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03-27-2012, 11:32 PM | #1 | ||
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hi everyone and thanks for a great forum
i joined a while back and with one thing and the other havnt done a lot of concentrating on this forum in hopes that my supplements might help i got PN after a flu vaccine nearly 6 years ago. along with labrynthitis and meningitis. the neuropathy really started up right away but it took a while to be diagnosed. assorted EMG tests show a mixed neuropathy but predominately sensory. am not planning on having any more any time soon the short story is that i am seeing a specialist in PN and an ordinary neuro. along with having a balance neuro if i want to see her as i have lost all balance on the left side my medications that relate to this are......neurontin 200mg morning and 300 mg evening. i dont really know how that has helped since i started 6 months ago but i cant take more than 200 in the morning and still be awake. i am taking B12 once a day...my levels are over normal now but my doc and i agree i should keep on it 2000 vit d a day....my levels are just ok and doc and i agree i keep supplementing for the moment 2 alpha lipoic a day omega 3 and 6 multi B i have had totally normal blood glucose, blood sugar levels since forever, however i have recently had an insulin level done that is way over. our aussie levels are differnt to yours but it is about 4 times normal tho the test is said to be not sooooo reliable i am now on a lower carb diet and headed to both a diabetes education seminar and an endo who my GP thinks will put me on Metformin for at least a while til i get weight under contol the pain levels fluctuate but so far i have managed to not hit the really hard drugs as i am anyway allergic to codine and morphine . i cant see me upping my neurontin too much tho i could add more in at night i guess. it was the cause of about 12 pounds of weight which i have just managed to get off i have high chol and am mediated BP is hugely erratic since vaccine (tho not so bad of late) and medicated. i am moving house soon and am flat out managing this but after i am settled i am looking for more exercise options . i manage about 30 mins walk a day most days.......but not always. do two 40 min fairly active pool exercise programs a week. that may go to 3 if i can afford it later this year when the dust settles anyway i would be grateful for any thoughts anyone has as to my supplements which i conceptualized via this forum reading and for any other ideas to maximise life generally many thanks the ditzydame(who even got her forum name wrongly spelt ) |
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