NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - Getting worse (https://www.neurotalk.org/peripheral-neuropathy/159089-getting-worse.html)

If the attack on the nerves is from antibodies we still don't have tests for, yes, it may be helpful.

They will try it, and if it doesn't work, then you are no further behind.

Certain antibodies produced from bacteria and viruses (and perhaps vaccines), may not show up in standard autoimmune testing. Some autoimmune antibodies come and go and give confusing test results.

If your insurance pays for it, I'd give the IVIG a try. The medical community uses it much more often today, than in the past for many autoimmune inflammatory issues.

Autoimmune diseases may test sero-negative. Patients on myasthenia gravis forum here have tested sero-negative, and several posters here with Sjogren's syndrome have sero-negative results.

Quote:

Originally Posted by Liftyourhands7 (Post 816898)

Hi Hopeful,

Thank you so much for your response, I know my Doctor said that if skin biopsy is positive he wants me to have IVIG, I still don't understand that though, does a positive skin biopsy mean my body wide numbness is caused by an autoimmune disorder even though all blood tests say I don't have an autoimmune disease? I'm so confused by all of this, I am just in so much distress over my numbness because it has spread so fast, in a matter of a few months. Thank you for any comments on this, and know I will be praying for all of us here, God is so good in all of this. Thanks, Jan:hug:

Mine spread in a matter of a few months also. I understand your distress. My blood work all comes back negative also but I have still been told that it is autoimmune. I am still searching for an answer for the neuroopathy but if I don't find it, I now ealize it doesn't matter.
What I am focusing on now is how I can get a better quality of life. That is not to say I will stop looking. I live in hope that if they find the cause they can stop it. hopeful:)