advertisement
Reply
 
Thread Tools Display Modes
Old 10-09-2013, 05:42 AM #1
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Quote:
Originally Posted by bn25 View Post
Just came across your post and wondering if you or others have any lessons to share. I've got burning thighs (both). Diagnosed as PN but I almost feel like I have some type of skin infection + a nerve issue. Serious unbearable discomfort on wearing pants but some pants are not bad compared to others (even though all are 100% cotton - but seems like pant to pant the sensitivity is significantly different). I am using Gabapentin at a very low dose. I have tried Bcomplex but not B12 directly. Calamine lotion too. Nothing works though except being in shorts!

* any specific pants of material/brand of pants (mens) that works best? basically it seems like softest would be best based on my experience so far
* do pants that use twill/stain free/wrinkle free have something that could increase discomfort?
* any specific relief therapy - acupuncture?
* any specific skin treatment (topical ointment)?
* any other issues that could play a role (ex: I have been taking high BP and baby aspirin for years)?
* any impact of laundry detergent used on comfort of pants?
* any other ideas to get through a work day/commute?

Thanks for any tips.
Only the thighs? I have another question too. What type of blood pressure pill? Is it an ACE inhibitor? This family of drugs causes all sorts of grief for some people. I had a massive crisis reaction to lisinopril last Feb...due to the build up of bradykinin that these drugs cause. Burning stabbing pain everywhere, and swelling, and GI pain, and breathing difficulty.

Pain only in the thighs may be meralgia paresthetica. This is a sensory pathway nerve from L4-L5 in the back and gets compressed as it passes thru the abdomen. It exits at the top of the thigh near the side. Using Lidoderm patches at the exit,
sometimes puts the nerve to sleep (lateral femoral nerve).
this link has more:
http://www.aafp.org/afp/2000/0401/p2109.html
Figure 2B shows the location where the nerve exits the abdomen.
I had this as a consequence of a surgery (C-section). Using the Lidoderm patches when they first came out, resulted in a remission for me, after 14 days or so. I had had it for over a decade before! I only had it on the right side.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 10-09-2013, 06:04 AM #2
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Susanne C. Susanne C. is offline
Member
 
Join Date: Jul 2011
Location: Mid-Atlantic coast
Posts: 721
10 yr Member
Default

I do have burning on the tops of my thighs intermittently as part of hereditary neuropathy which has progressed up to my shoulders and hips. I pick my pants with care as some of them are more likely to cause trouble than others. A man would have far fewer choices, loose yoga pants are the most comfortable for me, they are a poly/Lycra /rayon blend. Jeans become unbearable after a short time, especially if I give into vanity and wear ones that fit closely as opposed to baggy, saggy ones. My favorite hiking pants are a nylon blend and they do irritate the skin, despite not being tight. I think the nylon fibers are the culprit- they seem to create uncomfortable friction.
A soft, all cotton khaki, such as L.L.Bean makes might be your best best, pre washed, and a size up. Polyester irritates my son, who has this disease as well, and wrinkle free finishes are chemically treated. If you tolerate microfiber, there are some extremely lightweight men's dress pants available. It is polyester, but has a softer hand.
If it is any consolation, this is a symptom that waxes and wanes for some of us, so it may improve.
Susanne C. is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bn25 (10-10-2013)
Old 10-09-2013, 04:01 PM #3
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Idiopathic PN Idiopathic PN is offline
Member
 
Join Date: Jan 2012
Location: Jacksonville, FL
Posts: 793
10 yr Member
Default

So far, the materials that i can tolerate is a combination of rayon and lycra. preferably, I'd get a material with more % of lycra than rayon. This, is during those days when my skin is "cooperative", otherwise, even the softest fleece would bother me. sometimes on good days, i also could wear jeans with no problem at all.
Idiopathic PN is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bn25 (10-10-2013), Susanne C. (10-09-2013)
Old 10-09-2013, 04:51 PM #4
bn25 bn25 is offline
New Member
 
Join Date: Oct 2013
Posts: 3
10 yr Member
bn25 bn25 is offline
New Member
 
Join Date: Oct 2013
Posts: 3
10 yr Member
Default

Thanks for the quick response.

* Yes the burning, sensitivity is primarily on the thighs (both). I do feel sharp tingles/stabs in my feet, toes, legs at times (random, short bursts) but the burning feeling of cloth touching the skin is painful only on the thighs. Even when the pant is touching the lower part of my leg (below knees) I feel no such burning there.
* I took Atenolol for many years (5+) and then switched to Lisinopril - I believe my primary care doc made this switch when he started to hear of my burning symptoms on my thigh. Apparently Atenolol is not as "safe" as Lisinopril. I had this thigh burning issue for about a year before I started Lisinopril.
* The neurologist did suggest meralgia paresthetica but that is typically on one leg and not both at the same time. But I am getting a prescription for lidocaine and I will try putting some near the sides (doc showed me where).


Quote:
Originally Posted by mrsD View Post
Only the thighs? I have another question too. What type of blood pressure pill? Is it an ACE inhibitor? This family of drugs causes all sorts of grief for some people. I had a massive crisis reaction to lisinopril last Feb...due to the build up of bradykinin that these drugs cause. Burning stabbing pain everywhere, and swelling, and GI pain, and breathing difficulty.

Pain only in the thighs may be meralgia paresthetica. This is a sensory pathway nerve from L4-L5 in the back and gets compressed as it passes thru the abdomen. It exits at the top of the thigh near the side. Using Lidoderm patches at the exit,
sometimes puts the nerve to sleep (lateral femoral nerve).
this link has more:

Figure 2B shows the location where the nerve exits the abdomen.
I had this as a consequence of a surgery (C-section). Using the Lidoderm patches when they first came out, resulted in a remission for me, after 14 days or so. I had had it for over a decade before! I only had it on the right side.
bn25 is offline   Reply With QuoteReply With Quote
Old 10-09-2013, 05:57 PM #5
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I found only one place worked for Lidoderm patches for me.
Right at the top of the thigh where the nerve exists the abdomen.
Also it takes several days to work up to the nerve in order to
suppress signals. It is not a quick fix.

MP comes from the back. It is also present in people wearing tight waist belts, etc, and also tight jeans. The nerve can be damaged while traveling thru the abdomen...which is how mine occurred.

I'd really suggest you get another drug, not in the ACE family for a while and see what happens. I am another person, since my ordeal. I was on those evil drugs (vasotec, accupril, and finally lisinopril) for 10 yrs! Until the bradykinin built up to overflow into other bodily systems... neither I nor my doctor suspected a thing.

I did not find lidocaine worked at the end points of pain in the thigh. Only at the location, shown on that diagram I gave you the link to.
Some people do get MP from lumbar compressions, but that is less common.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
bn25 (10-09-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
So which "existing" diabetes drug turns the PGC-1 Alpha "Master Switch" back on? caldeerster Parkinson's Disease 22 07-13-2011 11:23 AM
Actor Patrick Swayze, star of "Dirty Dancing" and "Ghost," FaithS The Stumble Inn 12 09-16-2009 04:42 PM


All times are GMT -5. The time now is 06:56 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.