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Old 12-12-2014, 10:55 AM #1
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mrsD mrsD is offline
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Alberta, you need to understand something. Most PNs are chronic and long lasting. I've had mine since I was 30 and I am now 68. At my age now my arthritis is far more disabling than the PN. Much of my PN was due to hypothyroidism initially.

Not many people progress dramatically. The hereditary ones (Charcot Marie Tooth) are the worst IMO.

Testing for GBS is not very accurate and may include a spinal tap. In the end it is a doctor's opinion whether you have it or not, based on your symptom presentation.

When people get stressed and anxious, there can be changes in the acid/base content of the blood. This is the pH changes.
The body buffers acids and bases to keep them in a 7 neutral range, but hyperventilating or consuming lots of bicarbonate can cause changes in the blood and this results in paresthesias.,
like the tingling you experience. These may come and go and depend on your blood chemistries at various times. These paresthesias may not be real PN but just mimic it.

Keeping calm, avoiding hyperventilating during anxiety, therefore is very important to stabilizing things. Knowledge is power and learning about how your nerves work, and how your body heals is what I try to share with posters here so they can learn and reduce fear and anxiety and therefore become more
in control.

So make sure you read the links I share here. You may have to read them more than once. Do a little bit each day. Doctors will never help you this way...they keep their secrets as a power thing. You will learn that many times doctors will do more grief than you started with. So it is important to do the learning curve so you can choose whether to do a specific invasive test or treatment or not.
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Old 12-12-2014, 11:51 AM #2
Albertakewl Albertakewl is offline
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Quote:
Originally Posted by mrsD View Post
Alberta, you need to understand something. Most PNs are chronic and long lasting. I've had mine since I was 30 and I am now 68. At my age now my arthritis is far more disabling than the PN. Much of my PN was due to hypothyroidism initially.

Not many people progress dramatically. The hereditary ones (Charcot Marie Tooth) are the worst IMO.

Testing for GBS is not very accurate and may include a spinal tap. In the end it is a doctor's opinion whether you have it or not, based on your symptom presentation.

When people get stressed and anxious, there can be changes in the acid/base content of the blood. This is the pH changes.
The body buffers acids and bases to keep them in a 7 neutral range, but hyperventilating or consuming lots of bicarbonate can cause changes in the blood and this results in paresthesias.,
like the tingling you experience. These may come and go and depend on your blood chemistries at various times. These paresthesias may not be real PN but just mimic it.

Keeping calm, avoiding hyperventilating during anxiety, therefore is very important to stabilizing things. Knowledge is power and learning about how your nerves work, and how your body heals is what I try to share with posters here so they can learn and reduce fear and anxiety and therefore become more
in control.

So make sure you read the links I share here. You may have to read them more than once. Do a little bit each day. Doctors will never help you this way...they keep their secrets as a power thing. You will learn that many times doctors will do more grief than you started with. So it is important to do the learning curve so you can choose whether to do a specific invasive test or treatment or not.
I'm trying to learn as much as possible and I thank you guys so much for help me with this.. Because drs hasn't. They are investigating. I just wanna no that I'll be okay.. And learn no more about this problem.. Iam having a hard time
Understanding ..
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Old 12-14-2014, 12:44 PM #3
Albertakewl Albertakewl is offline
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Come to think of it. Which I found very weird was my need to urinate more ore get to the bathroom faster . I notice that with transverse myelitis .... I rebooked at some links. Interesting. And same with my blurred eye. I will ring up the dr on Monday and mention it.

Is it possible that I could stay in touch with you guys some how?
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Old 12-28-2023, 05:18 AM #4
Regretful123 Regretful123 is offline
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I am 5 days post vaccination. I am regretful for getting it. There was a bat in my house and I had an unexplained bite/itch so I precautionary took the first shot. No one else chose to thank God because I feel terrible. Headache. Dizzinessness. Off balance. Hot flashes. Fast heart rate . No appetite. Tingly arms. Felt like currents going through my upper torso the first three days. My arms feel heavy and weak... but not weak as if I can't move them.

I notice the calmer I am. The more distracted I am. The better I feel but I know this isn't anxiety. I have managed anxiety all my life... this isn't it. I went to urgent care and they did a neuro test and blood work. All looks good. They referred me to a disease specialist.

We did catch the bat. Put it in for rabies testing and nada. No rabies. So I did this for nothing. I am really feeling shameful and having dark thoughts.

I guess at least I don't have to continue the shots. Please tell me it gets better. The only symptoms today is periodic dizziness and balance issues. High heart beat. Hot flashes and tingly arms and hands. Oh and a massiv3 headache but the whole family is sick so I can't rule out that.
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