[youngwife]

Hello. I have been reading here and there is some good information. My husband was recently diagnosed with sensorymotor demyilating and axonal pherprial polyneuropathy (or thats what the EMG report says) EMG also said something about possibility of spinal nerve root problem. he has a suspected brain/ nerve condition called central pontine myelinolysis. He has as a complication of ,or in adition to these two conditions, dementia, speech problems and a movement disorder.

First of all I would like to say that my husbands conditions were exasperated by or possibly completely caused by a history of ALCOHOL abuse. I have reached out for support and or information on another message board, (which shall remain nameless because I do not point fingers or hold grudges) and got much ridicule because my husband was "asking for this". If this group conscious has any problem with the fact that ALCOHOL was involved, please let me know. I will be happy to gracefully leave with no ill will. I just can't take anymore people looking down there noses at me right now in addition to all I am dealing with.

Did anyone have their Neuropathy come on kinda suddenly? He had complained of his feet and legs hurting for years after working long shifts. He worked two jobs a lot so we assumed this was why. He also had restless leg type sympotoms for years but he never mentioned it to his doctor. This was the only possible clue we would have had to the neuropathy.

He also has had some short term memory trouble for 15 plus years that was getting worse. And he had an MRI in January that showed some white matter lesions. These were dismissed as small vessell ischemia. He was given a sleep study that showed sleep apnea and prescribed a Cpap and told if he slept bettter maybe his memory would get better. It hasn't.

In May he was hospitalized for alcohol withdrawl, again. He WALKED into the hospital. He was WALKING with a walker , very unsteadely, at the hospital. He was admitted to a physical rehab facility after a two week hospital stay. He got worse while at that center. He developed right arm tremor, drop foot in right foot and a very minor intermitttent speach problem. I litterally watch him deterioate slowly in a matter of two weeks.

Since he has been home he is doing outpatient physical and occupational therapy. He is slowly geting worse.His memory is much worse, his speech is worse, he now has a movement disorder where he has intermittent involuntary movements in his neck, touge, eyes head,trunk and arms. He is still in the chair. His physical therapist has stopped having him walk with her because he is getting drop foot in the left foot and his gait is worse. Last week she has just been focusing on getting him to stand in proper alignment. He has lost the percepion of where his legs are in space also.

We have been to physical therapy, occupational therapy a medical test or a doctor every day since June 20th. Last week hey decided that the white matter lesions that were in the Pons in the MRI in January and June were probably the CPM.

It has been so difficult to watch my husband go down hill.

So I know this is the PN board. Did anyone have it come on fast and get worse fast?