I am new to this as of a few months although the pain was here for about a year. I just want to understand if others have had this for years and no progression really or does it progress pretty fast. I just wish I could pin point the cause , as I've read it could be 200 reasons besides the major ones . I've so far not seen a neuro that seems to care. Please advise or guide. I"m in North Carolina

Progression will happen with hereditary forms. Also with some autoimmune forms that are aggressive.

I've had metabolic PN for over 30 years, and my PN now is less than before with my interventions to improve the metabolism.
(thyroid hypo function and insulin resistance).

Some PNs due to triggers like gluten in the diet (or other food intolerance) will progress as long as you are exposed to the triggers. Remove the trigger and it will stop and maybe reverse.

Toxic neuropathies, will continue as long as the toxic drug or substance you are exposed to continues. Hence being a detective helps with these quite a bit.

Continuing to get vaccines if vaccines are a trigger is obviously a bad idea too.

Fixing nutritional deficiencies like B12 and Vit D also may stop PNs from progressing.

These are just examples...it is impossible to cover all the environmental triggers that are out there today.

Yes I've been doing lots of reading and I see that I will have to become my own detective . I'm trying to find the triggers so that I can help the progression and my daily life . So far I'm not on the trigger but I'll keep working . Thanks so much for this site of wonderful folks and info.

I have had small fiber neuropathy for 31/2 years now. I don't know the reason for it and it progressed very quickly. I hope you have success in finding the reason. I searched for a long time. Just recently, after being tested for everything they could think of and being misdiagnosed a few times, I have decided to focus on making me feel better. Although I still hold out hope, I also realize that I may never know the reason. Good Luck

I'm a newby too but I am finding a lot of helpful information. These people know their stuff. Good luck,
Zygo

Mine is not S/F however it has progressed a few inches per year until recently where something startling has occurred.

alpha lipoic acid!

3 weeks on 600mg/day and the last 4 days my PN went into total remission. Possibly the happiest few days of my life. Numbness was still there though but much less number (is that a word?)

Last night pain bounced back to 4-5 however this morning its back to a 2

I have delayed buying this stuff for years because it expensive at $30 (australian) for 60 at 300mg

Am trying to find a new source, what do you guys pay for it in USA?