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Old 01-28-2012, 07:28 AM #11
glenntaj glenntaj is offline
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glenntaj glenntaj is offline
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Default There actually are some decent boks on neuropathy out there--

--but they don't get very widespread publicity or dissemination, possibly because neuropathy is often treated as a secondary consequence of some other disease. Many of the diabetic books, for example, talk about neuropathy, though not in the detail many of us do, especially regarding diagnostic testing, lifestyle changes, supplements, and the like.

The Senneff series of books are pretty good--they've been around a while now, starting with Numb Toes and Aching Soles, and progressing through Numb Toes and Other Woes, and then Nutrients for Neuropathy:

http://www.amazon.com/Numb-Toes-Achi...7752739&sr=1-1

I've also thought this one is pretty good, though obviously written for physicians:

http://www.amazon.com/Peripheral-Neu.../dp/0397517815

I haven't been too keen on the Latov book:

http://www.amazon.com/gp/product/193...FFQ53KRTN2BVP8

--but that's primarily because I think it's "written down" to a level that most of us have gone beyond, as part of the usual procedure of doctors being advised to "keep it simple" when writing for the lay public. (I actually had a discussion with him and with Dr. Chin about this.) I think that notion is outdated; with the Internet the "lay" public is pretty sophisticated nowadays, especially the younger, more electronically-savvy public. Despite the medical profession's impressions (and fears) to the contrary, most of it can understand technical medical language perfectly well.

And, of course, there are the wonderful databases that act as books, particularly the one at Washington University at St. Louis' Neuromuscular site:

http://neuromuscular.wustl.edu/

--and what has been accumulated here.

There are also great databases about specific conditions that cause neuropathy--one thinks immediately about Rose's B12 site:

http://sites.google.com/site/roseannster/home

And, of course, JCC's The Gluten File (which did more to alert people to celiac and gluten problems, I think, than any television or other media exposure):

http://sites.google.com/site/jccglutenfree/


Truly, though, all of these need more dissemination. Neuropathy is likely the most common debilitating condition nobody knows. It affects more people than MS, Parkinson's, and MG combined. Our non-profit organizations could be doing a better job of getting the word out, but that's another rant (which can be found on these boards by searching for my posts anyway).
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Old 01-28-2012, 07:49 AM #12
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And I agree about the Latov book!

There are two pages on supplements in it... and both (they occur spaced out in the short volume) have a glaring error in them.

He suggests 500mg of B12... it should be micrograms, and besides 500mcg is not enough, for treatment. That rather disappointed me and soured me on the whole book.

It reads like a shopping list. With very little treatment options, etc. So one is left with... little optimism after reading it.
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