When we started taking essential fatty acids here along with my son who had ADHD, we all benefited in ways not expected. My chronic GERD (from a hiatal hernia) went away too. So if you do not eat salmon frequently or use the Smart foods out there now (ex: Smart Balance and Omega-3 eggs) you need to take the EFAs in supplement form. I haven't had a real bronchitis, in a decade, except for one time my cat sneezed on me, and gave me some nasty bug. And neither my husband or I have had a serious case of flu in many years (we never get the flu shots either).

You can quench free radicals easily from foods if you choose. I'd stay away from herbs since you use RX medications, because herbs contain proto-drugs and may have unexpected interactions. Not all herbs have been studied carefully in this regard.

If you were NOT taking the drugs, then there would be less risk with herbs. Foods high in antioxidants are foods of "color". Berries like strawberries, blueberries, etc. You can substitute sweet potatoes/yams for white potatoes and get more fiber and the various carotenoids which help with free radicals. Squash and red/yellow/orange peppers also are very useful. Curry spice with its turmeric supplies curcumin which is a powerful antioxidant. Grapeseed extract also works very well for allergies and free radicals...and is very good at free radical scavenging. It can help people with RSD (another type of neuropathy ) as well. Grapeseed is available as a supplement for typically little cash outlay.

Do keep us in the loop and post about your progress.

When trainers enter the picture, I'd just give a simple last recommendation. Make sure you stay hydrated and drink alot of water, as you increase your protein level and take some supplements.
If you have any kidney results from testing that bear watching, discuss things with your doctor.
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These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Last edited by mrsD; 10-04-2011 at 08:16 AM.
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Old 10-05-2011, 05:42 PM #30
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Default vit D results

VitD 25 Hydroxy 30NG/ML VitD25-oH D 2<4 Reference range() Flag:N

Vit3 25-OHD3: 30NG/ML Ref range() Flag N Methymalonic Acid Serum<0.10 RefRange<0.40 Flag Normal. Don't know what this all means but Doc says is normal. Thanks MrsD. Jan
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