[Feel the Burn]

Dont recall how long,, but it has been a while since i have been here,, I wish Icould say thingshave gotten better, but they havent,, they have gotten worse, suffering from chronic sclerosing silidinitis,, chronic sinus infections and to make it all worse,,thisdam SFN is getting the better of me,, Icant do much of anything anymore,I drop things, Icantcarry anything, myhands are uselss,, my legs arethe same,, cold destroys me,, and no one can tell me why,, oh we know youhave a problem,but we dontknow what it is,, comeon,, in all of mankind,, I am the onlyonethathas evershowed up with things like this,
Showering has takenon a new meaning, it takes me ahour to just get ready for it,, I advoid a lot of it,, i cant stand the water hitting me,, and getting in and out of the tub is bad enough,, Doc says fibro,, I am not buying that,, no one can be this bad and have fibro,, only med I am on is ultram,, does little,,
this has destroyed my quality of life, i actually have no life,, cant do much of what I used to do,, and sitting makes things worse, and walking is just as bad, I cant stand for long,, the muscles in my legs just burn,, and of course sitting then getting up is just as bad,, oh I fall a lot, and my doc says,, well you know its nerve damage,, huh,, it wasent this bad 5 months ago, and I have been to teaching hospitals,, Mayo,, and no one can say why or what to do,, so while they enjoy there lives,, I get to lament the loss of mine,, and the loss of my wife and kids,, they miss there dad and husband, the fun go to guy,, but even they have no clues what this is like, how cdan aneone understand this kind of hell on earth

[mrsD]

I am so sorry you continue to suffer with increasing pain.

I went back and read some of your older posts... and it appears your situation is very complex.

The more invasive interventions people have with drugs, surgeries, or invasive testing, the potential for side effects increases quite a bit. These issues combined with genetic potential or environmental insults from food intolerance, drugs, vaccines all add up to a neurological "soup" of sorts, that is difficult to improve or tackle. And doctors are not going to admit to you, that they have perhaps contributed to or caused your grief. Most will just avoid discussion of iatrogenic triggers, and deflect your questions about medical causation.

Have you watched the video by Dr. Wahls?
She reversed her MS (a nerve deterioration) with diet. It is pretty interesting-- here is the link:
http://www.wimp.com/mindingmitochondria/

I am not saying your problem is identical to Dr. Wahl's...but there are issues, that mainstream doctors do not consider today.

[travelann13]

fascinating and informative. I'm ready to eat greens, fruit and seaweed! Thanks for sharing!

[Sallysblooms]

Yes, I talk about that book all the time. I have it and have seen all of the videos. Really important information. I eat Seaweed crisps everyday.

My PN and Autonomic Neuropathy continue to improve with low to no sugar and carbs. Never junky carbs or sugar. Everything I eat has to have a lot of nutrients. My doctor suggested eating VERY low sugar even though I have no glucose problems at all. Keeping blood sugar even has been key for me. Not low and not high. Glycation causes oxidation so that is something I do not need.

My supplements have done wonderful things too of course, antioxidents galore, etc.

Dr. Wahl's is doing great work and getting her message out.