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If you haven't had a medical issue yet in your life, this one is the first and you have to learn how to handle it.
When I was your age I had my first mammogram which came out positive. That was very hard on me. I'd find myself driving the wrong way down streets, and mulling on it all day long. It was a painful learning experience about mortality and illness for me. It turned out to be a "false" positive, after 3 more tests. And I was liberated ! My PN started in my 30's and mostly my feet hurt all night long. I thought it was from my job which was all standing long hours. I learned to focus on other things, and put that discomfort on the back burner. It is not easy, but one can do it. |
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I take heart knowing there is so much support and many others have soldered on. Take heart, nothing has been confirmed and you can get through this. I found a really encouraging post from Wing42 "Reversal or improvement of your PN!! (success story's)" (towards the end of the page). I am finding it best not to let myself think too far ahead. |
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There are tests out there to determine if you do indeed have CMT. Or at least they might be able to rule it out. There are many tests but not for all the types as of yet. Lots of research is going on. They also check your family history. DNA blood testing is available thru Athena Diagnostics and it is not cheap. You really would need to see a good neurologist who knows CMT. They also do EMG/NCV tests. From those they might be able to tell if you could have CMT1 or CMT2. However, there are many types of CMT and many subtypes of it. Check out the information under PN Tips, Supplements Resources and Other Treatments at the top of this site. There is one on there concerning CMT. I personally cannot stand Biofreeze on my feet. However, some CMTers can. I do use it on my back and calves when needed. Epsom salts help when soaking your feet if they are hurting. It is trial and error. A drink now and then will not hurt you at least as far as CMT goes. Good luck with your problem and I hope you get the answer. |
I love to exercise, but caution should be used.
I exercise daily and feel that has helped my symptoms. In your case , however, take some time off and see if that helps. I have had odd minor injuries while exercising in the past and they took time to go away. This is common in middle age.
My PN symptoms became evident at the age of 45. It started out with dizzyness and progressed to tingling and numbness in the extremities. Also, worsening memory. I was very scared thinking maybe I had MS or a brain tumor. I had basic blood work done and eventually had MRI's and nerve conduction tests performed. The neurologist said since I drank that this was most likely the cause. I think that the alcoholic neuropathy diagnosis is commonly used by many of them when the basic tests come up normal. It gives them an out. I badgered him and in the end he confessed he really had no idea what my problem was. He told me to come back later when it got worse and he would prescribe me neurotin. I have never seen him again. After extensive research I made use of many of the recommenedations found on this forum. The supplements combined with a change in lifestyle/diet have made a big difference to my condition. I'm 48 now and I'm pretty sure the PN progression has been completely halted. It now very slowly is moving in reverse. I don't expect to be 100% back to normal ,but that is still my goal. Time will tell. Take some time off from exercise and see how you feel. If that doesn't help, then look at the supplements suggested on this site and compare them to what you are currently taking if anything. I can tell you the feelings of panic slowly subside and are replaced with a resolve to get better. That approach in my opinion is the best medicine. Good luck. |
Chill out
My first week to a month with nueropathy was horrible but mostly because I was in a state of panic and I thought it was crawling up my leg. I stayed on the couch the first weekend thinking I may never walk again. Well I still don't like it but somehow am living with it among a host of other medical stuff. I remain very active, hiking and stuff. I went on a road trip waterfall tour last weekend. We visited about 8 or so spots. A very long day. I remained barefoot until we reached a destination and then put on my hiking boots and walked and climbed up waterfalls. My feet get very warm doing that. It really sucks but I have had more serious medical issues and when that happened I said, "I just wish I was just dealing with nueropathy. I was never a runner and I'm not even sure a lot of running is good for anyone. Too much alcohal is bad for anyone, but I'd go for it this weekend. It's okay to be a little anxious but don't jump too far ahead. No one ever knows what tomorrow brings. End of sermon...
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