NeuroTalk Support Groups - Does anyone know about TOO MUCH vitamin B?

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- - Does anyone know about TOO MUCH vitamin B? (https://www.neurotalk.org/peripheral-neuropathy/167276-vitamin.html)

Quote:

Originally Posted by Joano (Post 866338)

Mrs.D, yesterday your "favorite doctor," Dr. Oz, praised Kefir and held up a carton--but it wasn't Lifeway--told his audience how great it was for the G.I.
track.

Oh, I caught a bit of Dr. Oz, on Weds, channel surfing during the day.
It was a terrible show. He had on some "expert" who said to avoid dairy. :rolleyes::rolleyes: There goes the Kefir! Then they had all the foods with dairy in them, and guess what--it was EVERYTHING! Something to do with allergy to dairy and weight gain. Well, if someone is suspecting an allergy to dairy, they should get testing for that. But just avoiding dairy to lose some weight is not good advice. Dairy can be helpful for some people.

The show itself was sooooo lame. I felt like spanking myself for being lured in, but you know, I do check now and then out of curiosity to see if there is any improvement, and it seems hopeless to me! I find myself talking to the TV when Dr. Oz is on and this drives my hubby crazy! LOL Wednesday he was showing how to stop a bloody nose, and had one of his toys made up there, and GAD...it spewed red "blood" for 10 minutes and he couldn't shut it off! :rolleyes::rolleyes:

When I was feeling my worst, back in November I guess, I was losing weight. I was at my lowest in a number of years. Now, I have felt better PN-wise and have gained about 10 lbs since Nov. Not sure if that is because of my thyroid/progesterone treatment or just because I have felt better overall. But the mouth thing I'm experiencing has kind of changed the way I've been in the last couple weeks. My appetite may be a bit lower again.

I know what you mean, about the show. I see a lot of shows focus on things like weight loss, especially the popular afternoon shows... our local channel has a doc that talks every day about something, and it always seems to focus on something like weight loss or dieting, but often I have already seen or read many things about that subject, and I just never feel that the conversation ever touches on ENOUGH of that subject. I always notice that the coverage tends to tell people why they should ask their doctor, and I can't stand it because I have ALREADY asked my doctor. And the answers are never detailed enough for my satisfaction.

Quote:

Originally Posted by Geraldine (Post 869366)

I was very interested with this description of leukoplakia.
Every time in the past year that I have read a description that mentions HIV, I have been worried, just because a lot of these descriptions are similar to what I describe. But I tested negative for HIV in 2007, and then recently in January I retested just to make sure, and I tested negative. Since I have been with only one person in the past 5 plus years I am definite that I do not have HIV. But I have wondered extensively about what's going on with my tongue. I do like wine. And I seem to have geographic tongue.

I just went to the dentist last week for this problem, and then also went to an ENT. My white spots are "normal" and I do NOT have thrush or yeast in the mouth. Both dentist and ENT have assured me that I do not have any yeast and both have said my tongue looks completely normal. The dentist said I have a swollen submandibular salivary gland. That it was hard and should be checked by an oral surgeon. The oral surgeon he referred me to said on the phone that he would most likely just send me to an ENT. So I just went to the ENT. He checked my mouth and saliva out and stuck the scope down my nose and throat and said everything looks normal, he didn't see anything cancerous and that he believed whatever is going on is caused by my autoimmune disease and he prescribed me a week-long medrol/sterioid pack. My biggest problem with this is that EVERY doctor I see states my problems are due to my autoimmune disorder and truthfully this is always stated as soon as I say I have an autoimmune disorder.

But I really do feel a lump under that side of my tongue where the DENTIST said my submandibular gland is swollen. I have felt it for quite a while, just thought it was a sore or something.

