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Old 01-11-2012, 11:21 AM #1
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Default Hi everyone

Just wanted to post that I am still around, just moved back to Michigan and do not have internet for now. One day soon, then I hope to be bothering you all again!
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We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!
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Old 09-30-2013, 10:53 PM #2
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Quote:
Originally Posted by darlindeb25 View Post
Just wanted to post that I am still around, just moved back to Michigan and do not have internet for now. One day soon, then I hope to be bothering you all again!
Hi Darlindeb
Its been a year since you posted anything, and 6 years since your post stating you have SFN. How are you feeling these days? Was the cause for your SFN Celiac disease or anything related to that? How did they diagnose it , did you have blood work to check for causes and CD? I have Idiopathic SFN, I have been battling and struggling with this for over 2 years now. They still can not find a cause for mine. I had all the blood tests mentioned in the 2007 posts. And Neuropathy is progressing. I am on 300 mgs of Lyrica and its not helping. I was diagnosed with IBS by a Gastro Doc over 30 years ago, so I do have constipation/bloating pain caused by the IBS. I was tested for CD and Gluten intolerance, all tests come back normal.. wondern if I should have the small intestine biopsy. Any comments or suggestions would be appreciated.
Hope your doing well. Thanks.
Marie
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