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Old 03-02-2012, 09:36 PM #11
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Originally Posted by malawigirl08 View Post
Melody, I receive lidocaine infusions for 90 mins every 6-8 weeks, they go some way to improving my quality of life. I always get immediate relief and then that night the pain increases for 24 hrs and then a noticeable improvement creeps up on me. This improvement lasts 4-5 weeks and then I am likes a battery winding down until the next time.
This treatment isn't offered routinely in the US but is quite popular in the UK now.
Wow, you are very fortunate that you live in a region where this is popular. I'll inquire about this with Alan's doctor.

Thanks very much

Melody

P.S. I just looked on the internet about this treatment. It seems the adverse side effects are well, very scary. I don't think Alan would go for it. I don't even know if it's approved where we live. It's called Ketamine over here.
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Old 03-03-2012, 08:36 AM #12
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Lightbulb

Melody... there are lidocaine infusions here in US.

It is not the same as Ketamine.

http://www.ncbi.nlm.nih.gov/pubmed/17885349

Some of the RSD posters do it.

https://docs.google.com/viewer?a=v&q...AP92EHK4B_Xvug
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Old 03-03-2012, 09:22 AM #13
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Quote:
Originally Posted by mrsD View Post
Melody... there are lidocaine infusions here in US.

It is not the same as Ketamine.

http://www.ncbi.nlm.nih.gov/pubmed/17885349

Some of the RSD posters do it.

https://docs.google.com/viewer?a=v&q...AP92EHK4B_Xvug

Ah, I see. This is where I read about ketamine. It's from a website "Blue Cross of Idaho"

https://www.bcidaho.com/providers/me...d/mp_50116.asp

Alan's right foot continued to be much less pain free up until 11 p.m. last night. I have a feeling he's going to ask the doctor for these injections every time he goes to the podiatrist which is once a month. We shall see.

Thanks much Mrs. D

Melody
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Old 03-03-2012, 09:49 AM #14
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Lightbulb

One should not have steroids often. Recommended use is twice a year if that. With frequent use, the bones in the joints dissolve away...or become necrotic.
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Old 03-03-2012, 10:06 AM #15
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One should not have steroids often. Recommended use is twice a year if that. With frequent use, the bones in the joints dissolve away...or become necrotic.
Gotcha, I'll explain this to Alan.

Thanks much

Melody
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Old 03-03-2012, 07:36 PM #16
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Hi Mel. I had a lidocaine infusion. I also have researched a lot about ketamine infusions which is different like Mrs D said. For me the lidocaine did not help but it may for your husband. The reason my pain doctor felt it did not help was because my pain is from the RSD and not PN but who knows. I am still thinking of ketamine but that seems to be done more for RSD but I could be wrong. I had those injections similar to want your husband just had before my dx with RSD and PN when they thought it was TTS and it did not help me so maybe since they did for your husband the infusions would?
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Old 03-03-2012, 09:40 PM #17
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Hi Mel. I had a lidocaine infusion. I also have researched a lot about ketamine infusions which is different like Mrs D said. For me the lidocaine did not help but it may for your husband. The reason my pain doctor felt it did not help was because my pain is from the RSD and not PN but who knows. I am still thinking of ketamine but that seems to be done more for RSD but I could be wrong. I had those injections similar to want your husband just had before my dx with RSD and PN when they thought it was TTS and it did not help me so maybe since they did for your husband the infusions would?
Hi Daniella:
'
When Alan read about the possible side effects he said "this is NOT for me"

So I guess that's it.

Someday someone HAS to invent a safe pain killer that won't constipate a person, has no side effects and just takes away pain.

Someday!!!!

Melody
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