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Old 04-23-2020, 07:19 AM #1
Unbitten Unbitten is offline
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Nice to read that you are doing good. My case seems scary as of now. I have had mild loss of sensitivity on my limbs to a varying degree. There was occasional pins and needles and a constant worry that my limbs were weakening. I'm a 32 yr male of lean build. Muscles are just about minimum. A week after the last shot I noticed that I don't really 'feel' my muscles. I can control them and found no motor changes. And day before yesterday I found out that I'm not sweating enough. I live in Chennai and I used to sweat profusely. Now my arms and legs hardly do. My head and trunk seem to be doing better. I checked by standing in the afternoon sun for a while. I'm utterly scared. With no hospitals open and the lock out for covid19 I have no means of of getting tested. I consulted a neurologist online who suggested anxiety meds for 2 weeks. Came here hoping to find some answers.
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Old 04-23-2020, 08:39 PM #2
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Quote:
Originally Posted by Unbitten View Post
Nice to read that you are doing good. My case seems scary as of now. I have had mild loss of sensitivity on my limbs to a varying degree. There was occasional pins and needles and a constant worry that my limbs were weakening. I'm a 32 yr male of lean build. Muscles are just about minimum. A week after the last shot I noticed that I don't really 'feel' my muscles. I can control them and found no motor changes. And day before yesterday I found out that I'm not sweating enough. I live in Chennai and I used to sweat profusely. Now my arms and legs hardly do. My head and trunk seem to be doing better. I checked by standing in the afternoon sun for a while. I'm utterly scared. With no hospitals open and the lock out for covid19 I have no means of of getting tested. I consulted a neurologist online who suggested anxiety meds for 2 weeks. Came here hoping to find some answers.
Hi unbitten! It will get better. I’ve noticed that my sympathetic system gets out of wack sometimes; irregular heartbeat, fast heart rate at weird times but it’s not as intense now as it was 4 weeks ago. If the symptoms tend to come and go then you should be fine. Lots of us on here experiences perceived weakness and not real weakness to the point where you can’t grasp something or stand. I notice that my flares are worse at night and that makes sense because cortisol levels drop at night and a lot of the symptoms are caused by inflammation and cortisol suppressed inflammation. Anyway try to take it one day at time. It will probably get worse before it gets better but it will get better. Your flares will decrease as time goes on. It’s not all in your head and it’s not just anxiety.
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Old 04-26-2020, 08:01 PM #3
LakynBerringer90 LakynBerringer90 is offline
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Hello I'm not even sure if I'm doing this right but I'll give it a try.
3 days ago I may or may not have been scratched by a coyote pup my own stupid fault but anyways i have 2 young kids at home and after I help the darn thing I started freaking out. I help the pup in a thorn patch so I have no clue of it scratched me or not. My friend who was with me Insists it did not and it was just cut up by the thorn bushes but either way the pup laid on my arms that were cut open. The doctors say that if it cleaned itself before I picked it up I could be at risk and it's best to continue with the series. I had my second one today 4 26 2020 an hour after I had a racing heartbeat and I felt very warm no temp but felt very warm. I went back to the er I was told to expect side effects every vaccine has them well I then developed diarrhea I have crohns so I'm use to that well I started to have a feeling of numbness in my right foot and hand and now I have a prickly feeling too.... I'm freaking out and wondering if I should even get the other 2 vaccines.... this has be scared to death... advise please because idk what the heck to do
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Old 04-27-2020, 07:44 AM #4
Batbite24 Batbite24 is offline
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Hello LakynBerringer 90, glad you found us on this site, sorry for your current experiences. As Unbitten recently reminded us, broken skin and animal saliva = rabies risk. As unpleasant as your symptoms are, I'd follow the doctors advice and finish the series. Your Crohns complicates things for sure. Ask your doctors about the option of taking an antihistamine before your next injections, it is what got me through the series with my allergy problems. My heart goes out to each and every one who experiences these neurological side effects. It's hard. An awful choice between the side effects and rabies. I had a "mantra" of sorts going through 2 1/2 years of neurological hell, "Rabies is a death sentence." And there is so much to live for. This past March (2020) marked three years since I was hit with the worst of my symptoms, and I am fine, doing very well. The decision is yours, but I'd advise listening to your doctors.
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Old 04-27-2020, 10:02 AM #5
LakynBerringer90 LakynBerringer90 is offline
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Thank you for getting back to me. My PCP advised me to go threw with the last 2. I talked to her for a good 30 minutes today. She said if I do end up with GBS it's not a death sentence. The rabies on the other hand is. She said most people who had GBS have normal lives like 95 percent plus. I got an anxiety med too. It's just scares me I have an 8 year old and a 2 year old and I dont want them to be without a mother. I have never had a reaction to any vaccine before like this. I have got the flu vaccine for mang many years and nothing. I'm just so scared I go back for the 3rd one on the 30th. Plus i was told a week ago my crohns is attacking my vision just very stressed at the moment.... i want to live life is so beautiful. I love my kids they drive me crazy at times and I've said to myself I wish I could go back and change having kids but I dont mean it and I'm so terrified I may leave them without a mother or I may end up paralyzed... God help me is all I can say.... drinking my usual 1 gallon of water a day taking my normal vitamins.... and praying....
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Old 04-28-2020, 04:28 AM #6
LakynBerringer90 LakynBerringer90 is offline
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Batbite24 when the people you knew had GBS did their legs feel very heavy? I woke up at 330 with my husband and I had to get up at 430 so I just stayed awake. I felt fine when I woke up laying in bed no tingling no pins and needles but then idk I thought what is going on and I've been having a panic attack I think. It's now 530am.... idk I'm trying to be positive but its wearing off I'm thinking about getting the 3rd vaccine and stopping. This is absolutely terrible. I dont want to die....
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Old 04-28-2020, 09:07 AM #7
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No, it wasn't a matter of "heaviness" in the legs. It was very rapid total paralysis spreading from the feet to the head. Both literally fell down on their faces unable to stand and were brought to the ER just in time to be intubated. I don't think anyone on this forum had GBS as a complication from the rabies vaccine. One of the cases, my husband's cousin, had received the Swine Flu vaccine back in the day, the other was a young lady from our church about five years ago, and I have no idea whether her case was vaccine related or not. Pray, keep in touch with your doctor for making decisions, and let us know how you are doing please.

