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Old 10-09-2013, 04:01 PM #41
Idiopathic PN Idiopathic PN is offline
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So far, the materials that i can tolerate is a combination of rayon and lycra. preferably, I'd get a material with more % of lycra than rayon. This, is during those days when my skin is "cooperative", otherwise, even the softest fleece would bother me. sometimes on good days, i also could wear jeans with no problem at all.
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Old 10-09-2013, 04:51 PM #42
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Thanks for the quick response.

* Yes the burning, sensitivity is primarily on the thighs (both). I do feel sharp tingles/stabs in my feet, toes, legs at times (random, short bursts) but the burning feeling of cloth touching the skin is painful only on the thighs. Even when the pant is touching the lower part of my leg (below knees) I feel no such burning there.
* I took Atenolol for many years (5+) and then switched to Lisinopril - I believe my primary care doc made this switch when he started to hear of my burning symptoms on my thigh. Apparently Atenolol is not as "safe" as Lisinopril. I had this thigh burning issue for about a year before I started Lisinopril.
* The neurologist did suggest meralgia paresthetica but that is typically on one leg and not both at the same time. But I am getting a prescription for lidocaine and I will try putting some near the sides (doc showed me where).


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Originally Posted by mrsD View Post
Only the thighs? I have another question too. What type of blood pressure pill? Is it an ACE inhibitor? This family of drugs causes all sorts of grief for some people. I had a massive crisis reaction to lisinopril last Feb...due to the build up of bradykinin that these drugs cause. Burning stabbing pain everywhere, and swelling, and GI pain, and breathing difficulty.

Pain only in the thighs may be meralgia paresthetica. This is a sensory pathway nerve from L4-L5 in the back and gets compressed as it passes thru the abdomen. It exits at the top of the thigh near the side. Using Lidoderm patches at the exit,
sometimes puts the nerve to sleep (lateral femoral nerve).
this link has more:

Figure 2B shows the location where the nerve exits the abdomen.
I had this as a consequence of a surgery (C-section). Using the Lidoderm patches when they first came out, resulted in a remission for me, after 14 days or so. I had had it for over a decade before! I only had it on the right side.
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Old 10-09-2013, 05:57 PM #43
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Lightbulb

I found only one place worked for Lidoderm patches for me.
Right at the top of the thigh where the nerve exists the abdomen.
Also it takes several days to work up to the nerve in order to
suppress signals. It is not a quick fix.

MP comes from the back. It is also present in people wearing tight waist belts, etc, and also tight jeans. The nerve can be damaged while traveling thru the abdomen...which is how mine occurred.

I'd really suggest you get another drug, not in the ACE family for a while and see what happens. I am another person, since my ordeal. I was on those evil drugs (vasotec, accupril, and finally lisinopril) for 10 yrs! Until the bradykinin built up to overflow into other bodily systems... neither I nor my doctor suspected a thing.

I did not find lidocaine worked at the end points of pain in the thigh. Only at the location, shown on that diagram I gave you the link to.
Some people do get MP from lumbar compressions, but that is less common.
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Old 10-09-2013, 07:23 PM #44
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Default clothing for hypersensitive skin

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For well over a year I have been mostly wearing sport clothing that is water resistent. Zip off pants and button up shirts that are as light as a feather. They can pass as casual dress clothes for work or for any activity. Closest thing to wearing nothing and now when I put on a pair of jeans I change right back. They make this stuff for both men and women but many of my female friends have better luck in the mens section. they are in any sports store. the moisture resistance also adds to the comfort and they dry very quickly.
As an occupational therapist I've worked with many people, particularly on the autism spectrum, who have super sensitive skin. Fifteen percent of the normal population is suspected to have that condition to varying degrees, (and/or hypersensitivity to smell, light, movement, etc) which we call sensory defensiveness. Paradoxically, deep pressure touch can mediate the sensitivity to light touch, but I don't know if that would apply to PN pain. My patients with tactile hypersensitivity often were comfortable with close-fitting stretchy garments such as bike shorts or compression garments under their other clothing. When it's not too hot out, of course. Another strategy is to buy used clothes that are already broken in and softened and without buttons, zippers, etc.
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Old 10-10-2013, 05:28 PM #45
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Great inputs. I have certainly experienced that if I press down on top of my pants it feels better. I've spent a lot of time trying to find the ideal pant but maybe the focus should be on under garments. And I would have hoped there would be companies out there catering to this hypersensitive segment especially if it is 15% of the population. Several other posts describe different materials working for different people (all outer garments) - from cotton, to lycra, water proof sportswear, micro-fiber, etc. I too went through an exercise of trying out 10's of pants and capturing inputs into a spreadsheet. Probably 50 at end count of all types. Sadly almost all got checked off and then its become a matter of settling for the best of the worst - 100% cotton pants as soft as I can find them (and they are very hard if not impossible to find). If someone out there wants to see it I can make my pants research available. But I will now move into under garments research! Silk boxers, Mens' spanx, etc. Strange places this PN takes us.


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As an occupational therapist I've worked with many people, particularly on the autism spectrum, who have super sensitive skin. Fifteen percent of the normal population is suspected to have that condition to varying degrees, (and/or hypersensitivity to smell, light, movement, etc) which we call sensory defensiveness. Paradoxically, deep pressure touch can mediate the sensitivity to light touch, but I don't know if that would apply to PN pain. My patients with tactile hypersensitivity often were comfortable with close-fitting stretchy garments such as bike shorts or compression garments under their other clothing. When it's not too hot out, of course. Another strategy is to buy used clothes that are already broken in and softened and without buttons, zippers, etc.
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