advertisement
Reply
 
Thread Tools Display Modes
Old 08-17-2012, 01:10 PM #1
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
Unhappy neuropathy injury vitamin d2

Hi I am new to this forum. I am currently awaiting an appt. with an orthapedic. I willbe seeing him on monday. SO far I have had no relief from a fall I took on june 22nd. I went off a high step and landed on the top of my foot (near my ankle). My foot immediately swelled and a hug hematoma bigger than a golf ball appeared. I had a hard time getting around for the first few days,.but managed to walk small distances. Everyone told me it probably wasnt broke (mistake no#1,.don't listen to people who are not drs. )
I ended up going on vacation the following week to see mom. Durring that week I started to get feelings of cold water being poured onto my foot. Upon returning I made an appt and saw my dr. who dismissed my feelings of cold water on my foot. He said my foot probably was not broken because I was walking on it,.even though I still had a major swell a little off to the side of my foot. He told me to give it a few weeks,.he told me 6 weeks was typical. He told me rst and put warm on it. Well I have to young boys and that was not an easy thing to ,.still isnt.
As I started to do more and the swelling going down more,.I of course walked more. when I walked any lenghty time it started the pins and needles/electric feelings,.started in the injured leg and moved to the other leg also. That scared me and I made an appt to go back to the dr. He still dismissed my injury and said he would do blood work on me to see if I had diabettes or a thyroid issue. I asked him about the swolling that still remained,.he said it was probably a ganglion cyst and asked if I wanted to see a podiatrists. I said sure. SO I was to wait 2 weeks for that appt.
In the mean time waiting for results the dr. called and told me everything looked fine but I was a little low in vitamin d. Im thinking whoa what does that mean? He said no big deal he has been seeing alot of lately for my age and being michigan. I told him I had vitamin d allready at home. He said I could take that or he could prescribe me some. So i go and get the prescription. It was 50,000units 1.25mg to be taken once a week. I took the first pill and 2 hours later I could feel my teeth tingling. It seemed to enhance every nerve in my body. At this point I am not seeing any connection with the pills I thought maybe it was just working on my bones. But then I started to get all the side effects extremely tired, dry mouth, thirsty,the tingly teeth. About 4 days into it (yes taking just one pill) I started to get anxiety and rapid heartbeat etc. at this point it seemed the neuropathy had branched all over my body. The tipping point was when I took a bite of ice cream and the side of my cheek went numb. It lasted a good 15 seconds or so,.enough to scare me to death and make me start sweating and go lay down.
SO after finding out all the side effects when I went to vitamind org,.I have stopped eating any foods with vitamin d and staying away from calcium and staying out of the sun. I had called the hotline on my script and the lady said no way was what I was experiencing anything to do with the vitamin d!
I think it was because all I have been reading about is how good vitamin d is for your nerves! am I correct in this thinking?
If anyone is reading this I would like to say thanks at this point it has been 2 months and I need to vent,.Lord knows my family is sick of it.
Another question I have is if a person has neuropathy from something other than a pinched nerve? Do they get neuropathy the same way I described what I am going through ,.the more you walk or drive the more the tingling comes into play? Just curious I think my mind is running away from me. I just cant wait til a dr takes and xray or mri or whatever so I can know what is happening to me. I am misserable.
betsey2u is offline   Reply With QuoteReply With Quote

advertisement
Old 08-18-2012, 08:14 PM #2
Aussie99's Avatar
Aussie99 Aussie99 is offline
Member
 
Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
Aussie99 Aussie99 is offline
Member
Aussie99's Avatar
 
Join Date: Aug 2006
Location: Australia
Posts: 933
15 yr Member
Default I empathise

All I can say is that this past March I went to see my endocrinologist. I already have Graves disease and neuropathy and a bad back. She also put me on a high Dose of D3 and within 2/3 days the nerves went haywire. I have since blamed the D for my massive exacerbation, which finally abated immediately after stopping the D. I think the connection could be with the inability to metabolize the D rather than a direct toxicity. Just read up on Phase 1 and phase 2 detoxification in the liver.

