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Old 08-27-2012, 09:51 AM #1
doublewammy doublewammy is offline
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Join Date: Aug 2012
Posts: 4
10 yr Member
doublewammy doublewammy is offline
New Member
 
Join Date: Aug 2012
Posts: 4
10 yr Member
Default newbie

It's difficult to post, because as I am sure many of you felt posting the first time, I don't want to be here! I definetly have pn Neuropathy. I haven't had all the test for autonomic, but there is no doubt in my mind that is what I have. Disgestive issues,get burning hot, but don't sweat. My blood pressure is elevated after being stable for years. Still hoping for a miracle that it is not autonomic. I have been lurking for several days, reading many of the post. I was just wondering how many on here have autonomic and what functions are affected. Also, how bad does it get? My neuro. told me it would get worse. Just wondering how much. I read a lot about the pain. Right now I have numbness, tingling, pain etc. in both legs mostly up to my knees, but sometimes further. I have it in both hands and arms and some on the left side of my face. What degree of balance problems do you have? How long did it take to progress? Do the balance problems change as pain levels can from day to day? Now a little about me. I am an almost 50 year old woman. I am married and have 2 girls (16&10) I had a kidney transplant in 1999. I have been doing great with no problems up until now. I was active, exercised daily and was in great shape. I can't believe how fast I started feeling crappy. My labs for my kidney function are still good, but I fear if my body's ability to control my blood pressure is compromised, I will loose this kidney. I am panicked and scared beyond words. Thanks for listening.
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