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Old 04-24-2012, 02:39 PM #1
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Sallysblooms Sallysblooms is offline
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Sallysblooms Sallysblooms is offline
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Default Continued improvement, sugar another key

I am really happy that another key was found to help my Automatic Neuropathy/Dysautonomia (POTS=Postural Orthostatic Tachycardia Syndrome.)

I take MANY supplements with help from my Integrative MD. He has helped me for years with my Chronic Fatigue Syndrome. That is thankfully doing very well. Doctors before him were absolutely clueless. Doctors have never heard of POTS. HOW they can be so clueless is beyond me.

But, I do have this fantastic MD. Anyway, along with the Autonomic Neuropathy came PN on my feet. He said to take Alpha Lipoic Acid, then Benfotiamine. They worked so well. But, about two months ago he suggested I cut sugar out of my diet and eat only very good carbs. I was already gluten free, but many gfree foods you buy are junky, full of carbs.

SO, I did it and didn't notice much at first, but lately I have seen improvement again! It has all happened over two years. But, the ALA, then Benfotiamine made it faster and then no sugar kept it going! I keep my glucose as level as I can. I have no diabetes problems at all but that is what surprised me so much. I thought if all numbers are normal, even testing at home, you were fine. Still, the spike from eating is not good. So, I have really been working hard and hubby and I are eating wonderful foods. We always ate healthful foods, but now even more so. We are careful about glycation.

I love the book "Minding my Mitochondria" and I have had it for quite a while. Great advice.

I hardly feel anything wrong with my feet now.

Also, my POTS is improving. I was unable to sit or stand/walk. I have had POTS for three years. It is all connected. I can now walk for quite a while. Going to church without a wheelchair is great! I can even shop for clothes at CHICO'S! Hubby used to have to take me in my w.chair and show me clothes, I couldn't even turn my head...so dizzy, nauseated, lightheaded, heart palps, FAST heart rate, sensitive to sounds etc.

I just started being able to shop small stores without a little folding chair last week! In BIG stores I use a cute scooter, also when I walk my little dog. But I know before long I will walk further and further without feeling like I will faint. With POTS, you have TERRIBLE orthostatic intolerance.

I am really excited! My doctor ALWAYS told me I could get better! Other POTS and CFS patients' doctors do not help at all. I work with him. I research and ask good questions and we are a team.

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"Thanks for this!" says:
glenntaj (04-25-2012), mrsD (04-24-2012), NeuroLogic (04-25-2012), RideOn (04-30-2012)
 


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