[NolaLore]

Hi all, I've been searching for a group to communicate with people who have experienced similar issues as me. This seems like a great support group. I've been going through testing for over a year now and have had so many things ruled out and never a diagnosis. Initially, my neuro thought I might have MS as my symptoms mirrored it and were exactly like my mom's who has MS. That's been ruled out, as well as all the usual suspects: no diabetes, no lyme disease, no autoimmune diseases, no vitamin deficiencies, no thyroid issues, etc. the lists go on. My new neuro thinks I may have PN and I go for the EMG/NCT on the 24th.

I may have separate issues though because I have blurry vision, sometimes see slightly double, and my eyes experience what I can only call sensory overload without there being a reason for it. I go to an ophthalmologist on the 1st.

A mass/lesion/cyst, whatever you want to call it, was found in my spinal tissue in the thoracic region and that causes chest and back pain. But I do not know yet if it can cause the numbness and other symptoms I have in my arms legs feet and hands. I go to the neurosurgeon on the 16th and I'll find out then if the cyst can be the cause of possible PN. Do any of you know if it is possible from personal experience?

My symptoms have been strong since January 2011 and it started noticeably with total loss of feeling in my left arm, the month after that, total loss of feeling in left leg, a few weeks after that total loss of feeling in both left leg and left arm, numbness, tingling. A few weeks after that, tremors from the back of my head to mid spine and down mid arms. After that, cognitive issues that last only a few seconds, like not knowing where I am - that hasn't happened in several months now though. The worst symptoms are uncontrollable shaking with muscle spasms and the left side of my body seizes up and I cannot move it for about an hour. Dizziness comes with that as well.

Now, daily, I experience numbness in both arms, legs, hands, and feet that comes and goes, semi dizziness, imbalance, occasional tremors, shocks, zaps, spasms, tingling, burning, cold spots, muscle weakness, hot hands and feet. I eat healthy, don't drink, don't smoke. I exercise. I just wish I could find out what's wrong with me as I'm beyond tired of being in limbo while doctor after doctor tells me they can't find anything "wrong" with me. If I knew that the spinal tissue cyst was the cause of possible PN, I'd feel a bit relieved. But my vision issues are troubling because I don't think that can be caused by the cyst.