advertisement
Reply
 
Thread Tools Display Modes
Old 10-16-2019, 07:37 PM #311
bacc bacc is offline
Junior Member
 
Join Date: Oct 2019
Posts: 10
3 yr Member
bacc bacc is offline
Junior Member
 
Join Date: Oct 2019
Posts: 10
3 yr Member
Default Results came in, very nervous

Hey all, so things aren’t looking very good for me. I got some lab work done a couple of weeks ago and just got the results from my doctor. My ANA (antinuclear antibody) test came back positive, which means that I may have an autoimmune disease. Did any of you guys test positive for this and have any advice regarding this? Could this possibly be related to the antibodies from the vaccine? I am very scared now and am thinking the worst. The doctor wants to retest me, but at this point, I don’t know how I will cope with the anxiety of having to wait to see what is wrong with me. this is terrible since I felt like I was starting to learn how to deal with the weird symptoms. Now this.. :/
bacc is offline   Reply With QuoteReply With Quote

advertisement
Old 10-17-2019, 10:36 AM #312
Batbite24 Batbite24 is offline
Member
 
Join Date: Jun 2017
Posts: 114
5 yr Member
Batbite24 Batbite24 is offline
Member
 
Join Date: Jun 2017
Posts: 114
5 yr Member
Default

bacc, your doctor is probably trying to rule out other reasons for your neuro symptoms. My ANA came back negative. There are other reasons for a positive ANA; false positive, medications, even street drugs. That is why the doctor wants a re-test at some point. Hang in there and the next time you see the doctor have a list of questions ready. If by chance you do have another autoimmune problem unrelated to the rabies vaccine, that would be hard news to take, but at least you would know about it and be able to take care of it. Again, I'm no expert, but a reliable website I visited stated that all autoimmune diseases detected via ANA are treatable. It's a lot to deal with. Stay strong. When you have those moments of dark anxiety, don't be hard on yourself, be kind and patient.
Batbite24 is offline   Reply With QuoteReply With Quote
Old 10-17-2019, 09:11 PM #313
Tobius Tobius is offline
Junior Member
 
Join Date: Oct 2019
Posts: 27
3 yr Member
Tobius Tobius is offline
Junior Member
 
Join Date: Oct 2019
Posts: 27
3 yr Member
Default Flare

Okay the pain in my left thigh returned this morning its not painful enough to ruin my day but its there and I might be having some perceptive weakness on my left leg . I can't wait to earn some big money and fund some big research on microbial genetics , Microbiology and co .

Bacc I havent gone to test my status as I am still under medication . I hope its nothing serious and that you recover well . I will be praying for you 🙏 .
Tobius is offline   Reply With QuoteReply With Quote
Old 10-18-2019, 10:49 AM #314
bacc bacc is offline
Junior Member
 
Join Date: Oct 2019
Posts: 10
3 yr Member
bacc bacc is offline
Junior Member
 
Join Date: Oct 2019
Posts: 10
3 yr Member
Default

Hey tobius! Thank you for opening up in the last post. I’ve been feeling very similar, randomly crying, beating myself up for not taking better care of my body and feeling as though I have let my mother down [i am very close to her and she always worries so much about me]
It’s a confusing position to be in because I sometimes beat myself up for being so anxious and getting so many shots, but I also know that my anxiety would have been even worse if I hadn’t taken them at all. Like batbite has described before, the neurological symptoms may be temporary, but rabies is a death sentence. It’s crazy how quickly your world can change. If anything, this experience is teaching me not to take my life for granted. I just hope that we both recover well like @Batbite.

Also, I’m experiencing similar symptoms as you. I also feel a perceived numbness in my lower left leg. Like when I touch it, I can feel every sensation and I can move it just fine, but when it’s resting, it just feels kind of odd.. like a little numb and heavy. I don’t know how to explain it. By any chance, do you feel the pain on the side of your body where you got the shot? I feel pain on my left leg and It’s kind of weird because I also got the shots on my left arm.

I have also started to feel some pain on my left knee. I hope this is because I worked out for the first time in forever 3 days ago. For me, the most annoying symptom is the phantom water drops out of nowhere. I feel like water is falling on random parts of my body at times, but when I touch, there’s nothing there. It’s really annoying.

Thank you both so much for your warm thoughts! I will keep you all updated. I hope the results were just a false positive
bacc is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Tobius (11-12-2019)
Old 10-18-2019, 03:28 PM #315
Tobius Tobius is offline
Junior Member
 
Join Date: Oct 2019
Posts: 27
3 yr Member
Tobius Tobius is offline
Junior Member
 
Join Date: Oct 2019
Posts: 27
3 yr Member
Default

Quote:
Originally Posted by bacc View Post
Hey tobius! Thank you for opening up in the last post. I’ve been feeling very similar, randomly crying, beating myself up for not taking better care of my body and feeling as though I have let my mother down [i am very close to her and she always worries so much about me]
It’s a confusing position to be in because I sometimes beat myself up for being so anxious and getting so many shots, but I also know that my anxiety would have been even worse if I hadn’t taken them at all. Like batbite has described before, the neurological symptoms may be temporary, but rabies is a death sentence. It’s crazy how quickly your world can change. If anything, this experience is teaching me not to take my life for granted. I just hope that we both recover well like @Batbite.

