[Shezian]

Hi
Just wondering, l have only had burning feet and hot hands now for only a week. I normally Run pretty hard a few times per week. I haven't as my children are on school holidays. Is is safe to go back to running? Will it make my feet worse?


Thanks Sue

[mrsD]

I don't think anyone can say here.

Certainly we have had some posters here who did lots of exercise and one gal after a pregnancy set off both feet with
overdoing it.

A week for foot burning is not very long. It might be an injury, or a reaction to food/MSG, friction in the shoes, anything.

PN is a long time thing. One can keep it in check, but it is always there in some way, waiting to flare up.
Here is one of the early posts, for this person:
http://neurotalk.psychcentral.com/post627253-4.html
You can click on her name and read her other posts.

Basically I am the type to not do something if it hurts. Resting an injured thing seems prudent for a while.

[Sallysblooms]

Yes, I would be doing gentle exercise for a while to see how it goes. Exercise is important for microcirculation so the blood can get to the tiniest of nerves for healing, but there are many ways to do it without overdoing or using lots of pressure on the feet.

[Shezian]

Hi Again,
Do upon know what happened to the member Cher? How is she going.

Sue

[mrsD]

People come and go all the time on the internet.

We are fortunate that some of our experienced posters stay around to help others. But many people get on with their lives, and leave.

PN is a learning experience and this forum has the information needed for living with it. I expect people to move on when they take that information and use it. Some come back after months, with updates. Cher did alot of magnet experiments because her PN was shown to come from certain nerves in the foot, which can be targeted with magnets to reduce pain. Global burning sensations are not going to respond the same way as her pain might have.

Controlling PN may involve some life style changes for the most part. Some people are unwilling to do that. An example is going gluten free, and other dietary changes. Some people don't have medical insurance and cannot afford the testing to find some triggers. And the hereditary forms of PN like Charcot Marie Tooth, don't have treatments yet. Some symptom control with epsom salts, Biofreeze, or the like may help with discomforts, but the hereditary forms tend to progress at their own rates.

[Shezian]

That people move on. Its means they are able to move on and live.
She you say global pain, do you means hot hands?

Also, you said other hereditary forms of NP? How do your know if have one of these? Do these kinds normally start in childhood like Susanne?

Also, do your think the neurologist will be ale to tell me from tests if this kind of neuropathy is from having too much wines?

It's my birthday on Friday and my husband has bought me a very expensive bottle of champagne, but l am so scared to drink it just in case l cause more nerve damage? I just can,t relax at all with this.

Also invited for dinner to friends on sat, how am l not going to drink? I am just c
Scared of having one drink....

sue

[mrsD]

If your hands are hot, and feet, try Biofreeze gel.

This is very cooling and works extremely well for hours.

Biofreeze is a disappearing gel, leaving no residue or icky sticky base.

[Shezian]

If it gets much worse l will try it.

Thanks again
Sue

[mrsD]

I would try and compartmentalize your responses to this problem.
It is very new for you still.

One thing I do is only focus on "problems" a certain amount of time a day....and then close that door, and get on with your life.

Decide to avoid MSG and food triggers, for now, but don't dwell too much. Dwelling on symptoms increases STRESS responses, increases insulin secretion, and cortisol, and this seems to make pain worse. Also thinking about pain too much fixates the pathways to the brain, and it is thought to be a negative thing leading to chronic pain later. It is best to distract yourself as much as possible.

[Shezian]

Just that. But it's just so hard. How am l ever going to be able to relax in life again, when l don,t know what is waiting for me. If l relax and then it comes back stronger than before it will be overwhelming again.

My husband doesn't,t believe l have anything yet, l guess his denial a bit, but for me hearing and reading how the disease progresses over time is very, very frightening. Its always nice to hear people get better as they age, and not go downwards. I just don,t want to get out of bed one day and not be able to walk or enjoy my life. I don,t want to make a big deal of it either, and l didn't,t at first until l realised how bad it can get.

So even though l try desperately hard not to think about, my mind just wonders back. Even in the middle of the night.
I,ll be doing something else and catch myself thinking about all the information l have read and my symptoms. I feel like l am going mad at times.

Sue