NeuroTalk Support Groups - New 35yr old poster

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- Peripheral Neuropathy (https://www.neurotalk.org/peripheral-neuropathy/)

- - New 35yr old poster - My experience (https://www.neurotalk.org/peripheral-neuropathy/163327-35yr-poster-experience.html)

Glad you both found NT. This site has been a good thing in my life, and has helped to keep my sanity for sure. I do know about PN, it is one of my problems. I just have it on one foot, but that is enough. Mostly I have cervical, and degenerative joint problems. I am sorry you suffer from PN. It is miserable and so many folks suffer from it. Hope you get some kind of relief. I went to a new pain specialist, who is now using some nutritional B12 and B complex vitamins to help. This is the first time I took suppliments. Maybe someday scientists will find a cure for PN and RSD, and all these kinds of issues, that don't seem to have a cause. All my best you you both. ginnie

Similar symptoms

Quote:

Originally Posted by Osband (Post 840761)

Hi there,

New to the board and just wanted to check in to say I love what you guys are doing here, and to chip in with my story.

I'm 35, and for the last 4 months, I've been exhibiting symptoms of periperhal neuropathy. I first had symptoms of burning in my left foot for about 2 months, in the third month my right foot joined the party, and in the 4th month, my hands did too.

I'm sure many of you know what I'm talking about, burning that can hit at any time of day, usually more noticable when I'm resting, and can sometimes get intollerably bad. There have been some evenings when it has been so bad that I can't do anything else but dwell on the pain.

I have seen my doctor a number of times, he's sending me for an MRI. Blood tests came back negative for anything significant, save for a minor liver abnormality (which he doesn't think is worth pursuing). He always seems very laid back about the issue, and that doesn't enthuse me.

For a while I noticed that my symptoms were worst after eating, and, after a bit of trial and error, I started on a gluten free diet, and noticed that my symptoms lessened by about 50%. I told the doctor about the diet, but he jusst scoffed at the suggestion really :(

I've been following advice on this board and got some alpha lipoic acid and I've ordered some Jarrows Methyl B12, I also take omega 3, multivitamin, and vitamin b complex.

I'm mostly posting here because I'm worried, I keep wondering what my next symptom will be (nothing other than burning/shock like symptoms at the moment in hands/feet). I should try to be more positive though, and hope that it can be managed somehow. After all, I've at least managed to lessen the symptoms with the diet.

Be well
Kev

Kev, I too have been diagnosed with small fibre neuropathy following a skin biopsy - looking for patterns we have noted that the burning is often worse or starts about 15 mins after food.

Quote:

Originally Posted by DataM (Post 889482)

Kev, I too have been diagnosed with small fibre neuropathy following a skin biopsy - looking for patterns we have noted that the burning is often worse or starts about 15 mins after food.

Hi DataM, Welcome.

That could be indicative of a food trigger. Have you figured out which foods are/may be causing the burning? With some folks it's gluten, but everyone is different. With me it's some types of hot peppers, but not all (weird, I know...)
Google: peripheral neuropathy food triggers for lists of common ones.

As you continue reading this forum (particularly the Sticky threads) you'll find a lot of good practical information on curbing symptoms and progression. Make use of the archives (Search function) too. ;)

Doc

When you eat, if you have insulin resistance, a huge bolus of insulin is released inappropriately. This increases activity of Cox-2 prostaglandins/cytokines which are inflammatory. You can test this by trying some aspirin before you eat. 45 minutes before. If some of the burning is blocked, then inflammation is a clue for you.

You should have a fasting INSULIN done to see if it is elevated.
This can reveal a trend to impaired glucose tolerance which is pre-diabetic.

People with reactive changes in blood sugar at meals, often get gustatory sweating. If you get sweating with the burning that would be another sign of latent diabetes.

Hello all,

Thought I'd update you on where this is right now.

To go over the basics. Had left foot pain since October 2011, right foot pain since Nov 2011, both hands added in Dec 2011. I had a massive stress out, stopped taking my calcium channel blockers for blood pressure (maybe this wasn’t wise but I exercise a lot these days and my BP is just about in the normal range), imagined the worst. For some reason this was as bad as the pains got (sometimes, I suspect the calcium channel blockers). They never progressed from here.

It’s pain around the sural nerve in my left foot, right foot is a bit random, but it hurts the least out of all my hands and feet. Hands only really hurt when I’m not moving them much (say, when holding in a position for a long time, on a desk etc). But when they do hurt… oh wow do they hurt.

It’s only EVER pain. No numbness. No tingling. No stiffness.

I tried the gluten free diet. Seemed to work at first, but quickly I discovered that it was still there, no better. It only seemed to be good during the ‘high’ I got from the expectation of it working.
Tried the recommended B12s and most of the supplements, didn’t appear to have an effect.
Had blood tests and MANY home tests with blood sugar kits. Blood sugar is normal, not anywhere near pre-diabetic phase.
Had multiple MRIs, nothing found.
Had nerve conduction tests, nothing found.
Neurologist examined me. Perfect balance and no external signs of neuropathy WHATSOEVER. She sent me away, recommended anti-depressants for the pain but nothing else…… I wasn’t pleased.
I have one final check up with the Neurologist in Nov 2012.

During the last 10 months I’ve had VERY brief periods of no pain. For example, 2 weeks ago I managed to experience 4 days of drastically reduced pain. I’m not sure what caused this. I wasn’t taking any medication, or following any diet. I was just chilled out, and had spent a very sunny day in the park the day before the pain-free period started. I was relaxed, and even managed a tan, but I have no idea why it affected me.

My current theory is that stress affects it more than anything else. I’ve struggled with stress for many years, and it sort of rules my life. I’m always on edge one way or another. As for the neuropathy…..it’s a mystery to me…. and also a mystery to the neurologist. Unfortunately, it’s massively frustrating and painful at times. I’ve not yet resorted to the anti-depressants…… I have heard many bad things about them making you deathly tired.

Anyway. I’m getting on with life and try not to complain about it too much, as many people have conditions far worse than mine.

Hope you are all well,
Kev