I have had both muscle jerks/twitches (myoclonus) and muscle spasms (the muscles contracting for a period of time, not jerking or twitching.) The myoclonus mostly happened as I would drift off to sleep, that time between wakefulness and sleep, but would also sometimes occur when awake (as with the muscles on the front of my neck.) The muscle spasms would occur along with the nocturnal siezures (I would wake from a sound sleep with pretty much all of my muscles tightening and shortening, whole body shaking/vibrating, jaw muscles clenching down, urinary urgency/incontinence...sometimes I would make it to the bathroom in time, sometimes not.) These were not Grand Mal siezures where you wake up in a pool of urine and don't know what happened or can't remember the event. I always woke up when the muscles began to spasm and was aware of the whole event. It's all happening less and less as time goes on...still journaling everything in a small book. I dog ear the pages where I've had a major event so it's easier to look back and see how I'm progressing. There were also times when my fine muscle coordination was really bad, had a difficult time writing...that also shows in the journal.

This is a lot like my symptoms, especially the stiff hands. Every day when I wake up I think, well, I'm another day further removed from this. Hopefully getting better and better.
This terribleness has really opened my eyes and made me re-evaluate my whole life. This disease as I call it has affected not only my health but my mental well being and my relationships, not to mention my money.
I don't care about any of this anymore except being healthy. All the dumb crap I used to worry about was so meaningless and I foolishly took everything for granted in my life. Never will I again
If we can get through this we can get through anything

Hi Batbite,
Just wondered where you are and how you are this week?
Talk soon I hope

Hello, trippin2! I seem to be having a really good string of days again. The last neuro problem I had was very mild siezure symptoms at about 2:00 A.M. eight days ago. I seem to be gaining more endurance, been exercising on the stationary bike 6 days a week, although by evening I'm still pretty tired. (That may have to do more with my age, 65.) The depression and brain fog haven't been a problem for awhile now, and I've regained interst in my hobbies. I'm about half way done making Christmas gifts for the women in the family. This may seem trivial, but it's not. At my worst post vaccine, I could not have even thought of doing much of anything...I was physically, mentally, emotionally and spiritually spent. For the moment, I'm thankful to be in a very good place. Hopefully I'll soon be able to join my husband and the dog on daily walks again. My legs are still not up to a lot of weight bearing exercise.

BatBite,
It's good to hear from you! I am so very glad you're doing great! Very happy to hear. Life takes on a whole new meaning
I have been having twitching but it's lessening. I have noticed my muscles are weakening and atrophying. Did this happen to you?
I have lost weight and don't move around very much, hope that's why.
Going for EMG next week to answer my question once and for all.

Have a good week, it's always so nice to hear from you.
Can't wait til the day we are ALL recovered and better than ever

I did have loss of muscle tone and some weight loss. I think it was from a couple of things; loss of appetite from worry, and just the whole weird neuro thing. The only way to describe it was like being psychologically paralyzed along with the physical pain and partial paralysis in my legs and all the other wierd symptoms, and not knowing what was going to go haywire next. I literally sat for months. I knew in my head it was important to keep moving and doing things, but I just couldn't...also was just so very low on energy. I managed to make nutritious meals, the laundry got done, and the bedding was changed every week, but other than that, the housework, gardening, anything else.....all went to hell in a hand basket literally for 5 months. I still don't feel that I'm back 100%, but I am far, far better than I was back in those dark days. Been keeping an eye on the weight, and I have gained back 5 pounds. Also hoping the best for everyone in this situation. It seems some are hit so much harder than others.

Hey guys, I am new to this group, but I am so glad that I found it! I am a 21 year old male and received the post exposure prophylaxis starting exactly 23 days ago (over 3 weeks ago). I was bitten by a rabid cat on my fingertip. I've spent the last 3 weeks absolutely paralyzed with anxiety and fear. Despite being told countless times by medical professionals and experts that I received the vaccine promptly and that I'll be completely fine, the anxiety is still lingering. This anxiety combined with vaccine reactions has definitely affected my life to the point of where I can't work because of fear that some little symptom will set off a panic attack.

It started with a headache and chills the morning after my Day 7 injection. That was followed by vomiting and diarrhea later in the morning. After that incident, I didn't have any more serious incidents. I got my Day 14 injection and I was good until about three to four days afterward. I started feeling tingling in my hands/fingers and toes. Then pain in my arms, mostly in the left arm(particularly on my elbow, wrist, and bicep area). The tingling has mostly gone away, but now I'm experiencing back pain. I'm currently researching to see if it might be related to the anxiety meds I've been put on.

Anyway, just wanted to share my story so far with this group. I'm really glad that I found it. It puts my mind at ease that I'm not alone in this and that rabies vaccine reactions are a very real thing. At least we can all get better together!

Hi Batbite,
So good to hear from you. Glad you're having a good week, you're coming up on a year mark, which I hear is the magic number for symptoms really just disappearing. I am over 4 months now. Twitching every day this month, sometimes more so than others. Getting EMG Wednesday. Heard it's very painful but permanent peace of mind (HOPEFULLY) will be worth the temporary pain and suffering
God Bless Us All
And any fellow rabies vaccine sufferers, please feel free to join in with us, we will be more than happy to answer anything or help