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05-08-2012, 01:05 PM | #31 | |||
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Wisest Elder Ever
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I watch my sugar, and try to keep my insulin resistance under control.
My initial bout with PN was over 30 yrs ago, and turned out to be from hypothyroidism. That was fixed finally, and my feet woke up and my hands were better (avoided carpal tunnel surgery), but then the insulin resistance came along. I also have some food triggers... nightshade veggies. Potatoes are the worst but some tomato products will also do it. Burning... burning feet and lower legs. I use Biofreeze for that when it hits, but so far it is less if I behave myself with food choices. My PN therefore is multifactorial, but for the most part under control. I use R-lipoic acid, benfotiamine, acetyl carnitine (not every day) Vit c 500mg, OptiZinc because of my lisinopril depletes it. I use Suntheanine at night, melatonin, either Zyrtec or Benadryl (I rotate these), MegaRed Krill oil, kelp extract, 5mg of methyl B12 twice a week, and 100mg of Ubinquinol (new) daily. Sometimes I take a multivit if I am not eating well. Occasionally I take a l-tryptophan for sleep but not every night. I also use magnesium lotion each night. I think I got it all... We've done supplements in this house for over a decade. It has been amazing. Got my son off Ritalin, reversed my GERD and asthma, improved hubby's ADD. Lot of other benefits.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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05-08-2012, 01:21 PM | #32 | ||
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Junior Member
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So, your PN was not ideopathic - it was related to diabetes and hypthyroidism.
I don't have diabetes and my hypothyroidism is under control (for nearly 30 years) and my B12 levels are normal. That is an impressive list of supplements. I don't think doctors know much about supplements. Or care. I think for each of us - regardless of the medical problem/symptoms - it's doing research and trial and error with the various supplements. I am glad you don't have symptoms that often and have found what works (and what to avoid) for you. Plus that's great that this approach has worked for other members of your family. |
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"Thanks for this!" says: | mrsD (05-08-2012) |
05-08-2012, 01:42 PM | #33 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Pauling was promoting oral megadosing, and his studies were criticized for being flawed. This is different, and showing some promise, but the jury's not in yet. (Not taking sides - waiting for the jury... ) From what I've read so far, I'd still be hesitant to use the C-word - "cure" - yet. There may still be a long way to go. Quote:
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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"Thanks for this!" says: | Kitt (05-08-2012) |
05-08-2012, 01:59 PM | #34 | |||
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Wisest Elder Ever
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The keyword I used was "supposedly"
Dr. Levy does make claims that IV Vit c has cured sepsis and heart disease. It is in that link I gave above. The cancer link was provided by pabb on a thread in Vitamin forum: http://www.pdazzler.com/archives/62 The Mayo clinic is one of the most conservative medical places in US. Some posters here have said in the past that Mayo doesn't do skin punch biopsies for PN. I always wonder about "cancer claims" as those typically show up on fringey sites...like that Jim Hubble! But if higher blood levels of liposomal Vit C work differently than with regular oral tablets, I think I will try it. Don't know when but I am intrigued. Vit C works on collagen and joint issues well. And has been shown to help RSD which is a neuropathic pain problem.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Last edited by mrsD; 05-08-2012 at 02:26 PM. |
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05-08-2012, 02:33 PM | #35 | |||
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Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
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Lecithin IS an essential phospholipid. Quote:
..and that does seem like a LOT of alcohol to put into a little packet. Ok, I read it, I get it. http://en.wikipedia.org/wiki/Lypospheric_vitamin_c Except that the only source cited is the same Dr. Levy... I may get it more because I've been researching nanotechnology on another matter... But it's still mighty pricey vitamin C! I wonder if it would be cheaper to encapsulate the stuff in Buckyballs... Please, tell me Dr. Levy doesn't have a financial stake in this stuff... Doc
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Dr. Zachary Smith Oh, the pain... THE PAIN... Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE. All opinions expressed are my own. For medical advice/opinion, consult your doctor. |
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05-08-2012, 03:07 PM | #36 | |||
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Wisest Elder Ever
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12% of 5ml is .6ml. (if 100% ethanol is used to mix it) Only a small fraction of the total volume.
Vanilla extract (the original one is 35% alcohol) by comparison. Much of it remains in the food prepared with it. Most wines are 9-12% alcohol. So this vitamin C product would be similar to a teaspoonful of wine. The lecithin and phospholipids(they are a family of similar compounds that make membranes) are the emulsifiers providing the membranes to encapsulate the Vit C. This is vastly different from a "proprietary mix of herbs or whatever"..and I think you know that very well so you really don't need to "rib me".
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Last edited by mrsD; 05-08-2012 at 04:04 PM. |
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05-08-2012, 04:01 PM | #37 | |||
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Wisest Elder Ever
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No I am not idiopathic. I do have some compressive issues on my left ankle/foot from a radical operation on my instep 50 yrs ago to remove a blood tumor. This damaged nerves and sometimes the lymph channels don't drain with it and it can be tough. It is much better with the magnesium lotion however. Many of the damaged nerves have grown back and are not sending normal signals, so I have pain and throbbing now in that large scar.
I am not a diabetic yet. But on the way there, with pre-diabetes and insulin resistance. Quote:
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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05-08-2012, 04:30 PM | #38 | ||
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Junior Member
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Quote:
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05-08-2012, 04:44 PM | #39 | |||
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Wisest Elder Ever
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Yes, lipoic acid is in formulas that are made with carnitine for mitochondrial support. (example Juvenon).
Here are some of the things it is thought to be useful for also: http://en.wikipedia.org/wiki/Lipoic_acid Basically it is a powerful metabolic enhancer, and has years of papers on PubMed for nerve function and other things, including diabetics. Lipoic acid is starting to be picked by some neuros... as some posters come here saying their neuro recommended it. It is not frivolous or experimental anymore.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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05-08-2012, 05:09 PM | #40 | ||
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Junior Member
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[QUOTE=mrsD;877520]Yes, lipoic acid is in formulas that are made with carnitine for mitochondrial support. (example Juvenon).
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