Best of luck
Aussie99 is offline   Reply With QuoteReply With Quote
Old 08-18-2012, 11:13 PM #3
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
Default

Thanks I will do that. I have a feeling my nutrients must be a mess. I even wonder if I am low in magnesium. Normally I take super stress b complex vitamins ,.not always on a daily basis and they have so many different things in there but no magnesium whatsoever. Then I looked up what foods have magnesium in them and I rarely eat those foods. For now I am just going to stop taking vitamins. I dont even know what was exactly looked at as far as nutrients go on the cbc my dr. did. I will look into what you have mentioned about detox. Hopeing it is somewhere on this forum?
betsey2u is offline   Reply With QuoteReply With Quote
Old 08-20-2012, 05:28 AM #4
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
Default

I am up early unable to sleep nervous about my appt. today.
I did have a thought about the vitamin d2 I read somewhere that it is a steroid hormone. I cant take steroids,.I wonder if that may be the reason for my reaction. ANd if it really is a steroid why would my doctor give me that if he knows I cannot take steroids.
betsey2u is offline   Reply With QuoteReply With Quote
Old 08-20-2012, 10:21 AM #5
Dr. Smith's Avatar
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Dr. Smith Dr. Smith is offline
Senior Member (**Dr Smith is named after a character from Lost in Space, not a medical doctor)
Dr. Smith's Avatar
 
Join Date: Oct 2010
Location: Lost in Space
Posts: 3,515
10 yr Member
Default

There are different kinds of steroids. Many are produced naturally in the body, and necessary for biologic functions.

Some people do have a sensitivity to vitamin D, so supplementation can be tricky. I've read lots about that in the past day or two, but as I was looking for something else, I didn't really note the specifics. At the time I was reading about differences between D2 & D3, if that helps any...

Doc
__________________
Dr. Zachary Smith
Oh, the pain... THE PAIN...

Dr. Smith is NOT a medical doctor. He was a character from LOST IN SPACE.
All opinions expressed are my own. For medical advice/opinion, consult your doctor.
Dr. Smith is offline   Reply With QuoteReply With Quote
Old 08-24-2012, 07:29 AM #6
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
Default

well I went to the ortho,.he xrayed my foot and saw my injury he said it is healing fine. After a bunch of questions he xrayed my spine,.he said it looked good, straight and evenly spaced. At this point I was scared of what he might xray next! But he said it seemed that I have mononeuropathy and gave me muscle relaxers and gave me a script for physical therapy 3x a week for 4-6 weeks. What bites is I have a 2,500 deductable that needs to be met first. I just hope this is reversable. My husband thinks I should just go to therapy a couple times then figure it out and do therapy myself at home. I dont think he has a clue whatsoever.
betsey2u is offline   Reply With QuoteReply With Quote
Old 08-27-2012, 05:16 AM #7
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Vitamin D2 given on RX really does not work well. New studies show it is 87% less effective than OTC D3 forms.

I'd try epsom salt soaks for that foot. Often there can be low magnesium present which upsets calcium metabolism as well.

Do you know your actual D3 test numbers? This would help you dose yourself properly to bring up low readings.
The general guideline is 1000IU of D3 for every 10 points needed for raise. This varies however from person to person. People with more fat on their bodies may need more.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Old 08-27-2012, 09:58 PM #8
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
Default

I was thinking about calcium and magnesium also,.but wouldnt a doctor check that out before prescribing vitamin d2 for thier patient? He said it was a little low,.so no I dont know what the reading was on my vitamin d level. I figured I was just a little low from not spending much time in the sun,.partially due to my injury but also we have had wicked high temperatures. Normally I spend atleast 20 minutes a day or more in the sun.
betsey2u is offline   Reply With QuoteReply With Quote
Old 08-28-2012, 12:33 AM #9
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

Please read this thread of gathered information about Vit D.
http://neurotalk.psychcentral.com/thread92116.html

Vitamin D2 is an old old product and it has been found in studies to not be very efficient in helping raise D serum levels.
Here is a good explanation as to why D2 should no longer be
used:
http://www.ajcn.org/content/84/4/694.full



There are many bones in the foot. You can break them easily if your body is not getting enough calcium absorbed from food (which is one of the basic functions of Vit D-- to aid calcium absorption). If you are low in magnesium, bones tend to be inferior in strength too.