Re-reading your last post reminds me of some of my journal entries when I was going through it. Deep in the wee hours of the morning, sitting at the dining room table writing because I just didn't know what else to do. Insomnia and anxiety were definitely experienced by many of us.

Last edited by Batbite24; 04-28-2020 at 09:12 AM. Reason: Addition
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Old 04-27-2020, 10:34 AM #8
LakynBerringer90 LakynBerringer90 is offline
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I just feel like I'm waiting to die from all of this... like it's going to have a very bad outcome...
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Old 04-27-2020, 12:39 PM #9
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Wish I could give you a big hug. I have no idea how Crohns would factor in to this. Vaccines do mess with the immune system. Does your Dr. Know you drink a gallon of water a day? Do you watch your electrolytes? That's an awful lot of water. Please keep us posted here. I know the fear is an awful thing to deal with. I'll be keeping you and your family in prayer. I personally know two people who came through GBS and are now doing fine. One has just a small residual facial paralysis, and the other went on to have three healthy children (one set of twins!)

Last edited by Batbite24; 04-27-2020 at 12:42 PM. Reason: Addition
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Old 04-27-2020, 02:12 PM #10
LakynBerringer90 LakynBerringer90 is offline
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I go for my 3rd on the 30th. I will definitely write back. Like I said I talked to my PCP she told me to continue them unless with the next one stuff gets worse with my side effects but she said after the 3rd one i might be good? But she cant guarantee that like any doctor would say. She said after the first injection she had people quit. I want to try to continue i just hope these symptoms dont last. I want to be there for my kids. God do I love them. I have drank that much water for so long now. It helps me I feel. I had a blood clot behind my placenta with my son so I drank and drank and drank to try to get my body to absorb it and miraculously it did. Thank the good Lord. Have you heard of anyone having symptoms like this batbite24 and them being fine after the series was done?
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