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Idiopathic PN 06-04-2012 07:22 AM

Quote:

Originally Posted by en bloc (Post 885753)
Yes, you can have a pillow. They try to make it as comfortable as possible...the worst was that time just crawls.

Thank you so much en bloc.

ginnie 06-04-2012 10:37 AM

opps backwards
 
As usual I say things backwards, kind of funny. I do this in speech as well, and occasionally speak two words at the same time. PN. not NP. sometimes I do wonder about my mind! ginnie

ginnie 06-04-2012 10:40 AM

Re: on Tests
 
I do not know if PN can be made worse by the test, but I don't think so. Sedations would be another issue if you ever had to have it. Pillow, and maybe IPOD with a book on tape will make time pass quickly too. Not sure I could stay and watch some boring TV show. If it was Nova or discovery, well that would hold my interest. Maybe they have DVD that you could bring your own to watch. just a thought. ginnie

Idiopathic PN 06-04-2012 04:09 PM

Quote:

Originally Posted by ginnie (Post 885906)
As usual I say things backwards, kind of funny. I do this in speech as well, and occasionally speak two words at the same time. PN. not NP. sometimes I do wonder about my mind! ginnie

That is completely fine. That happens frequently to me now.... my memory has become so bad. sometimes I am totally lost of words. most of the times, my husband will finish the sentence for me, and that is alright. he takes the cue when to subtly complete my sentence.... another example of my memory lapses - i put a cup in the microwave just with the tea bag but without water! My family, friends, and previous co-workers used to consider me as a walking filing cabinet because I memorize every single details, but now, that is gone....sometimes I am frustrated but with all the more serious problems I have with the pain, memory lapse is a lesser evil.

lindaw623@aol.com 06-04-2012 04:51 PM

I have been suffering with idiopathic small and large fiber neuropathy for 4 years. I personally have been worked up and tested by 4 different and capable neurologists. Had every test possible.
Every person with this condition is a little different. I have been on zneurontin - Lyrica - Vimpat - Trilipal, all for a significant amount of time. None of them helped my pain.

On the positive note, I suggest that your husband see at least one neurologist and follow directions. He must try everything possible to get the correct diagnosis. Keep active as much as possible.


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