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Old 05-07-2020, 05:12 PM #441
Batbite24 Batbite24 is offline
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ARose, thank you for the thorough and informative update. Glad your wife is doing better. With the MTHFR, it was discovered via genetic testing. It was specific to just the MTHFR, I have not had my entire genome tested. As to the mast cell activation, I highly recommend a book by Dr. Lawrence Afrin, "Never Bet Against Occam." Just before the COVID pandemic, I had received a referral to a doctor in our area who specializes in mast cell activation syndromes/disorders. No chance to follow up with that. I am currently doing very well. Your wife's experience with left leg issues sounds similar to what happened to me three months out from finishing the series. Sudden left leg pain and tightness and what I can only describe as a partial paralysis sensation from the left pelvis on down. I just could not move properly and without great pain. Completely resolved.
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Old 05-09-2020, 04:46 AM #442
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Quote:
Originally Posted by taehyung View Post
honestly same. one minute I would be just positive and then anxiety starts kicking back in.
Welcome,
I hope you are doing a bit better now.
My finger and wrist has stopped hurting, but I still feel weird pain this and there over my body and in my head.
I sometimes also feel burning sensation on my arms, but it was quick one.
Some days, the fear that it would develop to serious case or I would be sent to hospital pop in my mind, but I try my best to calm down. i think that It has been over 1 month already, so it could not possible become an intensive and urgent situation.

I think copping with anxiety is more important, and those side effects will eventually disappear just give our body time.
I now engage meditation in my daily life. I have been doing 15 min meditation/day more than a week, and I feel a lot stronger.

Please try stay calm. You will go through it.
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Old 05-24-2020, 03:13 PM #443
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Default A worried mind

Hello everyone, hope you are faring better than I am. I don't seem to be getting better. Only new symptoms everyday. A racing heart that also slows down scaringly low in the nights. Muscles that don't ache. A low body temperature even when awake 97-. Water retention. An incident when I almost fainted due to hypotension... I hope that the list ends. And dealing all this alone is taking a huge toll on me. Finally going to see a neurologist tomorrow. Hoping for some answers.
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Old 05-25-2020, 07:47 AM #444
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Hi Unbitten...so sorry to hear of your story and unresolved post vaccine side effects. I think my side effects peaked at 3-4 months out. Initially just had mild muscle aches/dizziness but new symptoms started within weeks, nerve pains, ice pick headache pains, thick feeling throat. Of course, extreme Anxiety, panic and depression was part of this journey at the beginning, but has now died down. Had a major panic attack and went to the ER and they took my temp which was 96.7, they had no concern over this.

I did see a Neurologist at 2 months post vaccine. But I went in armed with information I had found on the computer about post vaccine problems. I also did a complete written 'TIMELINE' of the events, my side effects after each shot and ongoing issues. At my initial visit, I handed them a copy of everything so they had it for my record. If I hadn't of done that, I doubt my doc would have had any clue as to what was causing my issues. Physical exam and blood work were normal. Also keeping my composure and not showing any of my anxiety at the visit, he concurred that I most likely have irritation of nerves/muscles from the vaccine. That it could take time to resolve on it's own.

Anyway, best of luck with your Neuro exam...praying all comes out good for you. Don't like to give advise, so just letting you know how I handled my appt with my Neuro given there is so little medical information on our issues.

Keep us updated.
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Old 05-25-2020, 11:27 AM #445
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Originally Posted by Pryjmak View Post
Hi Unbitten...so sorry to hear of your story and unresolved post vaccine side effects. I think my side effects peaked at 3-4 months out. Initially just had mild muscle aches/dizziness but new symptoms started within weeks, nerve pains, ice pick headache pains, thick feeling throat. Of course, extreme Anxiety, panic and depression was part of this journey at the beginning, but has now died down. Had a major panic attack and went to the ER and they took my temp which was 96.7, they had no concern over this.

I did see a Neurologist at 2 months post vaccine. But I went in armed with information I had found on the computer about post vaccine problems. I also did a complete written 'TIMELINE' of the events, my side effects after each shot and ongoing issues. At my initial visit, I handed them a copy of everything so they had it for my record. If I hadn't of done that, I doubt my doc would have had any clue as to what was causing my issues. Physical exam and blood work were normal. Also keeping my composure and not showing any of my anxiety at the visit, he concurred that I most likely have irritation of nerves/muscles from the vaccine. That it could take time to resolve on it's own.

Anyway, best of luck with your Neuro exam...praying all comes out good for you. Don't like to give advise, so just letting you know how I handled my appt with my Neuro given there is so little medical information on our issues.

Keep us updated.
The neurologist ordered a nerve conduction test and it's results showed normal. He told me not to obsess over every small detail about my body and prescribed some anxiety meds. He told me to stop worrying and things will fall in place. I intend to do that for now and wait!
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Old 06-06-2020, 11:48 AM #446
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First off, I just wanted to say "thank you" to everyone who has contributed to this thread. Obviously my curiosity about reactions to the rabies vaccine brought me here, and there is some comfort in knowing that, sadly, others have experienced similar things.

