advertisement
Reply
 
Thread Tools Display Modes
Old 07-14-2012, 07:06 AM #1
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
Default Bad Biopsy

I just had a sureal nerve biopsy, I was told there would be no pain. Im in terrible pain, it feels like I have pain shooting from the site to my foot. Does anyone know what this is?
duarte1985 is offline   Reply With QuoteReply With Quote

advertisement
Old 07-14-2012, 07:23 AM #2
en bloc's Avatar
en bloc en bloc is offline
Senior Member
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
Default

Actually, it is considered phantom pain, because the nerve has been cut and a section removed for the biopsy. This interrupts the nerve pathway to the foot (anything past the point of biopsy) and can cause severe phantom pain. This is common with amputees. Cutting the nerve where nothing below gets a signal produces the same scenario as amputating (in regards to nerves).

http://en.wikipedia.org/wiki/Phantom_pain

You should contact the doctor that did the biopsy and inform them. They will likely prescribe something to help relieve that pain. I'll be honest, it is difficult to relieve but mine did fade over time.

BTW, sural nerve biopsies are very invasive and commonly cause this type of severe pain. The numbness involved with this procedure (because the nerve is severed) is usually permanent. Whoever told you there would be no pain was not honest.

Last edited by en bloc; 07-14-2012 at 07:34 AM. Reason: Add another thought
en bloc is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
duarte1985 (07-14-2012), Kitt (07-14-2012)
Old 07-14-2012, 07:25 AM #3
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I hate to be the bringer of bad news, but:

This test is no longer recommended, because it can lead to
permanent pain and damage to that nerve.

Here is one post from here:
http://neurotalk.psychcentral.com/sh...t=sural+biopsy

If you use the search engine here, you will find many other posts:
use sural biopsy as a key word in the search box. I cannot post a search result because our software does not keep it accurately so it won't post correctly. Each poster has to do their own search.

I see en bloc and I were posting at the same time!
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Last edited by mrsD; 07-14-2012 at 08:11 AM.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
duarte1985 (07-14-2012), Kitt (07-14-2012)
Old 07-14-2012, 10:50 AM #4
tsmitty70 tsmitty70 is offline
Junior Member
 
Join Date: Mar 2012
Posts: 10
10 yr Member
tsmitty70 tsmitty70 is offline
Junior Member
 
Join Date: Mar 2012
Posts: 10
10 yr Member
Default

My neuro doc says that I may need a nerve biopsy to look for vasculitis or amylodosis. I dont know what I should do about that. Can these be determined with some other less invasive procedure?
tsmitty70 is offline   Reply With QuoteReply With Quote
Old 07-14-2012, 12:09 PM #5
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
Default

My surgeon at the VA said that there would be numbness, their could be a painful tumor. But the surgeon was against it. My neuro doc wanted after MrsD mentioned the fire could. it made sense but not to him.
duarte1985 is offline   Reply With QuoteReply With Quote
Old 07-14-2012, 01:53 PM #6
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

The skin biopsies are now replacing the sural type, for sensory neuropathies.

Diagnosing amyloidosis, is often done with a fat biopsy off the abdomen, I thought. It is least damaging there.
http://www.cedars-sinai.edu/Patients...yloidosis.aspx

Here is a good site on diagnosing vasculitis:
http://www.hopkinsvasculitis.org/vas...ng-vasculitis/
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
duarte1985 (07-14-2012), Kitt (07-14-2012)
Old 07-14-2012, 04:49 PM #7
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
Default

Quote:
Originally Posted by en bloc View Post
Actually, it is considered phantom pain, because the nerve has been cut and a section removed for the biopsy. This interrupts the nerve pathway to the foot (anything past the point of biopsy) and can cause severe phantom pain. This is common with amputees. Cutting the nerve where nothing below gets a signal produces the same scenario as amputating (in regards to nerves).

http://en.wikipedia.org/wiki/Phantom_pain

You should contact the doctor that did the biopsy and inform them. They will likely prescribe something to help relieve that pain. I'll be honest, it is difficult to relieve but mine did fade over time.

BTW, sural nerve biopsies are very invasive and commonly cause this type of severe pain. The numbness involved with this procedure (because the nerve is severed) is usually permanent. Whoever told you there would be no pain was not honest.
I go to a pain management clinic sense I've had neuropathy cause ¿VA just won't do it. Excuse. my spelling my phone tries to do it for me. So the next day my pain was horrible so I called the VA And she said there shouldn't be so she recommened

Last edited by mrsD; 07-14-2012 at 05:27 PM. Reason: fixing quote function for clarity
duarte1985 is offline   Reply With QuoteReply With Quote
Old 07-14-2012, 05:09 PM #8
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
Default Not a surprise

Do you think I will have to have a muscle biopsy ?
My neuropathy starting to progess like Im fatigued all the time. My legs and feet both jerk even when I sleep. I know my Emg came. back severe neuropathy. My doctor won't listen to me when i tell I think it's. caused by smoke inhalation. The doctor said all these possibilities we will never find. the cause .
duarte1985 is offline   Reply With QuoteReply With Quote
Old 07-14-2012, 07:11 PM #9
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
duarte1985 duarte1985 is offline
Junior Member
 
Join Date: Jun 2012
Posts: 23
10 yr Member
Default

Quote:
Originally Posted by duarte1985 View Post
Do you think I will have to have a muscle biopsy ?
My neuropathy starting to progess like Im fatigued all the time. My legs and feet both jerk even when I sleep. I know my Emg came. back severe neuropathy. My doctor won't listen to me when i tell I think it's. caused by smoke inhalation. The doctor said all these possibilities we will never find. the cause .
So know I have severe neuropathy, plantar fachitis and now I have horrible phantom pain. I am looking for help but help is making me worse. My neurolgist has made no effort. to help me. My neuropathy is progressing which he agreed , he said if we don't do something fast I might be able to walk. There has to be a way to stop this pain its almost debilitating right now.
duarte1985 is offline   Reply With QuoteReply With Quote
Old 07-14-2012, 08:50 PM #10
en bloc's Avatar
en bloc en bloc is offline
Senior Member
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
en bloc en bloc is offline
Senior Member
en bloc's Avatar
 
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
10 yr Member
Default

I don't understand why they even did the biopsy if your EMG came back showing severe neuropathy...what did they think they would find?

The skin biopsy would have been more helpful if they were looking for small fiber neuropathy.

Not sure why they would do a muscle biopsy. Do you have muscle weakness?

You need to be proactive with the doctors and ask what they are looking for and why the additional tests if they have already confirmed the neuropathy.
en bloc is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (07-14-2012), mrsD (07-15-2012)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Skyn Biopsy filipe Peripheral Neuropathy 34 04-12-2011 10:36 AM
muscle biopsy rumpled Myasthenia Gravis 18 10-19-2010 01:30 PM
Skin biopsy kpRN Peripheral Neuropathy 19 07-24-2010 09:10 PM
Negative Lip Biopsy??? Sleeeepy Autoimmune Diseases 0 04-01-2010 08:08 PM
Update about my mom's biopsy Jodylee The Stumble Inn 52 02-21-2008 01:22 PM


All times are GMT -5. The time now is 06:09 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.