You can tear or strain tendons in the foot and ankle too.
Was your foot X-rayed? Did you see a good podiatrist yet?

Some people develop a chronic pain condition affecting the sympathetic nervous system from injuries to the body, and the ankle is a common site.
This is called RSD (also a newer name--CRPS) and can become severe, with color changes and pain spread to other areas.

We have an RSD forum here:
http://neurotalk.psychcentral.com/fo...aysprune=&f=21
You can post there with your questions, and perhaps take a picture to illustrate your foot, on their photo thread. I hope your issue is NOT RSD... sometimes it can take several doctors to confirm if it is present.

On vacation this summer a friend of ours at our summer home,
twisted her ankle and even with an Xray, it was misdiagnosed and it remained swollen and problematic. Turns out she had broken 3 metatarsal bones, and ended up in a cast for several weeks.

I think you should see a good podiatrist.

Vitamin D is not exactly for nerve pain specifically. However, when low it impacts many aspects of the immune system, bone metabolism and general health. Some studies show it may help with chronic pain patients to lower pain perception. It is being found that many people in US are low in Vit D levels. So doctors are testing for it. However, they still rather remain clueless and continue with the OLD D2, when D3 would be a much better choice.

In the meantime, soaking in epsom salts mixed in lukewarm water may help with swelling. They provide magnesium which is absorbed directly thru the skin.



Quote:
Originally Posted by betsey2u View Post
I was thinking about calcium and magnesium also,.but wouldnt a doctor check that out before prescribing vitamin d2 for thier patient? He said it was a little low,.so no I dont know what the reading was on my vitamin d level. I figured I was just a little low from not spending much time in the sun,.partially due to my injury but also we have had wicked high temperatures. Normally I spend atleast 20 minutes a day or more in the sun.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Kitt (08-28-2012)
Old 08-28-2012, 10:58 AM #10
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
betsey2u betsey2u is offline
Junior Member
 
Join Date: Aug 2012
Posts: 17
10 yr Member
Default

I saw an orthapedic first thing they did was xray my foot since the dr. I saw the first two times with my complaint did not do so. They took 3 xrays and the ortho guy showed where my injury was and said looks to be two months old,.so I figure in the way he said it that it is healed now. I hit high on the top of my foot. It isnt as swollen cept a tendon on the side that he told me may take another month for that to come down.
Most of the pain I am experiencing is the neuropathy. Seems I cannot walk very long til it kicks in. (or sit to long for that matter) Seems when I do stretches and some exercises I found on a website for physical therapy I can actually get the neuropathy out of my feet,.but it seems to remain in the area between my knees and butt. Not sure how to stretch that area very well. Also if I streatch real high it eases off,.but then it comes back again. If I am laying down I am fine and dandy lol. go figure. I have been getting dull pain on the upper mid left side of my back off and on and wonder if maybe that is the pinched nerve doing.
If I take the meds he gave me cyclobenzaprine it seems to help a great deal,.but I sure can tell when it wears off,..specially if I have gone beyond my limits! (not even sure what my limit is). I am suppose to take three times a day but I usually only take once or twice a day. I dont want to rely on these pills,.but maybe I am suppose to? I wonder if they help in anyway besides the pain? all I know is I want my life back wha wha wha
I will read the links you gave me because I am sure there is some connection with the vitamins and this. I am hesitant to go back to my original dr. who prescribed the vitamin d.
betsey2u is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Vaccine injury and Peripheral Neuropathy: mrsD PN Tips, Resources, Supplements & Other Treatments 24 02-15-2015 09:30 AM
post-injury neuropathy vs tos/rsi vs ms mspennyloafer Thoracic Outlet Syndrome 7 08-13-2012 09:07 AM
Need some help from vets or anyone else. Peripheral neuropathy due to injury john1960 Peripheral Neuropathy 7 04-15-2011 11:39 AM
How much b12 for injury related neuropathy? john1960 Peripheral Neuropathy 3 04-02-2011 04:36 AM
Injury resulting in neuropathy fadedone Peripheral Neuropathy 8 06-26-2010 11:27 PM


All times are GMT -5. The time now is 06:01 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.