I sustained a very minor bite by a friendly neighborhood cat that I had seen and interacted with a few times. I think it's either an indoor/outdoor cat or maybe recently abandoned. The night of the bite it laid down on my foot and gave me what I would call a "love bite" just above my ankle. That startled me, so I jerked my leg away and the skin was slightly broken in two spots. No puncture, no subsequent infection, all good, right? Well, I only saw the cat once more after that, the next day. I never considered rabies, but got nervous after talking to some friends, and failing to track down the animal or an owner after trying for a few days. Multiple searches for "rabies symptoms" and "rabies incubation period" likely did not help.

Talked to my PCP who recommended I call the county health dept. Since the cat hadn't been seen for a few days they recommended I start rabies treatment while animal control set up a trap. Went in that day for the HRIG, rabies vaccine day 0 and a tetanus shot. The HRIG was way more painful than the actual injury. Not a lot of space down there around the ankle, but they got all of the HRIG in.

Received the day 3 vaccine this past week and day 7 is early next week.

The day I started the treatment was pretty rough, as was the day after. Headache, tiredness, etc. Probably due to stress and lack of sleep as well.

I've had calf twitches (in both calves actually) on and off all week, some numbness on the outside of the leg where the bite occurred and pins & needles type feeling in my foot. The area of the actual bite hasn't really bothered me, and it's healed now. Of course the first things my mind went to were A) I waited too long and B) the vaccine has failed. It's probably too soon to really know either of those things so hopefully what I'm currently experiencing is all I get. The alternative is, uh, not great, haha.

Again, thank you to all who have posted, and be safe out there!
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Old 06-08-2020, 10:21 AM #447
Batbite24 Batbite24 is offline
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Glad you found us. Hope things go well for you and that what is posted here has been helpful and reassuring.
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Old 06-13-2020, 10:43 AM #448
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Originally Posted by Batbite24 View Post
Glad you found us. Hope things go well for you and that what is posted here has been helpful and reassuring.
Thank you for the warm welcome, Batbite. The detailed posts by you and others have really helped me keep some of my symptoms in perspective.

For anyone who may come across this thread in the future, here are some interesting links I've found (you'll probably have to C&P since I can't post links yet).
**administrative edits per NeuroTalk Guidelines**

That second link describes the case of an Australian man who had neurological symptoms following each one of his vaccine injections. For him, they lasted anywhere from 60 minutes to 3 days.

I think some people are just predisposed to nerve and neurological reactions to this vaccine. The vaccine is trying to protect your central nervous system so it makes sense that it could cause symptoms to varying degrees.

For me, I'm predisposed to sciatica. My back hasn't bothered me during this vaccine course, but that predisposition could point to a likelihood of other nerve involvement. My HRIG injection was close to the saphenous nerve so it could very well be inflamed. My three vaccine shots in the deltoid seem to "reignite" that HRIG injection site, and that lasts for a few days. I'm curious to see how I feel after this last vaccine shot when I can go more than a week between shots.

Last edited by Chemar; 06-13-2020 at 12:03 PM. Reason: Please wait until you have reached membership status for linking per our guidelines. Thank you.
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Old 06-18-2020, 01:45 PM #449
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Default Muscle weakness in left leg

Hi everyone, first time posting here. I received the rabies vaccines well over a year ago, in March 2019. Soon after the side effects started. I have had 3 EMGs, a brain MRI without ink, and various blood tests done. All symptoms have come and gone, except for left leg weakness which has been persistent. Also an EMG/NCT showed slowed nerve conduction at left peroneal nerve in July, though it climbed back to normal levels by September, when I repeated the NCT.
The MRI came back clear, and the blood test only showed a very low level of vitamin D.

In September I let go of testing and stopped with doctor visits, assuming that the remaining symptoms will resolve with time.

But now, since a few weeks I feel like the muscles in my left leg are getting weaker and weaker. Also my left knee is making this popping sound when stretching. I have some mild twitching that comes and goes as well, and I have gotten used to it by now.

I was quite hopeful until now that these symptoms would go away, but I am starting to get really worried again, as it seems like it could be an early sign of MS. I read that it can take years for MS to develop into a state that can be diagnosed.

I am very tired of dealing with this, and really do not want to start again with hospital visits as it is so draining, and most of the doctors brush it off as nothing.

Did anyone experience muscle wasting/ weakness as well? If so, can you please let me know what your experience was and if it went away?

Thank you.
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Old 06-21-2020, 07:34 AM #450
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Hi Neuro Member.....Sorry to hear you have also had issues with the rabies vaccine. Since no one has responded to your post, thought I would do so. I am only 7 months post last vaccine shot. One of my many side effects has been muscle aches both legs from buttocks to ankles since the initial shots began. At times my legs feel very weak. What I have learned from this site, is that everyone has a different timeline for symptoms to completely resolve. While I have improved with some symptoms, the muscle aches continue. There is one person under the name 'Batbite24' that documented her vaccine issues on this site, from her exposure in late 2016. Her first post goes back to early 2017 and she has many updates in this site. She posted having issues similar to yours, leg weakness and paralysis. Her most recent posts indicate a full recovery. So I would recommend you at least view her posts to get an idea of her timeline for recovery. I know that my muscle issues are directly related to the vaccine and may take many more months to resolve fully. I hope this info will help you and pray you and everyone else in the throws of an adverse vaccine reaction have complete and full recovery.
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