so since my first neurologist discharged me a few years ago, I figured I felt like getting a second opinion...and I'll try to keep this story as breif as possible.

The neurologist I got a second opinion from is one whom is part of a highly regarded neurological clinic in my area. On my first visit, I went in and told him that I have basically lost most of the sensation in my body. He'd tested my reflexes (which work but I have no sensation in them), he tested whether I could feel temperature, vibration, ticklishness and sharp objects and he concluded that I must be fine, but just in case he said he'd want to see my records from my first neurologist and he sent me for an MRI of my neck.

A week after my visit, I was attempting to excersize, but ended up pulling a muscle in my back... and I ended up getting a burning sensation in my hands, feet inner ears, neck, nose, and even my right eye...I also had muscle twitches and my reflexes acted on their own...I got a perscriptiong from the neurologist for 300 mg of Neuroonton once a day...well for whatever reason he'd prescribed 900 per day but I made the choice to only take 300 and have been taking it for a few months now.

Got the MRI done and went back to the neurologist for a second appointment and he said that my current MRI as well as my previous MRIs and nerve conduction tests look completely normal. I tried explaining that the problem is that I've got extremely minimal sensation in my body. The neurologist was nice but...I don't appreciate him constantly interrupting me and trying to insist to me that I'm perfectly fine. He told me "well you don't have neuropathy. there's nothing physically or physiologically wrong with you"...and he shook my hand and I left....

I hate when doctors interrupt a patient or...seem altogether uninterested. I would want to get a third opinion but...I know there's nothing they could do.

^^That sounds so insulting. And not at all unusual, in my experience.

Sorry for your troubles.

thanks for your support.

Any suggestions on if I should get a third opinion? I've got such little sensation left that I can hardly feel the keyboard buttons under my fingers.... I've had an exposed nerve for the past ten years or so, which I've off-and-on wondered if that could be causing my problem. But...it's not exactly in a spot that'd be easy for me to show a neurologist.... The only other thing I've considered is getting my circulation tested.

i would go for a third opinion. you know something is wrong, even if they havent found anything yet.

check out lizajane.org for a list of testing that can be done for different types of pn.

I would be inclined to go for a third opinion.I had my first consultation this am and from the same type of tests you just described,my consultant said that I did have PN,he took more bloods for glucose and auto-immune and is arranging further tests at another hospital,ECG's I think.....