How is this useful for PN? What does it do?

So many questions going through my head.

Sue

Sue, if you decide to get any supplements I can recommend iherb. I ordered a bunch of stuff from them and it got here quicker on standard shipping and cheaper than my order from a supplier in Qld.

Acetyl carnitine is for people with suspected mitochondrial damage.

It is used in chemo damage and damage from the drugs to treat HIV positive patients. Some drugs damage mitochondria and so giving supplements for this can help.

If you are interested here is a link to more information.
http://neurotalk.psychcentral.com/post653568-5.html

Carnitine declines with age...so older patients may not make enough for their needs, since our body makes it for us.
The acetyl form is better absorbed than the plain carnitine.

This is our thread on mitochondria:
http://neurotalk.psychcentral.com/sh...t=mitochondria

Ride on- what did you order?

MrsD- do you think it's worth giving them a shot? I havent, had chemo or anything like that?

Sue

Carnitine is not toxic, and for the most part easy to tolerate.

It can be expensive however. If you want to try it, do it.

Start at 500mg a day and increase 500mg increments weekly to 2 grams if you need to. Give it 3 months. If nothing, then that is a sign you probably don't need it. Take in divided doses, as it
is not well absorbed in the GI tract. The acetyl form is a bit more absorbed so is recommended mostly now.

I think stopping the wine for now, would be a first step.
See what happens. All those sulfites! If you went to a doctor that would be the first recommendation, in fact.

My doctor has me taking Carniclear, liquid. It is good. Great for my Chronic Fatigue Syndrome and nerves also. This has B12 and B5 also.

http://www.rockwellnutrition.com/Car...3.html#tablist

That liquid is quite expensive... Carnitine is not well absorbed orally, even in liquid form.

from http://lpi.oregonstate.edu/infocente...uts/carnitine/

It has been very good for me. Brain fog with CFS is completely gone. Most people with CFS have a bad problem with it. So good for the brain in many ways. My doctors are so knowledgeable thankfully. I hate to think about how ill I would still be without them.

Sue, I probably went a bit overboard but I haven't had time to read everything in this forum and I am a bit confused. Based on comments by mrsD and using recommendations on this thread and with a nothing to lose approach I ordered:
methyl B12 (Dr's Best)
B1 Benfionate (Dr's Best)
R-Lipoic Acid (Dr's Best)
Acetyl L-Carnitine
CQ10
Stabilised vit C
Flax seed
Milk thistle

I also bought the following locally.
Treos B plus
Folic acid, not sure if I'm taking the right type
Fish Oil

I can't tell you the strengths as I'm away from home at the moment so I can't check. I'm progressively going to try all of these and watch for results. I've decided that I need to get serious about keeping a diary of what I'm doing and how I feel.

Steve

Wow what a list. If you don,t get relief from those, then l don,t know what will help!

Haven't got anything yet my blood test doesn't,t show l am deficient in anything.

Have you had a blood test yet?

Sue