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Old 04-03-2018, 08:26 PM #271
trippin2 trippin2 is offline
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Default Back Again 😭

Well, after MANY MONTHS (8 exactly) of being symptom free and enjoying life, I have had a bad flare again

Muscle spasms, tingling, numbness in arms and tongue. All the old fears are coming back (MS, ALS) so rushing to neuro as fast as I can.

Two things I noticed- flare came back after I stopped working out for two weeks AND after I flew on an airplane. Not sure if this is a coincidence!

I will keep my head up and take care of business. Getting another MRI and also exam from my neuro

I was bitten exactly a year ago March 31 2017, a terrible year.

The one good thing that has come from all of this is it gave me the strength to get out of my abusive relationship I was in and make some good life changes

Bat bite, I’m thinking of you.
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Batbite24 (04-04-2018)

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Old 04-04-2018, 06:14 PM #272
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Default Thanks for the welcome!

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Originally Posted by Batbite24 View Post
Glad you found this community, and welcome to a small, exclusive group you never wanted to join. Take a deep breath, hope for the best, and realize that each person's experience may be a bit different. The great majority of us have come through and are much better. Improvement takes a long time, and sometimes things get worse before real improvement sets in. My bat bites were in the back and palm of my right hand, the tingling and burning began in the palms of both hands, and eventually the feet, it all has to do with the nerves being affected not so much by the bite as by the vaccine. I can't address your titer questions as I never had a titer done. Hopefully other veteran posters are still checking in and will contribute. The anxiety can be horrendous, and I think some of it is a natural response to a truly frightening situation, and some of it is neurological caused by the vaccine. Hope it doesn't get too bad for you. For me it was like riding out a hurricane in a rowboat, but that storm has passed. I'm now 15 months out and doing well. At this point I'd call it tiny setbacks and large improvements. I'm much stronger, less fatigued, and have only tiny little reminders of this whole experience when I really push myself very, very hard physically. Hang in there, and hopefully the course this runs with you will be mild. We're here for you.
Thanks for the welcome, Batbite! I've been doing better and am glad to hear that you're doing well. I saw a doctor who specializes in Infectious Diseases yesterday and he reminded me again of the effectiveness of the vaccines, which seemed to calm me down a lot more. He did say that the tingling sensations could be a result of anxiety. While I know most of us probably hate the idea that "it's all in our head", he did say something to the degree of - how you feel when you're stressed can cause the spinal cord to send signals down to your hands and fingers, resulting in the tingling.

Thanks again for the support and I'm hoping we all get through this!
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Old 04-05-2018, 07:43 AM #273
Batbite24 Batbite24 is offline
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trippin2, please let us know how you're doing. Hope the relapse/flare is mild and brief!
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Old 05-16-2018, 09:00 PM #274
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Default 16 months...

I seem to be on the same schedule as ATX_man...exactly 16 months out and I'm in agony from a flare up. Legs...So. Much. Pain. in the legs and they just don't want to move. Did 20 gentle minutes on the stationary bike, crying all the way, literally. So frustrated. I'm determined to get better or die trying. Thank goodness and the Good Lord it's only the legs and not the siezures et al. Thank goodness for all who have posted here.
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Old 06-04-2018, 07:08 AM #275
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Default Better

The flare lasted about 10 days. Much better again and working back to a higher activity level.
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Old 06-05-2018, 07:19 PM #276
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This is a fascinating thread. It proves that chemical poisoning (for whatever reasoning) can affect many people in a multitude of ways. I have always suspected that the allergy shots and prescription/over the counter drugs for over 40 years have contributed to my PN. But I know there will never be a way to prove it so it is what it is.

Batbite, your contribution here is essential and informative. Hang in there, keep fighting and get out an do as much physical activity as you can stand. So far that seems to really help me and my minor symptoms.
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Old 07-06-2018, 01:53 AM #277
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Default Oh no!

