Hi Sue,, I imagine neurologists cover a pretty broad area and PN is a specialty. I wonder if it helps seeing someone who specializes or has expertise in PN. Will be interesting how I go with my neuro today, this has been really messing with my head.

I may book in with neuro that you mentioned, where did you hear about her?

Steve

??
 

Thanks very useful as I'm going to see a neuro for the first time today.

Does this suggest that the nerve test he conducted isn,t the right one to be able to pick up sensory neuropathy?

Sue

usually an electromyography is done in conduction with a nerve conduction study for the area affected.

The nerve conduction study and electromyography (EMG)--
 

--is designed to measure the responses of larger-caliber, myelinated sensory and motor nerves. All motor nerves are myelinated, and so are the sensory nerves that sense position, vibration, and mechanical touch.

There are UNmyelinated sensory nerves--the small fiber ones--that sense temperature and pain. These are too small to be measured by standard nerve conduction study techniques. So one could have a small-fiber sensory syndrome and be symptomatic and still show "normal" on a nerve conduction study. Such people tend to have pain and paratheses ("abnormal sensations without source") as paramount symptoms. But one can have a sensory syndrome of the larger fibers that disrupts the other sensory modalities (and often there are symptoms of numbness, or prickles, or jolts, or tingles). Or these can be combined.

The results of the study seems to show that at least in some anatomical areas you've having a problem with the larger sensory nerves, which is consistent with a disruption to the myelin sheathing (myelin is the fatty covering of large nerves that helps sustain and amplify signal impulses).

Damaged myelin comes from:

toxins
autoimmune disease (the body attacking itself)
multiple sclerosis
vaccine injury

Here is a link explaining it.
http://en.wikipedia.org/wiki/Myelin

I can't see the link?

You post that you can walk in a straight line barefoot and close your eyes and stand still and no wobbliness. I could at one time as well.

I've seen people walking like a duck (feet outwards) and they are not old and do not have any trouble as far as balance. And I've seen the same with older people.

I am unsteady due to muscle loss from CMT. But I do not, and never have, been duck walking. I am not young either. Just my 2 cents. And yes, everyone is different. I am certainly not saying that you have CMT. That remains to be found out. I hope you get some answers.

Just adding that Multiple Sclerosis is an autoimmune disease (body attacking itself) for the most part. It is in the CNS (Central Nervous System) brain and spinal cord.

Guillian Barre is another one that affects the myelin. The myelin does come back. But a friend of ours was really, really bad and never came back the same. Another friend was not so bad and so came back to normal. Just depends.

Damaged myelin is also seen in syndromes such as CMT which is of the PNS (Peripheral Nervous System) which is outside the CNS. It does not involve the brain and spinal cord.

Muscular Dystrophy is in the CNS. People are born with diseased nerves. With CMT we are born with healthy nerves and it won't be prevalent unless we inherit the gene.

http://www.lindacrabtree.com/cmt/bas..._article2.html