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-   -   I have just been diagnosed with PN (https://www.neurotalk.org/peripheral-neuropathy/170059-diagnosed-pn.html)

ginnie 06-03-2012 03:08 PM

traval and airport
 
If you have to go, use the wheelchair, and all services at the airport. Not all illness is visable. I only walk with a limp, yet I use a wheelchair when I have to. That is OK to do. I do wish you could get into another doc however before you leave. Some inner voice of yours is warning you by what you are saying in your posts. Listen to that inner voice. do not doubt your feelings about your own health issues. What ever you do, you are not alone, and folks here will be there for you, even over seas and back when you get home. Keep in touch. ginnie

angel04 06-03-2012 03:14 PM

Okay I will ring the airline and ask for assistance it will mean a lot to me and Mum, at least I won't be in pain for days afterwards. Thanks Ginnie, u sound totally in control of your illness can I ask what it is you have?

Kitt 06-03-2012 03:20 PM

Hi angel04,

If you are out of commission for a couple of days after the long walk at the airports and handling your luggage, you do need to either use a wheelchair or one of those carts that you and your luggage can ride on. Nothing wrong with that. Just ask. No reason not to. You will feel so much better without having to walk that far in the airport. I know.

ginnie 06-03-2012 03:24 PM

Re: laughing angel
 
I so wish I did have control of my illness... I come back here all the time for support. I have four auto immune diseases. My joints are shot, had several spinal fusions, now need my ankles re-built to walk. too weak to do the surgery, and on pain killers. Well, I can say I manage, but I do need all the help I can get here. Taking suppliments for the first time. first auto immune problem was at the age of 29, kinda been down hill since then. Was in a trial study for 10 years up in columbia University med. center. This kind of beat my immune system into correct behavior. Problem may have started according to mayo clinic, from DDT in the blueberry fields in Michigan, or some ground contamination. Had epson Barr, very young at 9 years old. Many things were suggested never proved. Imbalance of T @ B tymphosytes. All the troops are called to fight and they forget where they are going. I am OK, doing alright with NT and my friends here. I also am not alone. I have a friend I live with who is wonderfully supportive. Friends are important to get you by when your own strength fails. You will also find friends right here...me! ginnie
Nan is my friends name and she is also my spell check most of the time when I am line, can't spell worth a dime.....

angel04 06-03-2012 03:40 PM

Quote:

Originally Posted by ginnie (Post 885689)
I so wish I did have control of my illness... I come back here all the time for support. I have four auto immune diseases. My joints are shot, had several spinal fusions, now need my ankles re-built to walk. too weak to do the surgery, and on pain killers. Well, I can say I manage, but I do need all the help I can get here. Taking suppliments for the first time. first auto immune problem was at the age of 29, kinda been down hill since then. Was in a trial study for 10 years up in columbia University med. center. This kind of beat my immune system into correct behavior. Problem may have started according to mayo clinic, from DDT in the blueberry fields in Michigan, or some ground contamination. Had epson Barr, very young at 9 years old. Many things were suggested never proved. Imbalance of T @ B tymphosytes. All the troops are called to fight and they forget where they are going. I am OK, doing alright with NT and my friends here. I also am not alone. I have a friend I live with who is wonderfully supportive. Friends are important to get you by when your own strength fails. You will also find friends right here...me! ginnie
Nan is my friends name and she is also my spell check most of the time when I am line, can't spell worth a dime.....

Ginnie u sound wonderful and u are dealing with ur illness from a very young age, how do u do it, I know u have friends here and ur Nan sounds like ur lifesaver, but inside how do u cope? thats what gets me where do u get the strength from? I admit to being a newbie but what is NT, I am not familiar with all these terms and T @ B tymphosytes sounds like an alien language to me, what does it mean, I would love to get to know u better. Thanks so much for taking the time out to answer me, I needed to talk and its not something I did before but I am learning and I value the advice I get from this forum. The people here ar my only friends now as I tend to keep very much to myself and don't interact with people, basically I don't like them and prefer animals, if that makes sense, live and learn right ! Big hug x

ginnie 06-03-2012 06:34 PM

Hi angel
 
You can also PM me. Up at the right hand top, where it welcomes you with your name. click on it and you can learn to private message someone. What you say can be kept more private. My real name is ginnie, always used it, as I didn't know better to use a different Name.
As far as being strong, no I really am not. I do pray alot, that is one way I cope. I cry alot, and stick with those people who have a positive outlook. Like I said, I really do run back to NT alot. I am scared over my health as alot as others here are. I found out I am not alone either in suffering. We find our way in this big old world by reaching out to each other when we hurt. That is the best way I think to help with what you are experiencing. share it, and see if others can help some. I found most of the friends I have through the art field. I was an artist for 30 years. I found Neuro talk, being scared half to death and sick over the fear, when I faced my last spinal fusion. All the people here helped me through that surgery, and did get me through it emotionally. You will find alot of good souls here too, because we have the common element of having to face difficult things. I am not strong, believe me, I fight my way through things just like the next person, with all the frailities humans have. Try prayer too. I also distract myself alot and am a book worm. Nan my helper and friend was sent by I can only say, by some other means unknown. Wound up driving a truck rescuing animals for two years. We went to the same classes to learn how. I did this during the time my mother was failing. It gave me some time to do something I wanted to do. I had my health, or most of it then. We figured this world is really hard after 911, and I asked her to help me and move in to the spare room. I sure needed help, and we saved each other in many ways. Two old biddies, trying to hang out as best as we can! We both pray with other friends too. There are several neighbors I have, that we keep close to for strength. As far as your love of animals goes, well..... we already have something in common. See how easy that was? Keep in touch ginnie

ginnie 06-03-2012 06:41 PM

About abreviations angel
 
NT stands for Neuro Talk, the name of the great site. T @ B lymphosytes are part of the immune resonse we get. Killer white cells, the fighting force the body has to get rid of infections and problems. T @ B are called just that, and they try to help the body. In my case they are a bit confused! ginnie


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