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I'd have this tested ASAP and make sure you are above 400 in US units. |
way back in 2003 i was diagnosed via emg/ncs with peripheral neuropathy. the neurologist that did the test referred me to columbia presbyterian hospital in manhattan. the first thing that they wanted to do to look for a cause, before blood tests, glucose tolerance tests, a1c, spinal tap or anything else was a nerve biopsy on the sural nerve. I read up on it on the braintalk peripheral neuropathy forum which was the active one at the time with some of the same posters who are here still, and ran not walked to another neurologist who gave me a full testing workup without the sural nerve biopsy.
you must become fully involved in understanding and researching the testing, diagnosis and treatment of your medical issues, because it is you who will be the one who will be suffering or debilitated when unneeded or damaging procedures, surgeries or Rx's are done or presecribed to you. |
I have peripheral neuropathy & inflamatory muscle process in my legs and my left leg is worse.Iwent thru all the blood test and mri of the lumbar spine, left femur the test came back normal execpt my b-12 which was at 275.So the doc at my va recomended I had both nerve & muscle biopsy done which i'm glad i did becauce it showed a problem with the fibers and red blood cells ?? and it has taken us into a new direction of blood tests and i wont know till next month what the results are.The only pain i have in my leg from removing the nerve & muscle is when i cross my left leg.If your doc what to have the biospys done i'd say yes, go for it it my show something or it may not.
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You need to start B12 NOW.... 5mg methylcobalamin daily on an empty stomach. It is better than injections and may help. Methyl B12 is the ACTIVE form and superior to cyanocobalamin. Some people cannot methylate cyano so it doesn't work for those with genetic failures in methylation.
iherb.com, Puritan's, Swanson's, amazon have it for about 10 cents or so a day. Get tested in 3 months, and you should be over 1000 for best results. Did your doctor offer B12 to you? Anything below 400 is considered abnormal today according to new treatment protocols. Other countries have been treating these lows for many years now, but the US is really behind for some reason. |
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i looked at the wrong number. B-12 is 379 if i'm looking at lab results correctly.Sorry about that. Removal of left sural nerve and adjacent muscle for biopsy. |
Thanks Mrs.D I'll order Methyl B12 . Thanks for the info.
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Sural nerve biopsy can leave you with permanent pain. Did you read all the posts on this thread?
Skin punch biopsy is a better alternative. Even at 379 you are below the acceptable low of 400 today. People with neurological issues can need more B12 than others. Please read this: http://neurotalk.psychcentral.com/post698522-70.html and http://www.aafp.org/afp/2003/0301/p979.html Injections are typically cyano form, which is not active. Some people lack the genetic ability to utilize it and so it does not work well. The active form is methyl and that works much fast and better. |
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All i know is that the blood test are more specific & deeper. 3hr glocuse, cooper, either vit-c or hep-c, toxins & other test.I ask the nurse if this has anything to with agent orange, all she was yes & no.The base's i was station at were cleared by the epa. What labs there sending out the samples to there not saying.I'm just along for the ride. lol All i can say for me the nerve & muscle biopsy's was a must. Sorry to hijack duarte1985 post. |
Not a problem billygee! MrsD the VA tells me its been done multiple times looking for my B12 that is by I will get a release tommorow.
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If you ever need you get your medical records when you where in the service www.NPRC.Vetrecs@nara.gov |
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