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Old 08-24-2012, 09:09 AM #1
colin jones colin jones is offline
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Default Distal Symmetric Polyneuropathy

Hello, my name is Colin; I'm 50 years old. I live in Preston, Lancashire and I have suffered from this condition for over 14 years now. The issues originated in my feet and proceeded to spread to my legs, that now uncontrollably jump/shake. It then spread into my arms and hands.

I had a bad fall five weeks ago and was taken into hospital where I was told that the condition had spread to my head. As a result I now suffer from severe headaches, which I very rarely suffered from in the past and which medication doesn't seem to aid effectively.

Is there anyone else on here suffering from this? If so, what are your experiences with it?

Thanks.
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Old 08-24-2012, 11:25 AM #2
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FlyingSquirrel FlyingSquirrel is offline
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Originally Posted by colin jones View Post
Hello, my name is Colin; I'm 50 years old. I live in Preston, Lancashire and I have suffered from this condition for over 14 years now. The issues originated in my feet and proceeded to spread to my legs, that now uncontrollably jump/shake. It then spread into my arms and hands.

I had a bad fall five weeks ago and was taken into hospital where I was told that the condition had spread to my head. As a result I now suffer from severe headaches, which I very rarely suffered from in the past and which medication doesn't seem to aid effectively.

Is there anyone else on here suffering from this? If so, what are your experiences with it?

Thanks.
Colin--I'm so sorry. I have had neuropathy for 3 years (just officially diagnosed this year, due to no insurance) that started in my feet (soles only) and has spread up my legs causing pain, burning and muscle weakness. My arms are just starting to have problems with weakness and some tingling. I have foot drop and balance problems as well. I fell down a flight of stairs last year and broke my leg in 3 places, which just made everything progress faster. I have tried Lyrica (made me too dizzy), opiods (made me care less about the pain, but didn't diminish it) and now I'm just taking OTC supplements and trying to eat a healthy diet. I wish I had something for you. This is a horrible condition.
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