It's 1:45 A.M. 7/6/2018 as I write this. Neurological symptoms are back. Anxiety, insomnia, tight muscles all through body, shaking, feeling like I could be having a mild siezure again. Hope to post again later with some better news. Three days ago I took my first walk outside in 15 months, all the way around one block, with no problems with the legs. Not much, but for me...huge. Now this. It's so scary. I'm trying to be logical and reason this out...very hot weather, more physical exhertion, maybe I've released more neurotoxin from the vaccine from my tissues into my bloodstream and system. And of course, there's the nagging thought of vaccine failure and the virus finally reaching your brain. You begin to wonder if you will ever truly be rid of the lurking fears.
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Old 07-07-2018, 04:19 PM #278
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Default Sorry for "micro-posting" but

I'm an anxious mess again. I do tend to become anxious easily. Today I walked around the block again...made it, but the left leg was slightly problematic, not really bad. Tried to take a nap this afternoon, but the myoclonus is back too, and jerked me awake every time I began to drift off. Doing something I promised myself I wouldn't and looking up sites on rabies, rabies case studies, rabies incubation times.....on and on and on driving myself crazy. I keep coming back to the same conclusion; unless I develop a raging fever and encephalitis/meningitis symptoms, just keep plowing forward. If anything bad happens at this point, there's nothing to be done anyway...what a comforting thought that is! But at least it sets my psyche into "the only way is forward, don't let this paralyze you psychologically again" mode. This experience surely brings home the point of what a precious gift each day is. Today's date; 7/7/18. Again, so thankful for this forum.
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Old 07-08-2018, 07:56 PM #279
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Default Hang In There!

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Originally Posted by Batbite24 View Post
I'm an anxious mess again. I do tend to become anxious easily. Today I walked around the block again...made it, but the left leg was slightly problematic, not really bad. Tried to take a nap this afternoon, but the myoclonus is back too, and jerked me awake every time I began to drift off. Doing something I promised myself I wouldn't and looking up sites on rabies, rabies case studies, rabies incubation times.....on and on and on driving myself crazy. I keep coming back to the same conclusion; unless I develop a raging fever and encephalitis/meningitis symptoms, just keep plowing forward. If anything bad happens at this point, there's nothing to be done anyway...what a comforting thought that is! But at least it sets my psyche into "the only way is forward, don't let this paralyze you psychologically again" mode. This experience surely brings home the point of what a precious gift each day is. Today's date; 7/7/18. Again, so thankful for this forum.
@BatBite24, I sometimes get similar thoughts around long incubation periods, but I always think back to my doctor's words. He said the vaccines are 100% effective and they're conducted fairly often (with vets and people who've been bitten by confirmed rabid animals, getting them regularly and not developing rabies), so it's unlikely it was not effective. He also said that the vaccine prevents the virus from incubating, so it's not possible for the virus to be "dormant" and suddenly awaken after the vaccine titer levels in your blood go down. He specializes and has over 20 years of experience in Infectious Diseases and works at the UChicago Hospital, specifically in their Travel Clinic too, so he's a credible source! Hopefully this helps. If there's anything that takes your mind off of things, like reading or even watching a tv show, maybe that'll help calm you down during your anxious moments too! Will be praying and hoping the best for you!
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Old 07-12-2018, 10:37 AM #280
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Default Thank you!

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@BatBite24, I sometimes get similar thoughts around long incubation periods, but I always think back to my doctor's words. He said the vaccines are 100% effective and they're conducted fairly often (with vets and people who've been bitten by confirmed rabid animals, getting them regularly and not developing rabies), so it's unlikely it was not effective. He also said that the vaccine prevents the virus from incubating, so it's not possible for the virus to be "dormant" and suddenly awaken after the vaccine titer levels in your blood go down. He specializes and has over 20 years of experience in Infectious Diseases and works at the UChicago Hospital, specifically in their Travel Clinic too, so he's a credible source! Hopefully this helps. If there's anything that takes your mind off of things, like reading or even watching a tv show, maybe that'll help calm you down during your anxious moments too! Will be praying and hoping the best for you!
7/12/18 Hope21, thank you so very much for a compassionate and intelligent post. Saw my GP for my annual wellness check up on Monday, and received reassurances as well. I'm finding that, as many here have posted, exercise brings on flares of the symptoms. I've decided, however, not to slow it down with the exercise. I'm just beyond grateful and excited to have my leg function back. I can walk without pain or the odd partial paralysis gait. Yesterday I doubled my exercise time, and sure enough, 2:00 AM, and the old auditory hallucination type siezure woke me...heard the cell phone ringing again, and it wasn't. Didn't go into panic mode, just acknowledged that it was a flare incident and went back to sleep. Still some myoclonus occasionally as I fall asleep, nothing extreme. Thank you especially for your prayers. I too, pray for everyone everywhere whose lives have been touched by rabies or rabies vaccine reactions. This is one scourge that would be nice if it were eradicated from the face of the earth!
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