Also, I’m experiencing similar symptoms as you. I also feel a perceived numbness in my lower left leg. Like when I touch it, I can feel every sensation and I can move it just fine, but when it’s resting, it just feels kind of odd.. like a little numb and heavy. I don’t know how to explain it. By any chance, do you feel the pain on the side of your body where you got the shot? I feel pain on my left leg and It’s kind of weird because I also got the shots on my left arm.

I have also started to feel some pain on my left knee. I hope this is because I worked out for the first time in forever 3 days ago. For me, the most annoying symptom is the phantom water drops out of nowhere. I feel like water is falling on random parts of my body at times, but when I touch, there’s nothing there. It’s really annoying.

Thank you both so much for your warm thoughts! I will keep you all updated. I hope the results were just a false positive
Yeah My left side is weak , I experience the water droplet thingy for about 3 days or so but it went away and yes all my problems are on the left side . I also had some lung infection during the whole vaccination thing and I read somewhere this can lead to arthritis in some scenarios but after seeing those many doctors who are 100% confident I dont have rabies it doesnt really bother me anymore but panic attacks are still there especially when I woke up my left arm feels kinda dead , my elbow and left knee are wonky they kinda hurt too , and the muscles are just the same including my left hip . If it persist there is an ana test center near the pg Im staying in so might go there for a test and or see an ortho Doctor.

What you are describing is quite similar to my experience so I might put the ana test a bit higher in my priority list .

It could be rabies never leave this thought and try to find peace against all odds , it works for me after a month of struggling through the insomnia , the anxiety and the pain . You can do it too .

It sounds like Im bragging now peace out and Batbite again I cant thank you enough Shana Tova Brother
Tobius is offline   Reply With QuoteReply With Quote
Old 10-18-2019, 06:22 PM #316
kiwi33's Avatar
kiwi33 kiwi33 is offline
Grand Magnate
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
kiwi33 kiwi33 is offline
Grand Magnate
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 3,093
8 yr Member
Default

Quote:
Originally Posted by bacc View Post
My ANA (antinuclear antibody) test came back positive, which means that I may have an autoimmune disease.
There are two parts to an ANA test.

The first, usually from an ELISA (an immunoassay), is measuring the level of ANA as a titre; the higher the titre the more ANA are present in your blood.

The second is observing the staining pattern of those ANA in cell nuclei. Terms like "speckled" or "nucleolar" are used to describe this.

Both false-positive and false-negative ANA test results are known. Because of this they are best regarded as confirmatory rather than diagnostic of an autoimmune disease.

The information in this link may help you with this.

RACGP - Antinuclear antibody test
__________________
Knowledge is power.
kiwi33 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Batbite24 (10-21-2019)
Old 10-19-2019, 11:17 AM #317
ARose ARose is offline
Junior Member
 
Join Date: Oct 2019
Posts: 7
3 yr Member
ARose ARose is offline
Junior Member
 
Join Date: Oct 2019
Posts: 7
3 yr Member
Default

Posting for my wife as we are 3 weeks in post rabies vaccine with similar side effects to what I’ve read here and no end in sight.

She is experiencing nerve/muscle fasiculations all over her body that began in her foot and slowly worked up her body which include headaches, ear tenitis, back pain and major anxiety. The worst part is she is an ER Nurse practitioner so knowing too much is not always a good thing...especially for anxiousness. We’re out of Houston and after seeing a few Neurologists and other doctors, nothing conclusive other than wait and see..

All that being said anything that you all have done to minimize symptoms or help with sleep? From what I’ve read in this thread thus far the b12 has seemed to help in addition to sparkling water. These have helped minimally but once we think these nerve issues are gone for good they pop right back up so any advice/assistance would be comforting.
ARose is offline   Reply With QuoteReply With Quote
Old 10-20-2019, 02:16 PM #318
Tobius Tobius is offline
Junior Member
 
Join Date: Oct 2019
Posts: 27
3 yr Member
Tobius Tobius is offline
Junior Member
 
Join Date: Oct 2019
Posts: 27
3 yr Member
Default Hello Arose + update on my status

Quote:
Originally Posted by ARose View Post
Posting for my wife as we are 3 weeks in post rabies vaccine with similar side effects to what I’ve read here and no end in sight.

