NeuroTalk Support Groups - can anyone help me please

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- - can anyone help me please (https://www.neurotalk.org/peripheral-neuropathy/162952-help-please.html)

Is it possible that the epi has done something to have all these symptoms as I've only been like this since the epi my pregnancy was brilliant I felt great then bang had epi got head pressure cold sensation behind eye and behind eye pressure burning in head sharpe bad head pains I throw up when it burns bad headaches hot and cold sensations and a weird crawling sensation over left temple the head pressures horrid I'm not sure what the hell all this is but its so scary I have internal vibrations in my legs and internal shaking and my head rocks aswell and goes so heavy it feels like it will drop off I've tried to search my symptoms came up with aneurysm and clot in head weird crazy scary stuff I'm hoping the neuro don't leave me like this any longer I've suffered for almost 18 wks by the time I go friday

We are glad you found NT also. I know how good I felt when I found the people here to listen and talk to me too. Hope the week goes fast for you and that your doctor can easily repair any leakage. Lots of people are sending good thoughts your way. ginnie

Quote:

Originally Posted by sarah1987 (Post 839339)

Hi I've searched the internet for weeks and your right a blood patch does seal the puncture all I got off one gp was yes its possible the dura has been punctured and I mentioned a blood patch and his reply was it isn't needed as its been so long it should of sealed itself by. Now I'm petrified cause it can leak furtjer and I've read can cause a brain clot or something so I'm getting a bit worried even my local accident and emergency refuse to help me saying there isn't a problem when obviously there is all I can remember during labour after being high is when the needle was inserted in my spine I had a bad burning pain run down my lft leg and didn't think anything of it as I never had a epi with my other two children just thought it was normal as it was in my spine that's when a few days later my left side went numb arm neck face like a stroke so went to hospital to be told its nothing I continued 2 other times to go to hosp as other symptoms crept in to be told again nothings wrong with me so kept going to my gp to be told its in my head its anxiety of all things but I know and anyone knows when they are poorly and somethings not right so finally after 17 wks I'm reffered to neuro friday all my gps and my local hospital could of sorted this when it started but they couldn't be bother I'm now reffered to a brilliant hospital this friday fingers crossed they help me xxx

Hi Sarah, this was exactly like my experience with the NHS, I was fobbed off for 18months and told to fiddle with my shoes at one point! I have come to realise that this is a deliberate ploy to separate the needy from the not so needy, it keeps people off waiting lists and docs still on target. Grrhh sorry it makes me mad when i think of the money we put into this system and the amount wasted when it should be used for patient care. My bet is you will see someone exceptionally nice on friday and they will help you resolve this problem. Good luck

It is going to be OK. Those docs at the hospital will find what is wrong. don't give up, and don't let anyone tell you it is all in your head. I am sorry this whole ordeal has been so difficult. It is awful when you are not listened to. This will change with your coming up appt. Bring all the records you can with you. I know it is a pain to get them, but it usually helps the physicians when they are all in their hands. If you have to do it in person do it. They don't always transfer records when asked to do so. I wish you all the best, and hope this problem is solved soon. You will recover, try not to be so worried as I do believe help is just around the corner. I hope you come back here with good news, and a good resolution. I will be here waiting to hear from you. Of course you are not alone! Prayers are being sent your way. ginnie

Nhs is a joke at times especially when helps needed fast and the most if I do find its down to the epidural I will persue a case with the hospital well try to I know they can go wrong but surely not wrong for this long and how bad I will try anyway I've got nothing else to lose... I'm going to say now that no matter what time or day if anyone on here needs a friend or a chat I am more than willing to be there for the same way as everyone on here has been for me I've never had so much support in my life and I love coming on here to replys of people with advice its appreciated millions x as soon as I'm back friday I will be straight on here to update you all and hopefully with answers x I'm going to my gp tmoz to get my medical notes to take with me xxx thanks again I can't thank you all enough right now I don't feel so alone now I've joined this site met great people on here feel free to add me ill be more than happy just know that when you need some on you can count on me to return the favour too xxx

Whooooo I'm at neurology tomorrow finally lol x

Help you hopefully

Quote:

Originally Posted by sarah1987 (Post 838407)

Long long story to tell...I am 24 yrs old I have had my 3rd child 17 weeks ago I had a epidural never had one with my other two children before and since I've had a epidural I've been poorly with no answers seen 5 gps and not one can tell me what's wrong so here I go with symptoms...pressure and cold sensation behine left eye...serious bad head pressure all over and makes my head so heavy...tingling in hea and sharp bad pains tht cripple me I get a intense bad burning in my head I throw up my eyes go funny..hot and cold sensations in my head and a crwaling feeling left temple and popping sensations in my head too I get heart palpatations but my heart ok had a ecg had bloods done december they came back fine my head feels like its rocking bad and I get like a tingle all over my head.. Its affecting my ears they feel full of preussre and are burning outside I've told my gp whi looked in my ears and saw nothing ?vibrations in legs and starting to go through every part of me internal vibrations not felt on out side... Buzzing feeling inside and now shaking inside when I am not shaking outside I am petrified I get a constant feeling of blacking out all the time even when sitting its scaryI've only been like this since my baby she's 17 wks old now I'm having bad headaches I've never sufferd with headache until I had my bab my head cripples me I dread going to bed that bad I cry I'm so scared I won't wake up I've been to 5 gps in 17 weeks they haven't even got a idea what it is and finally thursday yesterday I got reffered to a neurologist as not one gp has any idea what's wrong with me but that isn't until feb 2nd another four weeks this has ruined my life for 4 months that bad I'm on anti depression tabs now I am so scared as I have never had any of these probs before I'm only 24 has anyone ever has any of this before I'm so scared getting no answers!!

**********go to your best major hospitals ER, request a neuro consult and get admitted. I am sorry that 17 wks have gone by, but you need treatment, not ???from GP doctors, they won't know. Your children are too young for you to manage yourself when you are in so much pain, family should step up to help when you are in the hospital. You should remain there until you are treated, (somehow)and able to go home without restrictions. You didn't walk in to the hospital to have your baby like this, so you should expect treatment, try not to blame,name, ect any previous care, because it factually doesn't matter, you just need to be fixed so you can take care of your family. Don 't accept I don't know from the specialists.

You are absolutely right Mrs.D. It is 3 out of every 100. Just confusion on my part. I also should have prefaced my remarks with according to 1 study

Please forgive me,
RX Horatio:

Sarah, I am not sure where you are from so you may or my not have gone to neuro allready. If not good luck I will say a prayer for u. If you have please let us know how you made out.

Sarah, you will have defo been by now, how did you get on?
If they have tested your reflexes/used tuning fork etc you may be in a little more pain than usual, if so take it easy for the next few days. :hug: