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Old 06-22-2012, 06:10 AM #21
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@boiler:

Another cause of gait disturbance is overdosing on B6.
At your age, you may have a trainer, or school coach?

I have experience seeing coaches of young people push very high dose B6 on the athletes.

One sign of B6 overdose is a form of neuropathy where gait is affected.
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Old 06-22-2012, 03:46 PM #22
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Ladyerin17 .16 is less than .2, so that number would make the result normal if those numbers you posted are correct.
Last edited by echoes long ago; 06-23-2012 at 12:20 PM. Reason: spaeling
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Old 06-23-2012, 10:01 AM #23
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mrsD - i do not have any coaches or trainers and do not take any extra form of B6...once again i was walking today and tripped on a minor imperfection in the sidewalk...dont know what is causing this (drop foot, weakness, etc)
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Old 06-23-2012, 03:33 PM #24
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mrsD - i do not have any coaches or trainers and do not take any extra form of B6...once again i was walking today and tripped on a minor imperfection in the sidewalk...dont know what is causing this (drop foot, weakness, etc)
Does anyone in your family - mother, father, siblings, grandparent, nieces, nephews, etc. have any of these problems that you experience with walking In other words, any family history.
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Old 06-24-2012, 07:45 AM #25
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kitt - yes , my grandma has idiopathic peripheral neuropathy and she cannot feel ANYTHING below her knees, she went through most of the tests i am now (minus MRIs) and they found nothing except that her nerves were dead below the knees -however my EMG was completely normal and showed no sign of nerve damage
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Old 06-24-2012, 11:00 AM #26
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Quote:
Originally Posted by boiler1993 View Post
kitt - yes , my grandma has idiopathic peripheral neuropathy and she cannot feel ANYTHING below her knees, she went through most of the tests i am now (minus MRIs) and they found nothing except that her nerves were dead below the knees -however my EMG was completely normal and showed no sign of nerve damage
It sounds like you may very well have CMT, small fiber neuropathy doesn't show up on EMG's, not until you have large fiber damage as well, like I do. The fact that your grandmother has it is extremely significant. You may want to pursue genetic testing for CMT, especially since you are so young.
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Old 06-24-2012, 12:20 PM #27
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I agree with Suzanne C. Please refer to my other post #18 concerning EMG/NCV testing for CMT1 and CMT2.

I am not saying you do have some type of CMT as I'm not qualified to do that nor is anyone else on here, but from what you have posted it makes a person wonder.
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Old 06-24-2012, 02:55 PM #28
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Originally Posted by boiler1993 View Post
mrsD - i do not have any coaches or trainers and do not take any extra form of B6...once again i was walking today and tripped on a minor imperfection in the sidewalk...dont know what is causing this (drop foot, weakness, etc)
Also, tripping and clumsiness were my primary CMT symptoms through childhood and young adulthood.
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Old 06-24-2012, 09:15 PM #29
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wait .. but she doesnt have CMT (i dont think) just peripheral neuropathy and doesnt CMT affect large nerves which would show up on an EMG? Is genetic testing commonly for CMT and what does it entail? thanks so much
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Old 06-24-2012, 09:57 PM #30
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kitt - you said yourself : "When the myelin is damaged (CMT1) the nerve impulses are conducted more slowly than normal. If the axon itself is damaged (CMT2) the speed of nerve conduction is almost normal, but the strength of the signal is reduced"

both were normal for me....also what about my other symptoms and heat sensitivity (or maybe stress - could heat or stress bring on symptoms of CMT?)
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