She is experiencing nerve/muscle fasiculations all over her body that began in her foot and slowly worked up her body which include headaches, ear tenitis, back pain and major anxiety. The worst part is she is an ER Nurse practitioner so knowing too much is not always a good thing...especially for anxiousness. We’re out of Houston and after seeing a few Neurologists and other doctors, nothing conclusive other than wait and see..

All that being said anything that you all have done to minimize symptoms or help with sleep? From what I’ve read in this thread thus far the b12 has seemed to help in addition to sparkling water. These have helped minimally but once we think these nerve issues are gone for good they pop right back up so any advice/assistance would be comforting.
Hey Arose welcome
Sorry to hear about your wife . The part where you say knowing too much can be problematic is indeed true , when the first few symptoms kicked in I was anxious read through google stuff over and over again which didnt help much only made my condition worst . And the supplementation or medication in this case Magnesium and B12 is indeed helpful Ive had them and really helped me . Back pain flares up randomly on my left side from time to time I dont pay attention to it anymore . You being there with her is also really cool , keep it up man 🙏 aside from these few stuff I have nothing else to add I am sorry I cant do more for you . Hope your wife recovers soon will be praying for her .


After 2 weeks of medication my condition improved the throbbing in my left leg is reduced by a lot its still there but its negligible and the pain in elbow is also going down but carpel tunnel like pain in my left hand is still there . And the worst part is insomnia a miss class on a regular basis these days but this too shall pass I guess . Apart from these its all cool now anxiety is gone and sometimes I forgot about them . Thanks everyone 🙏
Tobius is offline   Reply With QuoteReply With Quote
Old 10-21-2019, 08:07 AM #319
Batbite24 Batbite24 is offline
Member
 
Join Date: Jun 2017
Posts: 114
5 yr Member
Batbite24 Batbite24 is offline
Member
 
Join Date: Jun 2017
Posts: 114
5 yr Member
Default Thanks

Thanks to all who have opened up and are currently posting here. It is so great when human beings open up in order to help one another. The left-sidedness of so many symptoms is not unusual. I don't know why. My bites were in my right hand. First round of shots were; HRIG right deltoid, right and left thigh; Imovax left deltoid. The remaining three Imovax shots were; right deltoid, left deltoid, right deltoid. Although there were symptoms on both sides of my body at random times, the major pain and difficulty with movement were in the left pelvis and leg. I don't know what the significance is, but even dogs that react badly to rabies vaccine tend to have left hind leg paralysis.
Batbite24 is offline   Reply With QuoteReply With Quote
Old 10-22-2019, 02:12 PM #320
bacc bacc is offline
Junior Member
 
Join Date: Oct 2019
Posts: 10
3 yr Member
bacc bacc is offline
Junior Member
 
Join Date: Oct 2019
Posts: 10
3 yr Member
Default

Quote:
Originally Posted by ARose View Post
Posting for my wife as we are 3 weeks in post rabies vaccine with similar side effects to what I’ve read here and no end in sight.

She is experiencing nerve/muscle fasiculations all over her body that began in her foot and slowly worked up her body which include headaches, ear tenitis, back pain and major anxiety. The worst part is she is an ER Nurse practitioner so knowing too much is not always a good thing...especially for anxiousness. We’re out of Houston and after seeing a few Neurologists and other doctors, nothing conclusive other than wait and see..

All that being said anything that you all have done to minimize symptoms or help with sleep? From what I’ve read in this thread thus far the b12 has seemed to help in addition to sparkling water. These have helped minimally but once we think these nerve issues are gone for good they pop right back up so any advice/assistance would be comforting.
Welcome! Based on my experience, I would suggest staying as active as possible. Has she continued to work? I notice that my symptoms, both physical and mental, are worse when I spend all day inside, just sitting or laying down. My anxiety, tingling, and twitching are worse when I do that. I would also suggest maybe getting on some anxiety medication. It has really helped with sleep and just feeling more fresh and alert during the day. @Tobius, I would also really recommend anxiety medication for you since I see you are struggling with insomnia. I am taking hydroxyzine, which is supposed to not be very strong, but it does the trick.
bacc is offline   Reply With QuoteReply With Quote
Reply

Tags
aches & pains, jaw pain, numbness, peripheral neuropathy, tingling

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Vaccine injury and Peripheral Neuropathy: mrsD PN Tips, Resources, Supplements & Other Treatments 24 02-15-2015 09:30 AM
Post vaccine neuropathy Liftyourhands7 Peripheral Neuropathy 7 12-16-2014 09:00 PM
Adverse effects from rabies vaccine? Tom5C Parkinson's Disease 2 12-07-2014 09:36 AM
rabies vaccine and nerve system HopeHunter General Health Conditions & Rare Disorders 0 08-15-2008 03:41 PM


All times are GMT -5. The time now is 02:50 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.