So do I take the sterioid? Interesting thing is that the very night after I saw the ENT, (and $400 later) I went to a restaurant/bar. While I was telling the bartender that wine caused my gums to swell, and telling her a shortened version of everything, a lady who was having a conversation with her boyfriend suddenly stopped, looked at me and said... it sounds like a submandibular salivary gland. I had the same thing and the doctors don't know what it is! It took over a year for them to figure it out, by that time I needed surgery to remove the gland... She said her dentist and oral surgeon figured it out and it's been fixed ever since. She showed me the scar from having the gland removed. It was weird because what she said matched exactly. And just before going out I had done my research and read about salivary/submanibular glands, how ENTS don't always notice them, and how they develop stones. The lady mentioned a stone and sucking on a lemondrop... and she described exactly what I feel...

so do I go back to the dentist or go to the oral surgeon (I'll go to the one she referred me to). Or do I take the steroid to see if that helps with anything (including my red/painful toes STILL going on).

I think fate brought me to the bar - it was the weirdest thing.

Interesting. Here is a site which you have probably seen.

http://www.webmd.com/oral-health/gui...ses-treatments

I had read about these before. Not sure that all dentists understand this. Hopefully, you will get to the bottom of it.

I guess I should consider myself lucky--I've had to help my daughter with her chore of getting the kids to their various activities after school so I've missed his show all week. His main focus all year has been weight loss--he's got a partnership with Weight Watchers going across the country.

Quote:

Originally Posted by Joano (Post 869504)

One other thing there I noticed, and it was rather revealing.
When his dairy guy came on, Oz jumped up to do the fancy graphic he had on the back wall. He stood very close to it waved his arms alot and literally babbled. He made little if any sense at all. It was very revealing, and confirmed what I have been thinking that he really doesn't have the knowledge base for this show. Everything he does is dumbed down, and not for the viewers, who today I think are pretty with it....it is dumbed down because of HIM. That is just my opinion, and becoming more solidified every day in fact! :rolleyes:

Quote:

Originally Posted by Geraldine (Post 865597)

I started vitamins last week and every time I take vitamins (multi B) my feet get cold.

Yesterday and today I did something different. I only took methyl B12, Ester C and D3 yesterday, and then today I added zinc. My feet are not cold tonight and my mouth feels better. Can there be any link to the vitamin change that fast? (BTW in my whole history I have never taken a zinc vitamin - only multis).

I'm going to try to resurrect this old thread in hopes of finding out from Geraldine whether eliminating all B vitamins except B12 continued to yield positive results. Geraldine, if you are still around, did you keep up the experiment with B vitamins and/or discover anything else about how they influence your PN?

I have this theory that possibly too much B12 might even cause PN, though I have been afraid to test it out. But it wasn't until the early 1980s that researchers discovered B6 toxicity. I am wondering whether elevated B12 could have a similar effect that has yet to be discovered.

Quote:

Originally Posted by skboren (Post 1153569)

If this has any merit, I had a B12 around 1200 when tested, while taking a supplement. I knew it would come back high with that in mind. My neurologist said simply, "You don't need the vitamin". He didn't see much in reports that said it helped regrow the myelin sheathe that i had mentioned to him. He seemed adamant that I stop. He is a guy that says getting nutrients from food is always preferable to a supp. He was big on CoQ10 and R-ALA for treatment but nothing else.

Patrick, that's interesting. Seems a lot of people's doctors have told them they don't need to take B12 after seeing their labs come back high, which makes sense. However, there's no doubt, and you would think all docs would be well aware, of B12's essential role in generating myelin! My level was 800+ and above 1000 the two times I tested.

Quote:

Originally Posted by skboren (Post 1153616)

I think most neurologists mentality is, lets find the cause, if we can't find the cause, lets treat the cause. SO the big three drugs are tried Gabapentin, Lyrica, Cymbalta. They don't work and its on to heavy duty meds or a combination of meds. They rarely ever mention supplements or dietary changes. Which I believe are key.

Absolutely, diet and supplements are key. It's tragic when doctors just want to mask symptoms.