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Old 12-14-2011, 11:15 AM #1
fftknc fftknc is offline
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fftknc fftknc is offline
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Join Date: Dec 2011
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10 yr Member
Default Peripheral neuropathy doctor and opinions

Hi,
I would like to know if anyone knows of a great doctor in the New Jersey area for PN, prefarably central NJ but willing to travel to NY or PA. Can I please have anyones opinion on my situation. I have Graves Disease which is hyperthyroid. I was diagnosed in July of this year and have been getting regulated on antithyroid med since then. I went to a couple of different endocrinologists who had trouble getting me regulated and I am currently on my 4th one. In that period of time starting around August of this year, I began to develop some sensations on my shins. It felt like something was touching them but it wasn't. Every month my symptoms seem to be progressing. I am at the point now where my ankles ache and become numb on and off and up my legs,burning hurting feet, forearms have become affected in the last 6 weeks up to my shoulders, and lastly starting to feel sensations in my hands. I have been to 4 different neurologists in the past 6 weeks and every one of them is telling me its thyroid related and will get better in time. Whatever that means. My blood sugars have been all over the place as well. I don't feel comfortable with the fact that the neurologists are not doing further testing regarding the neuropathy
accept for B vitamin and Lymes. I do have lumbar and cervical issues but I,ve had these issues for 10 years without these other symptoms. I feel totally not satisfied with this in case it is something else or needs to be treated at this stage of the game when it is early on. Oh and I also have this sensation on my face on 1 little spot that feels like something is there mostly at night. It is on and off feeling, this could be due to the Graves I've read. Can anyone offer any hope for me and recommend a doc in the NJ metro area. Thank you, Fran
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Old 12-15-2011, 06:43 AM #2
glenntaj glenntaj is offline
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glenntaj glenntaj is offline
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Default Considering where you are--

--I'd consider either trying to get an appointment with the Neurology department at Johns Hopkins in Baltimore MD, or come north to the Cornell-Weill Center for Peripheral Neuropathy in Manhattan. Both have combined neuropathy specialty practices with major research programs into neuropathy causes/treatments and the doctors you will see are clinician/researcher hybrids, so they are much up on the latest in the field and on proper testing procedures.

You may have to check to see who takes your insurance at each place, and there do tend to be fairly significant waits for new patients, though the latter can be somewhat mitigated if you're willing to call in about cancellations every so often (especially at Cornell).
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