Hi
If all my vitamin tests are normal, is there anything else l can do to help myself?

Today, l spoke to a couple of PN support groups and we l got off the phone with them, l was so depressed. I am only 41. Not sure l can deal with this. It sounds like l have got great pain to look forward to for the rest of my life.


I have twin girls to watch grow up, how can l do thi now???? I am just so anxiouse and depressed, even though l haven,t been diagnosed properly yet.

It just seems like l am am on a downward spiral.



Sue

Vitamins are only a small part of PN support.

There are other substances, and also removal of your trigger to consider. I answered you on the other thread you have.

Many medical issues are what is called "self limiting". Doctors know that with some time, many symptoms pass and whatever caused them is gone. Viruses typically are blamed.

But brief metabolic derangements can cause paresthesias (odd sensations in the peripheral nervous system).

Food additives can cause this. Low Vit D can cause sensations due to deranged calcium absorption. Even over breathing can cause changes in the buffering system in the blood (this is the
basis for "panic" attacks).

At your age you are no longer in that "young" category. Entering middle age for females are hormone changes, and other chronic things that may begin. Your feet are telling you something, you just have to learn how to listen to them.

What vitamins were you tested for? There are so many great supplements, not just vitamins to help. Antioxidents like Alpha Lipoic Acid etc... Benfotiamine and others can help too. Food helps also, large amounts of Kale etc, grass fed beef, sea veggies, and much more is needed.

I agree, you do have many other things you can do also. Toxins of all sorts must be removed...sugar, carbs, additives.

I was VERY low in Vit D and Seratonin so I took Vit D and 5HTP. Seratonin is up now and I am fine. I have a good integrative MD that knows how to help with mood and nutrients to get the levels up.

A good point about 41 not being young. The changes in my health though my 40's have been dizzying! I feel that I was lucky to get by as well as I have for as long as I have. Life expectancy may have changed dramatically largely due to childhood vaccinations and hygiene, but most cultures considered the 40's to be the start of the grandma years, and that is just the way it is. There is a reason for the old Norwegian saying that after 40 all a woman should be expected to do is sit and knit. (I wish I could take more advantage of this idea...)

Tell me what l do right now to help myself? What to eat,and what kinds of mineral, vitamins, etc, etc are important to take. I just don,t want anymore damage to be done to my nerves. I am pretty sure all of my b vitamins are great. Magnesium is also normal. I eat pumkin seeds every day and eat salmon and red meat regularly as my iron stores are always on the low side and my Heamoglobin even lower. So l have to eat red meat at least 3 times per week.

Yes, l guess 41 isn,t that young anymore, but when l see all the other 41 year old mums who are overweight and l am not, they don,t have PN. So why me????

By the way what is MD?

Thanks again to you all, it's nice to know l am not alone. And that it could be a passing thing. Hopefully, fingers crossed.



Sue

Alpha Lipoic Acid and Benfotiamine (Fat and water soluble Vit B1) are important. Vit D and B12 level needs to be good, Fish oil is important, l carnitine, B12 and other Vit B's, CoQ10, I take many supplements for my CFS and POTS (Autonomic Neuropathy) and I don't use added sugar or white carbs. Toxins have to be eliminated.

Many prescriptions can cause neuropathy so we have to be careful of antibiotics etc.

There is a lot we can do to heal.


This is a good article. We need to keep the smallest blood vessels healthy so the nerves get what they need.

http://www.peoplespharmacy.com/2011/...es-nerve-pain/

These health goods from? I am in Australia and the some are hard to find.
I have cQ10 sitting in my cupboard but my neuro, told me to take it and that not all so called natural things are good. So l took it didn't take it.

Can you list which ones l should buy?

Thanks for the article, very interesting read and gives me hope.


Sue

MD in US is an abbreviation for Medical Doctor.

The diet you choose can be anything, low in sugars and starchy carbs (you can have some in very small moderation).

Good choice of veggies of various colors, and some fruit like strawberries/blueberries for their antioxidants.

Watch the nightshades in case they are causing your burning.
Potatoes, tomatoes, peppers, eggplant. Avoid these for a month, and see if you have improvements.

Watch the wine, in case the sulfites are your trigger.

If these turn out to not be your trigger, then avoid gluten for 3 months and see if you improve.

MSG food additive is very difficult and should be avoided, as it causes pain in some people. It is very bad for PNers.

Why are you low in iron? Do you have low stomach acid? Acid is necessary to absorb iron, from food. Low acid means you cannot break up protein as well.

Instead of running, I'd do walks instead for now.

To ask you. Is do you think l should risk having a glass or two of wine? Do you think l will know straight away if this is a trigger. I just con,t want to damage anymore nerves. I asked my MD and she said it is highly unlikely that this could have been caused by alcohol. My health comes first, but l Enjoy a nice glass here and there, but l will never again drink that much again. This has been a real wake up call, hopefully it is not too late to heal. Thats,even if alcohol was the cause. Life is too short to be sick, but it is also too short not to do the things we enjoy, so it's finding the balance.

Now on the iron. My iron has always been borderline low but my haemoglobin has been lower. Not sure why. Do you think it's because l run and stomach acid?

I used to take iron supplements (ferro graduate, l think that's how you spell it), but read somewhere it isn't,t good for the stomach, so l stopped about a year ago. Then l had kangaroo meat, and l got all dizzy from the taurine l think in the meat as its very tough, but lean meat, double the iron than normal red meat. After having kangaroo last year l had another blood test to see how my iron is and it was normal for the first time without supplements, but still my haemoglobin was low. Googled it many times and cannot seem to find out why this is? That is a mystery, all the Doctors cannot understand it and now just accept that it is normal for me.

Sue

If your hemoglobin is low, oxygen cannot get to the feet and hands which are the farthest from the heart.
Low hemoglobin may also cause nerve twitching since not enough oxygen is getting to muscles which use alot of it.

Hemoglobin carries oxygen.

http://tropej.oxfordjournals.org/con...4/204.abstract
This study on children found that anemia had effects on nerve conduction.

You might want to further investigate your hemoglobin problems in more detail.