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Old 04-03-2007, 06:46 PM #1
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jarrett622 jarrett622 is offline
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Join Date: Apr 2007
Location: Galax, Va
Posts: 651
15 yr Member
jarrett622 jarrett622 is offline
Member
jarrett622's Avatar
 
Join Date: Apr 2007
Location: Galax, Va
Posts: 651
15 yr Member
Default Hi, new member with PN.

I was formally Dx with Neuropathy in both my feet. During the conduction studies it was found that I have nerve damage.

But from what?? I have no underlying cause according to the all the blood work that was done. The doctor stated he sees alot of cases where there is no cause known. It just is.

I had carpal tunnel surgery in Oct and Nov for both hands. I'm wondering if there is a known connection between the two (CT and PN) and which direction that would take me in for research.

I was on Gabapentin and while it did work mostly, the sides were horrible. After about 6 months on 600 mg I simply stopped taking it. I felt better in 2 days. Been feeling better and better as the days have passed. I don't want any more meds like that. But it seems the options available aren't any better than Gabapentin.

I've had a return of symptoms over the past few days and they're worse than they ever were. To the point that I now have what feels like an aching sensation in various parts of my feet.

I'm also in the process of weaning off of Effexor XR. Down to 37.5mg for about a week now. I was only on 75mg for GAD. I've been on it for a little over two years. It did nothing for the neuropathy.

It seems that if I take 600mg of Ibuprofen that helps with most of the symptoms. At least enough that I can get to sleep. It mostly bothers me at night. When I wake up in the morning I have no symptoms at all. The Ibuprofen affect is a recent accidental discovery. So I'm going to continue it intentionally by taking 600mg's about 2 hours before bed. If I wait til the pain gets me back out of bed it takes longer for the Ibuprofen to work. I'm hoping that this will work.

I have an appt with my primary care NP on May 1st. I'll see what other options she knows of. If I had to have CT surgery I'm wondering if a similar type of surgery for my feet might be in order. The CT was not a repetitive motion injury but began during a pregnancy when I was about 23/24 due to being borderline toxemic. I wasn't bothered by it again for many years after that.

Does anyone else have PN without a cause that is or has experienced increasing symptoms? And for those that have this, what things have you done that've worked to relieve the symptoms?
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