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Old 04-24-2012, 11:00 PM #1
dyctiostelium dyctiostelium is offline
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Default Idiopathic sensory neuropathy that worsens with sugar: my plan

Well, it took me a while to bite the bullet and accept that the burning problem is not in my imagination and is not going away on its own, so I better take charge of things.
I'm a 40 year old woman, mother of two, with a family history of early onset diabetes and diabetic neuropathy.
According to my labs at the time the neuropathy appeared out of nowhere I'm prediabetic, with a tendency for hyperreactive hypoglycemia after a glucose load.
Doctor's advice was: "watch what you eat, do more exercise, if the tingling keeps bothering you maybe weŽll try gabapentin, NEXT!".
So, after careful research I decided to devise a plan to follow for the next three months so I could get a sense of how the disease really is going to manifest under a more sensible set of conditions.
I'm posting it so that
1) people with a similar situation could find it helpful and
2) I feel commited to the board community and therefore do my very best to keep it
These are my resolutions:
-Eat reasonably 3 times a day, no complex carbohydrates unless I'm having proteins too.
-Avoid sucrose and fructose altogether, except in fruit.
-Avoid elevators (I work in a 8th floor).
-Take vitamin D, B12 and ALA.

Yeah, I know, it doesn't sound like much but, hey, it is quite a change from my former "eat-nothing-but-a-twinky-all-day" lifestyle habits. I know there are more supplements that could help but I'm trying to keep it as simple as possible and then add things if needed. I've been doing the first three plus vitamin D for a month and I think I do feel better.

I'll let you know how it goes. It is good to be here.

sUsY
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mrsD (04-25-2012)
Old 04-24-2012, 11:58 PM #2
dyctiostelium dyctiostelium is offline
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And, well, that would be the minimal and mandatory set of resolutions but I am also trying to:
-Sleep at least 5 hours a night (did everyone read about circadian rhythm disturbances directly triggering glucose intolerance/diabetes? I still can's post links but google will find it for you)
-Stick to yoga and meditate more.
-Call my mother more often.

Everything is connected...
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glenntaj (04-25-2012)
Old 04-25-2012, 06:31 AM #3
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Default Since I just wrote it:

--take a look at this little(?) screed about making dietary changes:

http://neurotalk.psychcentral.com/thread168680.html
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mrsD (04-25-2012)
Old 04-25-2012, 05:10 PM #4
dyctiostelium dyctiostelium is offline
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gleentaj,
That thread is spot on what I dream of sometime be able to do about food, thanks a lot for linking it
Take care.
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Old 04-25-2012, 06:15 PM #5
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Benfotiamine is VERY good also. That and Alpha Lipoic Acid work well together. Good luck. I do not have any sugar issues at all, never have. But I can see how sugar spikes right after eating can still damage even if quickly lowered. Going up and down, high and low not good so I try to keep it all nice and level.

I massage my feet every night so I can really feel how they improve. It is really exciting. That is my PN, but I also have Autonomic Neuropathy, POTS. You cannot tell as easily. It is all over, organs, etc. I CAN see that my POTS is much better and I can stand and walk etc. The nerves are healing, working with the blood vessels and muscles to keep the blood from pooling and leaving the brain. The nerves are talking to each other much better now.

My doctor was SO happy to hear about my shopping trips, walking into church and improvement. He works so hard to get all of my supplements and hormones balanced. He is idea to stop sugar even though my tests were fine.
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Old 04-26-2012, 03:16 AM #6
Shezian Shezian is offline
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Dyc- l am new here as well. Also a mother, with twin girls' who are 10 years old, and am 41.
My feet and hands started burning and tingling and going numb.
My symptoms have settled now. I take b1, b12 and L-carnie and am waiting for my Ala to arrive in the mail, as l live in Australia and you can,t get it here.

So in the am l will take these 4 supplements and hopefully l can reverse some of this nerve damage, that l may be responsible for with too many parties and drinking too much nice wine. Even though the neuro, thinks this isn,t the cause, and says one would need to drink a lot more for nerve damage to occur.

Whatever the reason is, l want to go back to normal or even stop the progression. I have cut right back on wine and am also trying to eat 3 meals per day. I tended to skip meals and have a huge dinner, but l need to change that. I am in the process of blood test, already had 2 ultra sounds on my tummy, which are all normal. Don,t really want to have a chest CT scan, too much radiation. I know they won,t find any cause to this NP. So l will be without answers. I am normal weight range and have always been healthy and energetic, and have exercised all my life.

Are you in the normal weight range? What did you eat during the day? Did you drink at all? Also, are you getting any blood tests or other tests to find out what could be causing your PN?

Sorry for all these questions, but ou are my age and a mother so l can reall relate, and not feel alone with all this.

Sue
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