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Will update when I contact these people. I do all of this before Alan gets involved. I'm like his advocate. I'll let you know what happens and if you get this double procedure, please do let us know, okay? All the best Melody |
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Then I guess it's up to Alan and I to investigate this possibility. I'll update when we do. Thanks again Melody |
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Brue |
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Keep us posted. Melody |
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Incidentally, I was just looking into this treatment when this thread was started. I have just started this treatment on my feet. It is supposed to gradually heal your nerves each session and you can start noticing results within 1-2 weeks.
The Drs at the clinic I am going to met with Odell and learned from him. They said they have experienced 86% success rate in reducing/eliminating pain for people. They have not seen any negative effects from it, only that it doesn't produce any results for 14% of their patients. They said the treatment method is spreading and they are treating 15-20 patients a day. It is used at Cancer Centers of America for chemo-induced neuropathy with a 90-some percentage success rate. It is also FDA approved. I am in the chicago area and there are supposed to be around 6 places around here that do this treatment now. I will keep you updated. |
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Best of luck, Melody |
I figured it was time for an update, though I was hoping to give you better news. I have had 5 treatments with no change in symptoms. In fact, I have had a flare over the past week or so but I don't think it's from the treatment. We have halted the treatment as of yesterday because I am paying cash and it's expensive and not working. They did say one man didn't see results until the very end of a month's worth of treatments, which is how long they generally give it a try to see whether it's helping you or not.
I am back to blood testing for autoimmune issues because I have had more sensations elsewhere in my body in addition to more pain in my feet. I believe everything else has been eliminated. I have radically changed my diet to eliminate sugar and increase whole grains and vegetables, not that I had a horrible diet prior to the onset of the neuropathy one year ago. I have had MRIs and EMG/NCV and blood tests last fall with everything normal. I got off two medicines I was on for a long time in case they were the culprit. I'm not sure if I want something to turn up now or not! On one hand, it would be helpful to have some sort of diagnosis, but on the other, no one wants to find out they have a disease. |
You might want to try the gluten free diet, for at least 3 months and preferrably 6 or more. It can take a while to clear the gluten reaction.
Some people react to gluten with PN symptoms. Since you added whole grains to the diet, and had a flare, I'd seriously consider gluten as a trigger. https://sites.google.com/site/jccglu...eralneuropathy Quote:
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